paper

  1. Sly Saint

    Comparing Idiopathic Chronic Fatigue and ME/CFS: Response to 2-day CPET, two papers males & females, 2021, Van Campen & Visser

    The paper comparing results in female CF And ME/CFS patients is posted later on the thread here and had its own thread that is now closed and the discussions merged Comparing Idiopathic Chronic Fatigue and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in Males: Response to Two-Day...
  2. Andy

    Analysis of Gender Differences in HRV of Patients with [ME/CFS] Using Mobile-Health Technology, 2021, Capdevila et al

    Abstract In a previous study using mobile-health technology (mHealth), we reported a robust association between chronic fatigue symptoms and heart rate variability (HRV) in female patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This study explores HRV analysis as an...
  3. Andy

    Post-Exertional Malaise ... Related to Central Blood Pressure, Sympathetic Activity and Mental Fatigue in [CFS] Patients, 2021, Kujawski, Newton et al

    Abstract Post-exertional malaise (PEM) is regarded as the hallmark symptom in chronic fatigue syndrome (CFS). The aim of the current study is to explore differences in CFS patients with and without PEM in indicators of aortic stiffness, autonomic nervous system function, and severity of...
  4. Andy

    Methodology over metrics: Current scientific standards are a disservice to patients and society, 2021, Van Calster et al

    Highlights The overall quality of medical research remains poor, despite longstanding criticisms. The scientific enterprise is business-like and consistently undervalues its own backbone, methodology. Despite great initiatives to improve research quality, progress is modest. Top-down action...
  5. Hutan

    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al

    J.L. Newton 1 J. Pairman 1 K. Hallsworth 1, 2 S. Moore 1,2 T. Plo TZ 3 and M.I. Trenell 1, 2 1. UK National Institute for Health Research Biomedical Research Centre in Ageing & Age-related Disease, Institute for Ageing and Health, Newcastle University, Newcastle, UK, 2. MRC Centre for Brain...
  6. Andy

    The Impact of Severe ME/CFS on Student Learning and K–12 Educational Limitations, 2021, Newton

    Faith Newton Abstract Children with ME/CFS who are severely ill are bedbound and homebound, and oftentimes also wheelchair-dependent. Very seriously affected children are often too sick for doctor’s office visits, let alone school attendance. The most recent data estimate that 2–5% of children...
  7. Andy

    Elements of Suffering in [ME/CFS]: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected, 2021, Fennell et al

    Full title: Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected Abstract People who are severely and very severely affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  8. Dolphin

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    https://www.sciencedirect.com/science/article/abs/pii/S0022399921001781 Journal of Psychosomatic Research Available online 28 May 2021, 110533 In Press, Journal Pre-proof Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome P.D.White a...
  9. Wyva

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Abstract Adult patients affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are at an increased risk of death by suicide. Based on the scientific literature and our clinical/research experiences, we identify risk and protective factors and provide a guide to assessing and...
  10. Andy

    The Effect of Literacy-Adapted Psychosocial Treatments on Biomedical and Biopsychosocial Pain Conceptualization, 2021, Morais et al

    Highlights Literacy-adapted psychosocial pain treatments produce changes in pain beliefs. Individuals of low-socioeconomic status show improvements in pain beliefs. Teaching patients about the biopsychosocial nature of pain is promising. Abstract This is a secondary data analysis of a subgroup...
  11. Andy

    Study on the Relationship between the miRNA-centered ceRNA Regulatory Network and Fatigue, 2021, Yang et al

    Abstract In recent years, the incidence of fatigue has been increasing, and the effective prevention and treatment of fatigue has become an urgent problem. As a result, the genetic research of fatigue has become a hot spot. Transcriptome-level regulation is the key link in the gene regulatory...
  12. Sly Saint

    Identification of differential genetic profiles in severe forms of fibromyalgia and CFS/ME, 2008, Garcia-Fructuoso et al

    Identification of differential genetic profiles in severe forms of fibromyalgia and chronic fatigue syndrome/myalgic encephalomyelitis: A population-based genetic association study Ferran J. Garcia-Fructuoso, Jose Ignacio Lao-Villadoniga, Cristina Santos, Violant Poca-Dias, Joaquim...
  13. Sly Saint

    Systematic Review of Sleep Characteristics in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Maksoud, Staines, Marshall-Gradisnik, et al

    Abstract (1) Background—Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multifaceted illness characterized by profound and persistent fatigue unrelieved by rest along with a range of other debilitating symptoms. Experiences of unrefreshing and disturbed sleep are frequently...
  14. Sly Saint

    Adverse events & deterioration reported by participants in the PACE trial of therapies for chronic fatigue syndrome, 2014, Sharpe,White,Chalder et al

    https://www.sciencedirect.com/science/article/pii/S0022399914001883?via%3Dihub (was this data ever released?)
  15. Andy

    ..role of self-efficacy & catastrophizing in .. improvements in disability, pain & fatigue .. patients w/chronic widespread pain.., 2021, Thompson

    Full title: The role of self-efficacy and catastrophizing in explaining improvements in disability, pain and fatigue among patients with chronic widespread pain treated with physiotherapy: An exploratory analysis Authors: Thompson, Antcliff and Woby Abstract Objectives Most research exploring...
  16. Andy

    “Pacing does help you get your life back”: The acceptability of a newly developed activity pacing framework for chronic pain/fatigue, 2021, Antcliff

    Abstract Objectives We have developed and feasibility tested an activity pacing framework for clinicians to standardise their recommendations of activity pacing to patients with chronic pain/fatigue. This study aimed to explore the acceptability and fidelity to this framework in preparation for...
  17. Sly Saint

    Deconditioning does not explain orthostatic intolerance in ME/CFS, 2021, VanCampen, Rowe, Visser

    Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) Abstract Background Orthostatic intolerance (OI) is a frequent finding in individuals with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Published studies...
  18. D

    Low iron storage and mild anemia in postural tachycardia syndrome in adolescents, 2013, Jarjour and Jarjour

    Copied post, from NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome From PubMed: Clin Auton Res. . 2013 Aug;23(4):175-9. doi: 10.1007/s10286-013-0198-6. Epub 2013 May 30. Low iron storage and mild anemia in postural tachycardia syndrome in adolescents Imad T Jarjour 1...
  19. Andy

    Comparison of the Functional Health Limitations of Veterans [of] Iraq or Afghanistan to Veterans [of] Desert Shield/Storm w/CFS, 2016, McAndrew et al

    Full title: Comparison of the Functional Health Limitations of Veterans Deployed to Iraq or Afghanistan to Veterans Deployed to Desert Shield/Storm With Chronic Fatigue Syndrome ABSTRACT The majority of studies to examine the levels of physical symptoms after Operation Enduring...
  20. Andy

    Reduction of host cell mitochondrial activity as Mycobacterium leprae’s strategy to evade host innate immunity, 2021, Oliveira et al

    Abstract Leprosy is a much‐feared incapacitating infectious disease caused by Mycobacterium leprae or M lepromatosis, annually affecting roughly 200,000 people worldwide. During host‐pathogen interaction, M leprae subverts the immune response, leading to development of disease. Throughout the...
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