open letter

There's an open letter going to SOM about the blocking of people with ME & Long Covid. Anyone can sign it Form https://forms.gle/RnxxbCMJPKqPNrnF7 Details are on Kirstie Sivapalan twitter

https://www.meaction.net/2020/07/15/take-action-graded-exercise-harming-people-with-me-and-covid-long-haulers/

Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS' Brussels, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...

Following discussion on this thread I have now sent the following personal letter to Sonya Chowdhury, Chief Executive of the UK charity Action for ME about their current web page of advice about Graded exercise therapy. I will post any response I get on this thread.

http://www.virology.ws/2019/08/28/trial-by-error-an-open-letter-to-dr-godlee-about-bmjs-ethically-bankrupt-actions/

Trial By Error: The Open Letter to Netflix about Afflicted Blog post contains a short intro and the letter itself. David Tuller has added his name to the list of signatories.

http://www.virology.ws/2018/08/13/trial-by-error-open-letter-to-the-lancet-version-3-0/

https://mecentraal.wordpress.com/2018/07/17/open-letter-74-international-experts-urge-dutch-minister-of-health-to-make-substantial-long-term-investment-in-biomedical-research/

http://www.virology.ws/2018/07/10/trial-by-error-yet-another-appeal-to-the-lancet-with-more-on-board/ As many members will be aware, this forum is now a signatory to the letter, too.

"The Six Habits of Highly Respectful Physicians" by Michael W. Kahn New York Times, DEC. 1, 2008 Not "News", yet still deserves attention IMO.The author is one of the few psychiatrists who signed Vincent Racaniello's / David Tuller's Open letter to the Lancet*...

http://www.virology.ws/2018/06/19/trial-by-error-an-open-letter-to-the-lancet-two-years-on/

Now Is the Time for PM Trudeau to Wake up to This National Disgrace! We Need the Voice of All to Help Amplify This Message We need this video to be seen and shared widely by those with ME & those without. Tag Canadian media and reporters on social media. Post to their pages. Send a link via...

hi all, new blog post on the kafka pandemic. it is related to my 2016 open letter to francis collins. http://thekafkapandemic.blogspot.com/2018/04/nih-reply-to-my-open-letter-and-legal_24.html many nih employees will read it, so comments on the blog itself might be useful in getting across...

Came across this on Facebook and thought it was worth highlighting, not least for the attitudes it exposes towards ME patients within the NHS. http://www.sayer.abel.co.uk/MES-Nnye.html

This letter will be sent to Sir Andrew Dillon, chief executive of NICE, on Monday 16th January. This thread is locked so that any replies and subsequent communication can be shown here. There is a parallel thread, called "Proposed letter to NICE", where you can comment if you wish. Graham has...

We intend to send this letter to Sir Andrew Dillon (NICE) early in January. I don't know whether any of you would like to add your (real) names to it or not: although a clear and logical explanation should not need the added weight of extra names, I'm not convinced that many medical...

15 December 2017 To whom it may concern at TEDxBristol: As an ME patient, it was with great interest that I watched Professor Esther Crawley's TEDxBristol talk "Disrupting Your View of ME" on 2 November 2017. Unfortunately, the contents of that talk did not seem to comply with the standards...

by James C Coyne December 07, 2017 https://www.coyneoftherealm.com/blogs/news/coyne-of-the-realm-s-open-letter-to-the-national-health-and-research-medical-centre-nhmrc-of-australia