obviously not new.
"
Summary
Background
The PACE trial found that, when added to specialist medical care (SMC), cognitive behavioural therapy (CBT), or graded exercise therapy (GET) were superior to adaptive pacing therapy (APT) or SMC alone in improving fatigue and physical functioning in...
Post-acute COVID-19 syndrome (PACS) is a collection of persistent and debilitating symptoms lasting weeks to months after acute COVID-19 infection, with fatigue most commonly reported. There is controversy surrounding the role of exercise programs for this condition, due to concerns over the...
An email from NICE has highlighted that they are developing a guideline on Rehabilitation for Chronic Neurological Disorders Including Traumatic Brain Injury.
In theory, NICE, rightly or wrongly, recognise ME as a neurological condition, so I would assume that ME will be included in this...
(This was about SARS, not properly controlled either)
A randomised controlled trial of the effectiveness of an exercise training program in patients recovering from severe acute respiratory syndrome
https://www.sciencedirect.com/science/article/pii/S0004951405700027
This is from the first...
This post and all to post #12 have been moved here from the BPS attempts at psychologising Long Covid thread. Links to Warwick University and National Institute of Health Research web pages in this post
Eurekalert: New clinical trial to test whether structured exercise benefits 'long covid'...
Open access peer-reviewed chapter
https://www.intechopen.com/books/neuroimaging-neurobiology-multimodal-and-network-applications/hypothalamic-pituitary-adrenal-hpa-axis-and-chronic-fatigue-syndrome-in-older-adults-the-rehabilitat
International Journal of Qualitative Studies on Health and Wellbeing
Patient's experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome - Anne Marit Mengshoel, Ingrid B. Helland, Mira Meeu, Jesus Castro-Marrero, Derek Pheby & Elin Bolle...
Full title and authors:
Serious Gaming During Multidisciplinary Rehabilitation for Patients With Chronic Pain or Fatigue Symptoms: Mixed Methods Design of a Realist Process Evaluation
Miel AP Vugts, Aglaia MEE Zedlitz, Margot CW Joosen, Hubertus JM Vrijhoef
https://www.jmir.org/2020/3/e14766/...
I came across this on the Cochrane Central Database but cannot find any publication.
Original Title:
Optimalization of Cognitive Behavioral Therapy (CBT) for CFS patients in rehabilitation by means of ambulatory activity‐based feedback (ABF) ‐ Ambulatory activity‐based feedback (ABF)...
Abstract
Previous studies have shown that health‐related quality of life (HRQoL) in adolescents living with chronic fatigue syndrome (CFS/ME) is low if compared with healthy adolescents and adolescents living with other chronic diseases. Effective strategies to improve HRQoL in this group are...
Tea and cake: an opportunity for young people and their parents/guardians to eat cake and share ideas
For more on the conference see this thread:
https://www.s4me.info/threads/me-cfs-contributions-at-royal-college-of-paediatrics-and-child-health-conference-may-2019.9555/
The report has an English summary from pages 9 - 12.
ME-pasienters erfaring med rehabiliteringsopphold (ME patients' experiences with rehabilitation stays)
Some of the main findings:
Slightly more than half were satisfied with the rehabilitation stay
About three out of four disagree or...
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