orthostatic intolerance

  1. Hoopoe

    Hypocapnic cerebral hypoperfusion: A biomarker of orthostatic intolerance (2018), Novak

    https://doi.org/10.1371/journal.pone.0204419 My take away from this: patients with hypocapnic cerebral hypoperfusion present the same symptoms as patients with POTS but can fail a tilt test due to absence of tachycardia. ME/CFS is also mentioned.
    • Hoopoe
    • Thread
    • 2018 cardiology cerebral hypoperfusion hypocapnia me/cfs novak orthostatic intolerance paper pots tilt table test
    • Replies: 1
    • Forum: ME/CFS research
  2. Andy

    The Orthostatic Discriminant and Severity Scale (ODSS): an assessment of orthostatic intolerance, 2018, Baker et al

    Full paper (PDF file), https://link.springer.com/epdf/10.1007/s10286-018-00586-5?shared_access_token=STPXS4PtJZOInVSXh8x-Mfe4RwlQNchNByi7wbcMAY660rig95e8st82z-CMxT4KiCk81BpD7DOoNq3KMVlYwM6FCVf_FXKtfFM1z-YvJJbjMgP9QCLqADOEFlJpB88Elu-TN36S3zHCJJbtNRbx7FEiObmkUmlXDKOql6z1yPE%3D also paywalled at...
  3. Andy

    Video: Peter Rowe - Orthostatic Intolerance in EDS/HSD

  4. Andy

    Review: Postural orthostatic tachycardia syndrome: clinical presentation, aetiology and management, 2018, Fedorowski

    Open access at https://onlinelibrary.wiley.com/doi/full/10.1111/joim.12852
  5. Andy

    Verification of exercise-induced transient postural tachycardia phenotype in Gulf War Illness, 2018, Garner, Rayhan and Baraniuk

    Open access at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220213/
  6. Andy

    Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, 2018, van Campen, Rowe & Visser

    Abstract only at moment, https://www.frontiersin.org/articles/10.3389/fped.2018.00349/abstract
    • Andy
    • Thread
    • 2018 campen cardiology me/cfs orthostatic intolerance paper pots rowe tilt table test visser
    • Replies: 8
    • Forum: ME/CFS research
  7. Kalliope

    Frontiers in Pediatrics: Blood volume status in ME/CFS correlates with the presence or absence of orthostatic symptoms (2018) Van Campen et al

    Frontiers in Pediatrics: Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms Introduction: Conflicting data have been published on the reduction of circulating blood volume in adults with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The...
    • Kalliope
    • Thread
    • 2018 blood volume cardiology dual isotope scan me/cfs orthostatic intolerance paper pots van campen
    • Replies: 13
    • Forum: ME/CFS research
  8. T

    Truncal ataxia or disequilibrium is an unrecognised cause of orthostatic intolerance in patients with myalgic encephalomyelitis (Miwa, 2017)

    https://onlinelibrary.wiley.com/doi/abs/10.1111/ijcp.12967
  9. Indigophoton

    Intracranial compliance is associated with symptoms of orthostatic intolerance in chronic fatigue syndrome, Finkelmeyer et al, 2018

    http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0200068
    • Indigophoton
    • Thread
    • 2018 finkelmeyer me/cfs mri neurology orthostatic intolerance paper
    • Replies: 11
    • Forum: ME/CFS research
  10. Sly Saint

    Weighting of orthostatic intolerance time measurements with standing difficulty score stratifies ME/CFS symptom severity and analyte detection

    Weighting of orthostatic intolerance time measurements with standing difficulty score stratifies ME/CFS symptom severity and analyte detection Alice M. RichardsonEmail author, Don P. Lewis, Badia Kita, Helen Ludlow, Nigel P. Groome, Mark P. Hedger, David M. de Kretser and Brett A. Lidbury...
    • Sly Saint
    • Thread
    • 2018 activin lidbury me/cfs measurement orthostatic intolerance paper richardson severity weighted standing time
    • Replies: 4
    • Forum: ME/CFS research
  11. adambeyoncelowe

    The aetiologic relation between disequilibrium and orthostatic intolerance in patients with myalgic encephalomyelitis (CFS), 2018, Miwa & Inoue

    http://www.journal-of-cardiology.com/article/S0914-5087(18)30058-3/fulltext#.WrzVHiFZs-E.twitter
    • adambeyoncelowe
    • Thread
    • 2018 cardiology disequilibrium kunihisa miwa me/cfs orthostatic intolerance paper pots symptoms
    • Replies: 2
    • Forum: ME/CFS research
  12. Jenny TipsforME

    What does your crash feel like?

    I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in mind I won’t be able to read long answers ;)) To me it feels like the top of my spine is inflamed and also the area which is likely my spleen. Light...
  13. Jenny TipsforME

    Sulfur Dioxide and POTS

    Increased Endogenous Sulfur Dioxide Involved in the Pathogenesis of Postural Tachycardia Syndrome in Children: A Case‐Control Study Hong‐Xia Li1, Xiao‐Chun Zheng1, Si‐Yao Chen2, Ying Liao1, Zhen‐Hui Han3, Pan Huang1, Chu‐Fan Sun1, Jia Liu1, Jing‐Yuan Song1, Chao‐Shu Tang4, Jun‐Bao Du1...
  14. hellytheelephant

    THE CHRONIC ELEPHANT BLOG-DYSAUTONOMIA PART ONE

    FAINTING BY NUMBERS: DYSAUTONOMIA PART 1 https://thechronicelephant.blogspot.co.uk/2017/10/fainting-by-numbers-dysautonomia-part-1.html
  15. It's M.E. Linda

    Orthostatic Intolerance in PwME (POTS?/NMH?) - discussion thread

    From the Stakeholders meeting of NICE:- So, my experience from 2017. I asked my GP to refer me for a tilt table test as I have had varying symptoms when standing, climbing stairs, any uphill walk (not exactly hills, you understand, but we do live on a slope and I do walk a slow dog and...
  16. ahimsa

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    I thought I'd start a thread where folks can post links to documents, videos or websites that have treatment suggestions for Orthostatic Intolerance. I hope this is not duplicating any existing thread that is in one of the library sections. I looked but did not see one. Also, by having this...
  17. ahimsa

    News from Dysautonomia International

    This video by Dysautonomia International gives a basic overview of POTS (Postural Orthostatic Tachycardia Syndrome). The video is on Facebook but you don't have to have an account to view it. Patients with POTS or other types of Orthostatic Intolerance may not find much useful information here...
    • ahimsa
    • Thread
    • dysautonomia gi dysmotility mast cells orthostatic intolerance pots video webinar
    • Replies: 78
    • Forum: News from organisations
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