omf

  1. Yann04

    Best US Charities to Donate to?

    See Also: Which ME/CFS charity would you donate to right now for biomedical research? And: What are the best UK charities for ME? Following my receipt of a 50 USD charity gift card in a giveaway which only works with US Charities, I am left wondering what charity to spend it on. In the list of...
  2. Yann04

    Charity “Donation Matching”

    I’ve noticed some (especially US based) charities have fundraising times when they say your donations will be matched (2x, 3x etc.) such as the OMF and MEAction. I wonder a couple things about this: 1) Who is matching these donations? 2) If it says “matching upto 50k” and only 10k is donated...
  3. Dolphin

    Dianna Cowern, Physics Girl, fundraiser 2024 and other news

    Dianna Cowern @thephysicsgirl We are live-streaming a full day of Dianna’s life, sharing what it’s like for someone suffering from chronic fatigue. We will also be raising money for @OpenMedF to support research and clinical trials for #LongCovid and #MECFS Time: Saturday, July 6th 2024, from...
  4. J

    The itaconate shunt hypothesis

  5. L

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    Discussion moved from the OMF news thread. Trial details - mestinon and/or LDN https://www.omf.ngo/lift-trial/
  6. Sly Saint

    Protocol Genetic and Metabolic Markers of BH4 Deficiency in Long COVID - OMF

    The study expands on a previously-awarded proposal to thoroughly explore the underlying pathophysiology of post exertional malaise (PEM), the hallmark symptom of ME/CFS. LEAD INVESTIGATORS Laurel Crosby, PhD Ronald W. Davis, PhD...
  7. E

    $500 000 Gift to OMF - Chris Armstrong

    We are thrilled to share some exciting news with you! Thanks to the incredible generosity of the McCusker Charitable Foundation, and their commitment to advancing medical research, we are embarking on an unprecedented journey that promises to revolutionize the care of people with ME/CFS and Long...
  8. Simon M

    The nanoneedle salt stress test – too good a clue to leave abandoned on the lab bench?

    What can the salt stress test tell us about the biology of ME? The nanoneedle test itself has stalled, and only its inventor seems capable of taking it forward. However, perhaps more valuable than the nanoneedle diagnostic test are the biological changes induced by the salt stress test - and...
  9. Sly Saint

    Join the Research Momentum with OMF’s StudyME

    from email
  10. ahimsa

    OMF: Does ME/CFS Have a Biomolecular Signature? Research by Dr. Alain Moreau using Raman Spectroscopy

    This is an article from the Latest News section of Open Medicine Foundation, part of their #TripleGivingTuesday November fundraising campaign. Does ME/CFS Have a Biomolecular Signature? Raman Spectrometry Based Biomarker Discovery for Myalgic Encephalomyelitis (RASPBERRY-ME) ME/CFS is a...
  11. J

    OMF: Does ME/CFS Change Molecularly Throughout a Day? Jonas Bergquist & Christopher Armstrong's New Study 2022

    From news email Open Medicine Foundation As part of our annual Triple Giving November campaign, we are pleased to highlight an additional 2022 OMF supported research initiative. This study is in collaboration between Christopher W. Armstrong, PhD, Director of the Melbourne ME/CFS...
  12. cassava7

    Phenotypic characteristics of peripheral immune cells of ME/CFS via transmission electron microscopy: A pilot study, Jahanbani et al, 2022

    Fereshteh Jahanbani, Rajan D. Maynard, Justin Cyril Sing, Shaghayegh Jahanbani, John J. Perrino, Damek V. Spacek, Ronald W. Davis, Michael P. Snyder Received: January 17, 2022; Accepted: July 25, 2022; Published: August 9, 2022 — Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is...
  13. Arnie Pye

    Perspective: Drawing on Findings From Critical Illness to Explain ME/CFS, 2022, Stanculescu, Bergquist

    Not sure where this should be posted. Please move if necessary. Title of article : Perspective: Drawing on Findings From Critical Illness to Explain Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Link : https://www.frontiersin.org/articles/10.3389/fmed.2022.818728/full Date published : 8th...
  14. Wyva

    Benefit Concert For OH Singer To Feature Cold Play's Chris Martin

    More than 25 musicians from around the country will come together Friday, Jan. 7, 2022 to present "A Love Song for Hal," a live-streamed benefit concert that will raise money to support beloved Ohio musician, Hal Walker, in his battle with myalgic encephalomyelitis/chronic fatigue syndrome...
  15. MeSci

    Research charities' policies on funding research that uses animals

    I wanted to donate to research which does not use non-human animals, so emailed ME Research UK to ask whether they did. They replied with a link to this page (indirectly) https://www.meresearch.org.uk/wp-content/uploads/2021/07/Standard-Grant-Conditions-2021.pdf which says "ME Research UK will...
  16. Sly Saint

    A Comprehensive Examination of Severely Ill ME/CFS Patients, 2021, Chang et al

    Abstract One in four myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients are estimated to be severely affected by the disease, and these house-bound or bedbound patients are currently understudied. Here, we report a comprehensive examination of the symptoms and clinical...
  17. Noir

    Gamers for M.E. - Play video games and support OMF

    If your're a gamer and want to support Open Medicine Foundation, I've set up a charity donation campaign team at streamlabscharity.com called Gamers for M.E. 100% of the donations goes to Open Medicine Foundation. You'll find the campaign here...
  18. J

    What if they find a biomarker?

    I have a feeling that OMF might be closing in on a biomarker. But if there is a biomarker and it reflects something downstream, is it possible that the biomarker might not be useful in identifying treatments? Are there examples of other diseases where a biomarker was found, but it was not...
  19. mango

    The Puzzle Solver by Tracie White

    The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son by Tracie White. Alternative title in the UK: Waiting For Superman: One Family's Struggle to Survive - and Cure - Chronic Fatigue Syndrome (expected publication 4 February, 2021). This is a nonfiction book...
  20. D

    Open Medicine Foundation (OMF)

    Open Medicine Foundation Canada: https://www.omfcanada.ngo/?utm_source=email&utm_medium=news I donate to the OMF - can now receive a Canadian tax receipt ETA: It would be great to see some OMF funds going to Canadian ME researchers - there are collaborations, but I don't know if funds are...
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