nihr

Seen the following article recently shortly after a sibling participated in a similar study https://mecfsskeptic.com/psychosomatic-history-of-multiple-sclerosis/ this too though much older - https://forum.mssociety.org.uk/t/mi...research-at-the-heart-of-disability-cuts/9260 shocking and a...

Developing, optimising and implementing a blended digital self-management tReatmEnt for FatigUe in multiplE scLerosis (REFUEL-MS) https://fundingawards.nihr.ac.uk/award/NIHR203290 https://www.refuel-ms.com/ Chief Investigator(s): Professor Rona Moss-Morris Co-investigators Start Date...

A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.

Pre-print https://osf.io/tfbnd/ Vivian V. Altiery De Jesús (MBE)1 Nisreen Alwan (PhD) 2 3 4 Felicity Callard (PhD) 5 Zackary Berger ( M.D.) 6,7 1. University of Puerto Rico School of Medicine 2. School of Primary Care, Population Sciences and Medical Education, Faculty of Medicine, University...

Horrified that Crawley is co-author with Terence Stephenson on the CLoCk Study for kids with long COVID, meanwhile DECODE and many other biomedical studies get rejected...

Introduction The aim of the Health Technology Assessment (HTA) Programme is to ensure that high quality research information on the clinical effectiveness, cost-effectiveness and broader impact of healthcare treatments and tests are produced in the most efficient way for those who plan, provide...

I thought it could be of interest to some people here, though I only had a very quick look myself. 172 pages. https://www.journalslibrary.nihr.ac.uk/hta/hta25570#/full-report

Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and relatively common (1-2% of teenagers). We need to improve treatment but need a well developed Patient Reported Outcome Measure (PROM) to do this. Clinical...

How is the NIHR supporting patient and public involvement? NIHR has re-launched key resources and guidance that support patient and public involvement in health and social care research. The resources help patients and the public learn more about the benefits of involvement and how to get...

Persistent Physical Symptoms Research and Treatment Unit - Kings College London; South London and Maudsley NHS Trust for the rogues gallery of the 50 members of this team see https://www.kcl.ac.uk/research/persistent-physical-symptoms-research-and-treatment-unit-1

An ME/CFS workshop has been announced by the MRC and NIHR. https://mrc.ukri.org/funding/science-areas/population-systems-medicine/our-science-and-contacts-psmb/cfsme/#workshop Statement from Stephen Holgate on behalf of the CMRC Statement from CureME Biobank Team FAQ from the ME/CFS...

I was recently sent a free book from NIHR as a 'thank you' for the past work I had done for them as a patient rep. The book is entitled, 'Testing Treatments - Better Research for Better Healthcare' and is authored by Imogen Evans, Hazel Thornton, Iain Chalmers and Paul Glazziou. I haven't had...

I received an email today that the NIHR (England) is seeking new committee members. I haven't had a chance to read through the details so am unsure of who this may be relevant to, but more information can be found at the below links...

" Applications for all levels of Round 11 of the Fellowships Programme have now closed. Five levels of NIHR Fellowship awards were available: Doctoral, Post Doctoral, Transitional Research, Career Development and Senior Research...

I didn't know where to put this, but thought it of interest. From a Bristol Uni magazine in 2013 an article by Esther Crawley. http://www.bristol.ac.uk/media-library/sites/university/migrated/documents/nonesuch6.pdf (pages 15/16 on pdf, 29/30 in mag) Her mission: "‘The aim of my fellowship is...