parliament

European Parliament: COVID-19 pandemic: lessons learned and recommendations for the future pdf https://www.europarl.europa.eu/doceo/document/TA-9-2023-0282_EN.pdf

https://www.aph.gov.au/Parliamentary_Business/Committees/House/Health_Aged_Care_and_Sport/LongandrepeatedCOVID Following a referral on 1 September 2022 from the Minister for Health and Aged Care, the Hon Mark Butler MP, the House Standing Committee on Health, Aged Care and Sport will inquire...

Statement My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made the following written statement: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) affects the lives of children and adults across the country. It can be an incredibly disabling...

UK Government Rapid Response on Long COVID Long COVID: The long-term health effects of COVID-19 (17/12/21). (Not sure the "rapid response" label is entirely justified.) Describes symptoms as " fatigue, shortness of breath, cough, sleep disturbances, anxiety and depression, cognitive...

A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the impact of ME on 2 million people in the EU and the lack of EU funding for ME Research. I'd be grateful if you would consider supporting it (and ask...

Seems someone got in there first... :wink: https://petition.parliament.uk/petitions/601237

Moved post Patients of post viral being taken seriously? Following petition started by patient from Norfolk and Suffolk Service ME and CFS area. Please consider supporting and promoting please. https://petition.parliament.uk/petitions/585780

"Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome – Baroness Thornton Oral questions" https://www.theyworkforyou.com/calendar/?d=2021-10-12#cal35881 (don't have any more details)

A member of the Swedish Riksdag ("the Parliament") has asked the Minister for Health and Social Affairs a formal question about ME/CFS. The question will be answered in writing. Vård för personer med ME/CFS...

Copied post from News from Scandinavia There will be an open hearing on ME/CFS and infection triggered fatigue syndrome in the Swedish Riksdag on 27 May, hosted by the Social Affairs Committee. It will be available to watch online. The Riksdag is the highest decision-making assembly in Sweden...

"The Commons Work and Pensions Committee is investigating the gap between the employment rates of disabled and non-disabled people and how the Department for Work and Pensions can better support disabled people in the labour market. This evidence session is expected to cover issues around...

https://www.inclusionlondon.org.uk/campaigns-and-policy/act-now/coronavirus-bill-could-leave-thousands-of-disabled-people-without-support/

Posts on this thread have been moved from this thread about the new APPG being set up https://www.s4me.info/threads/uk-all-party-parliamentary-group-being-reactivated-2020.13172/ https://www.meaction.net/2020/02/19/next-steps-for-the-appg-on-me-in-the-uk/

How to sign the EU-petition on a request for funding for biomedical research on Myalgic Encephalomyelitis (No0204/2019) 1) Go to the EU website: https://petiport.secure.europarl.europa.eu/petitions/en/petition/content/0204%2F2019/html/missinglink 2) Click register at the top right corner of...

Just posted by ME Association Asking people to contact their MPs to ask them to join. https://www.meassociation.org.uk/2020/01/the-all-party-parliamentary-group-on-me-to-re-convene-please-invite-your-mp-to-attend-09-january-2020/

News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its own thread. This article by #MEAction includes a video: https://www.meaction.net/2019/10/03/me-activist-testifies-before-eu-parliament/

A young woman with ME has started UK Parliamentary petition seeking training in relation to ME for teachers: https://petition.parliament.uk/petitions/266152 It can be signed by any UK resident or UK citizens including those living overseas.

full debate here https://www.theyworkforyou.com/whall/?id=2019-06-25a.294.0&s=Chronic+Fatigue+Syndrome#g294.1

Just wanting to query the facts in this post from MEA fb 'visitor's posts - i wasnt aware of LP being mentioned in parliament since the January debate... does anyone know anything about the veracity of this? I'd like to support Jo & point out that regardless of whether it was "reported in...

https://www.meaction.net/2018/06/29/volunteer-of-the-month-scottish-trio/ Congrats @Emsho :)