qualitative

  1. C

    Overcoming the barriers to the diagnosis and management of chronic fatigue syndrome/ME in primary care, 2014, Bayliss et al

    Overcoming the barriers to the diagnosis and management of chronic fatigue syndrome/ME in primary care: a meta synthesis of qualitative studies Kerin Bayliss, Mark Goodall, Anna Chisholm, Beth Fordham, Carolyn Chew-Graham, Lisa Riste, Louise Fisher, Karina Lovell, Sarah Peters & Alison Wearden...
  2. Andy

    Making sense of symptoms, clinicians & systems: a qualitative evaluation of a facilitated support group for patients with [MUS], 2021, Marcinow et al

    Abstract Objectives Health services to date have inadequately addressed the physical and mental health needs of patients with medically unexplained symptoms. This qualitative study evaluates a piloted facilitated support group (FSG) developed for patients with medically unexplained symptoms to...
  3. Sly Saint

    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of recovery and future treatment needs Philippa Clery, MBBS BSc, Jennifer Starbuck, BSc DClinPsy, Amanda Laffan, BSc DClinPsy, Esther Crawley, MBBCh PhD...
  4. John Mac

    Experiences of Living with Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, 2021, Strassheim et al

    https://www.mdpi.com/2227-9032/9/2/168
  5. Andy

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    Open access, https://journals.sagepub.com/doi/10.1177/1049732320969395
  6. Dolphin

    Finding the 'right' GP: a qualitative study of the experiences of people with long-COVID, 2020, Kingstone/Chew-Graham/et al

    Free full text: https://bjgpopen.org/content/early/2020/10/12/bjgpopen20X101143
    • Dolphin
    • Thread
    • 2020 chew-graham kingstone paper patient experience post covid-19 syndrome primary care qualitative quotes
    • Replies: 6
    • Forum: Long Covid research
  7. Dolphin

    A meta-ethnography of people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and their support needs, 2020, Pilkington et al

    https://www.sciencedirect.com/science/article/abs/pii/S0277953620305888 Some of these have been involved with annoying papers in the past Social Science & Medicine Available online 16 September 2020, 113369 In Press, Journal Pre-proof
  8. rvallee

    Factors Affecting the Characterization of Post-Exertional Malaise Derived from Patient Input, 2020, Holtzman, Jason et al

    Factors Affecting the Characterization of Post-Exertional Malaise Derived from Patient Input https://digitalscholarship.unlv.edu/jhdrp/vol13/iss2/5/ (This would normally fit in research but is neither psychosocial nor biomedical, perhaps a category for research on clinical care is needed?)
  9. Sly Saint

    Patients’ experiences with fluctuations in persistent physical symptoms: a qualitative study - Barends et al July 2020

    https://bmjopen.bmj.com/content/10/7/e035833.info eta:
  10. Andy

    The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’, 2020, Crawley

    Title including weird quote, “The child’s got a complete circle around him ”. The care of younger children (5–11 years) with CFS/ME. A qualitative study comparing families’, teachers’ and clinicians’ perspectives’ Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/hsc.13029
  11. Dolphin

    A qualitative exploration of treatment preference in paediatric randomised controlled trials, 2019, Beasant (Crawley supervised)

    via Dr. Marc-Alexander Fluks Source: University of Bristol Date: November 28, 2019 URL: https://research-information.bris.ac.uk/en/theses/a-qualitative-exploration-of-treatment-preference-in-paediatric-randomised-controlled-trials(e6ff1d3b-e315-45e2-a4da-18ae0b414a1d).html...
  12. Trish

    Dismissing chronic illness: A qualitative analysis of negative health care experiences, 2019, L. Jason et al

    https://www.tandfonline.com/doi/abs/10.1080/07399332.2018.1521811?journalCode=uhcw20 Journal: Health Care for Women International Dismissing chronic illness: A qualitative analysis of negative health care experiences Leonard Jason et al.
  13. Andy

    Hope, disappointment and perseverance: Reflections of people with ME/CFS and MS participating in biomedical research..., 2019, Lacerda et al

    Open access at https://onlinelibrary.wiley.com/doi/full/10.1111/hex.12857
    • Andy
    • Thread
    • 2019 diagnosis lacerda lshtm me/cfs multiple sclerosis paper patient experience qualitative treatment
    • Replies: 2
    • Forum: ME/CFS research
  14. A

    Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME: interviews with adolescents and parents, 2018, Crawley et al

    New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition. Questionnaire based, pre diagnosed Mild/ moderate but not housebound I don't know if any comorbidities (OI, EDS etc) have even been thought about I have not...
  15. Andy

    Children’s views on research without prior consent in emergency situations: a UK qualitative study, 2018, Woolfall et al (including Crawley)

    Exploring more ways to take advantage of children. Open access at http://bmjopen.bmj.com/content/8/6/e022894
  16. H

    Factors impacting the illness trajectory of post-infectious fatigue syndrome: a qualitative study of adults' experiences (2017) Jason et al

    https://www.ncbi.nlm.nih.gov/pubmed/29237442 https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-017-4968-2
    • hixxy
    • Thread
    • 2017 leonard jason me/cfs paper pifs qualitative
    • Replies: 29
    • Forum: ME/CFS research
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