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quality of life

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  1. Nightsong
    Thread

    Health-related quality of life in [ME/CFS] and [PCC]: a systematic review, 2025, Weigel+

    Abstract: Purpose Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID-19 Condition (PCC) are debilitating, chronic...
    Thread by: Nightsong, Mar 13, 2025, 3 replies, in forum: ME/CFS research
  2. Yann04
    Thread

    Factors associated with quality of life in long-COVID syndrome, 2025, Artemiadis et al

    Abstract: Approximately 10% of patients experience persistent symptoms following COVID-19, known as long-COVID syndrome. This cross-sectional...
    Thread by: Yann04, Jan 9, 2025, 4 replies, in forum: Long Covid research
  3. Nightsong
    Thread

    A pilot cross-sectional investigation of symptom clusters and associations with patient-reported outcomes in [ME/CFS] and [PCC], 2024, Weigel et al

    Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is associated with long-term disability and poor quality of life (QoL)....
    Thread by: Nightsong, Oct 4, 2024, 0 replies, in forum: ME/CFS research
  4. Dolphin
    Thread

    Trial Report Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Impact on Quality of Life (QoL) of Persons with ME/CFS, 2024, Muirhead

    https://www.mdpi.com/1648-9144/60/8/1215 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Impact on Quality of Life (QoL) of Persons with...
    Thread by: Dolphin, Jul 27, 2024, 7 replies, in forum: ME/CFS research
  5. Dolphin
    Thread

    Thesis ME/CFS Health-related quality of life, 2024, Huseby

    Masters thesis in Norwegian with English summary...
    Thread by: Dolphin, Jul 8, 2024, 5 replies, in forum: ME/CFS research
  6. Hoopoe
    Thread

    Consider e-bikes

    If you're too healthy for a wheelchair, but too sick to walk for more than 30-60 minutes without feeling uncomfortable, consider a good e-bike (a...
    Thread by: Hoopoe, Mar 5, 2024, 19 replies, in forum: Home adaptations, mobility and personal care
  7. SNT Gatchaman
    Thread

    Preprint Post-Vaccination Syndrome: A Descriptive Analysis of Reported Symptoms & Patient Experiences After Covid-19 Immunization, 2023, Krumholz, Iwasaki +

    Post-Vaccination Syndrome: A Descriptive Analysis of Reported Symptoms and Patient Experiences After Covid-19 Immunization Harlan M Krumholz;...
    Thread by: SNT Gatchaman, Nov 11, 2023, 11 replies, in forum: Long Covid research
  8. Wyva
    Thread

    Psychometric validation of the French Multidimensional Chronic Asthenia Scale (MCAS) in a sample of 621 pts with chronic fatigue, 2023, Banovic et al

    Psychometric validation of the French Multidimensional Chronic Asthenia Scale (MCAS) in a sample of 621 patients with chronic fatigue Abstract...
    Thread by: Wyva, Oct 11, 2023, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Midnattsol
    Thread

    Anticipated stigma and quality of life among people living with chronic illnesses, 2011, Earnshaw et al

    Objectives: We examined the process by which anticipated stigma relates to quality of life among people living with chronic illnesses. We...
    Thread by: Midnattsol, Jul 27, 2023, 1 replies, in forum: Other health news and research
  10. Andy
    Thread

    Poor health-related quality of life in [POTS] in comparison with a sex- and age-matched normative population, 2023, Seeley et al

    Full title: Poor health-related quality of life in postural orthostatic tachycardia syndrome in comparison with a sex- and age-matched normative...
    Thread by: Andy, Jun 21, 2023, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  11. SNT Gatchaman
    Thread

    Impact of fatigue as the primary determinant of functional limitations among patients with post-COVD-19 syndrome, 2023, Walker et al

    Impact of fatigue as the primary determinant of functional limitations among patients with post-COVID-19 syndrome: a cross-sectional observational...
    Thread by: SNT Gatchaman, Jun 8, 2023, 7 replies, in forum: Long Covid research
  12. SNT Gatchaman
    Thread

    Patient Perspectives on the Meaning and Impact of Fatigue in Hemodialysis: A Systematic Review and Thematic Analysis of Qualitative Studies, 2019

    Patient Perspectives on the Meaning and Impact of Fatigue in Hemodialysis: A Systematic Review and Thematic Analysis of Qualitative Studies...
    Thread by: SNT Gatchaman, Mar 6, 2023, 6 replies, in forum: 'Conditions related to ME/CFS' news and research
  13. Wyva
    Thread

    The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and (...), 2022, Nehme et al

    Full title: The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and increased healthcare...
    Thread by: Wyva, Aug 27, 2022, 11 replies, in forum: Long Covid research
  14. Kalliope
    Thread

    BMJ: Impact of ME/CFS on the quality of life of people with ME/CFS and their partners and family members.... Vyas, Muirhead et al, 2022

    Full title: Impact of myalgic encephalomyelitis/chronic fatigue syndrome /ME/CFS) on the quality of life of people with ME/CFS and their partners...
    Thread by: Kalliope, May 3, 2022, 7 replies, in forum: ME/CFS research
  15. Sly Saint
    Thread

    The Quality of Life Scale (QOLS): Reliability, Validity, and Utilization, 2003, Burkhardt and Anderson

    Abstract The Quality of Life Scale (QOLS), created originally by American psychologist John Flanagan in the 1970's, has been adapted for use in...
    Thread by: Sly Saint, Sep 28, 2021, 0 replies, in forum: Research methodology news and research
  16. Milo
    Thread

    Proposed model of integrated care to improve health outcomes for individuals with multimorbidities (2012) Sampalli et al.

    Please discuss. This is a model of care for ME and FM program in Nova Scotia. Proposed model of integrated care to improve health outcomes for...
    Thread by: Milo, Sep 23, 2021, 4 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Wyva
    Thread

    The Conversation: Why governments will have to consider the costs of long COVID when easing pandemic restrictions

    Author: Richard Meade Research Fellow in Economics, and in Social Sciences & Public Policy, Auckland University of Technology He also used to...
    Thread by: Wyva, Jul 27, 2021, 1 replies, in forum: Long Covid news
  18. Andy
    Thread

    Impacts of online support groups on quality of life, and perceived anxiety and depression in those with ME/CFS: a survey, 2021, Morehouse et al

    ABSTRACT Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition that can negatively affect physical...
    Thread by: Andy, Jul 11, 2021, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  19. cassava7
    Thread

    Quality of life in functional movement disorders is as altered as in organic movement disorders, Gendre et al., 2018

    Journal of Psychosomatic Research Volume 116, January 2019, Pages 10-16 Thierry Gendre, Guilhem Carle, Francine Mesratid, Cécile Hubsch, Thomas...
    Thread by: cassava7, Jul 1, 2021, 6 replies, in forum: Other psychosomatic news and research
  20. rvallee
    Thread

    Pain is not the major determinant of quality of life in fibromyalgia: results from a retrospective “real world” data analysis of [FM] patients, 2021

    Objective To identify correlates of quality of life (QoL) measured with the Quality of Life Scale (QOLS) in participants of a multidisciplinary...
    Thread by: rvallee, Apr 13, 2021, 5 replies, in forum: Other psychosomatic news and research
Showing results 1 to 20 of 28
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