quality of life

Zoe Sirotiak, Hailey J. Amro Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an impairing chronic condition characterized by exhaustion and worsening symptoms following exertion, often accompanied by pain, sleep issues, and cognitive issues. Historically, ME/CFS was not...

Full title: Tick-borne encephalitis in Norway: A cohort study of clinical course and health-related quality of life at three- and twelve-month follow-up Purpose Knowledge of tick-borne encephalitis (TBE) prognosis is limited. This study aimed to describe the disease course in the first year and...

Abstract: Purpose Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID-19 Condition (PCC) are debilitating, chronic multi-systemic illnesses that require multidisciplinary care. However, people with ME/CFS (pwME/CFS) and people with PCC (pwPCC) are often precluded from...

Abstract: Approximately 10% of patients experience persistent symptoms following COVID-19, known as long-COVID syndrome. This cross-sectional study explored factors of quality of life (QoL) in 53 long-COVID patients. QoL was measured using the World Health Organization-Five Well-Being Index...

Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is associated with long-term disability and poor quality of life (QoL). Cardinal ME/CFS symptoms (including post-exertional malaise, cognitive dysfunction and sleep disturbances) have been observed in Post COVID-19 Condition...

https://www.mdpi.com/1648-9144/60/8/1215 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Impact on Quality of Life (QoL) of Persons with ME/CFS Medicina 2024, 60(8), 1215; https://doi.org/10.3390/medicina60081215 (registering DOI) Submission received: 31 May 2024 / Revised: 4 July 2024 /...

Masters thesis in Norwegian with English summary https://brage.inn.no/inn-xmlui/bitstream/handle/11250/3138625/no.inn:inspera:224834835:91517292.pdf?sequence=1&isAllowed=y ME/CFS - Helserelatert livskvalitet ME/CFS - Health-related quality of life Kandidatnr: 22 - Mats Huseby Fakultet for...

If you're too healthy for a wheelchair, but too sick to walk for more than 30-60 minutes without feeling uncomfortable, consider a good e-bike (a pedelec, to be precise). For me it has been lifechanging. I'll write about my experience with an e-bike from a EU perspective. In other countries the...

Post-Vaccination Syndrome: A Descriptive Analysis of Reported Symptoms and Patient Experiences After Covid-19 Immunization Harlan M Krumholz; Yilun Wu; Mitsuaki Sawano; Rishi Shah; Tianna Zhou; Adith S Arun; Pavan Khosla; Shayaan Kaleem; Anushree Vashist; Bornali Bhattacharjee; Qinglan Ding...

Psychometric validation of the French Multidimensional Chronic Asthenia Scale (MCAS) in a sample of 621 patients with chronic fatigue Abstract Background Psychometric validation of the Multidimensional Chronic Asthenia Scale (MCAS) was conducted in order to provide an effective tool for...

Objectives: We examined the process by which anticipated stigma relates to quality of life among people living with chronic illnesses. We hypothesized that stress, social support and patient satisfaction mediate the relationships between three sources of anticipated stigma and quality of life...

Full title: Poor health-related quality of life in postural orthostatic tachycardia syndrome in comparison with a sex- and age-matched normative population Purpose The effect of postural orthostatic tachycardia syndrome (POTS) on health-related quality of life (HrQoL) remains poorly studied...

Impact of fatigue as the primary determinant of functional limitations among patients with post-COVID-19 syndrome: a cross-sectional observational study Sarah Walker; Henry Goodfellow; Patra Pookarnjanamorakot; Elizabeth Murray; Julia Bindman; Ann Blandford; Katherine Bradbury; Belinda Cooper...

Patient Perspectives on the Meaning and Impact of Fatigue in Hemodialysis: A Systematic Review and Thematic Analysis of Qualitative Studies Jacobson J, Ju A, Baumgart A, Unruh M, O'Donoghue D, Obrador G, Craig JC, Dapueto JM, Dew MA, Germain M, Fluck R, Davison SN, Jassal SV, Manera K, Smith AC...

Full title: The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and increased healthcare utilization Abstract Post-COVID condition is prevalent in 10–35% of cases in outpatient settings, however a stratification of the duration and...

Full title: Impact of myalgic encephalomyelitis/chronic fatigue syndrome /ME/CFS) on the quality of life of people with ME/CFS and their partners and family members: an online cross-sectional survey Jui Vyas, Nina Muirhead et al Abstract Objectives The aim of this study was to assess the impact...

Abstract The Quality of Life Scale (QOLS), created originally by American psychologist John Flanagan in the 1970's, has been adapted for use in chronic illness groups. This paper reviews the development and psychometric testing of the QOLS. A descriptive review of the published literature was...

Please discuss. This is a model of care for ME and FM program in Nova Scotia. Proposed model of integrated care to improve health outcomes for individuals with multimorbidities Abstract: Multimorbidity is defined as the coexistence of multiple chronic conditions. Individuals with...

Author: Richard Meade Research Fellow in Economics, and in Social Sciences & Public Policy, Auckland University of Technology He also used to suffer from ME/CFS and compares the two in the article as well. "The social costs of long COVID should not be underestimated. For example, suppose an...

ABSTRACT Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition that can negatively affect physical and mental health [1,2]. People with ME/CFS report lower perceived levels of social support, which further exacerbate challenges with mental health and...