name

I created a petition to demand the renaming of Chronic Fatigue Syndrome, since it's associated with so much neglect and gaslighting. I will be bringing this petition to the attention of our advocacy leaders. If you agree, please sign the petition to help support this change. There is more...

https://www.qeios.com/read/NXCXM1 Qeios Abstract The concept of ME/CFS (notionally standing for myalgic encephalomyelitis/chronic fatigue syndrome) has evolved over the last twenty years. This review compares it with the historical terms chronic fatigue syndrome, myalgic encephalomyelitis, and...

As the title suggests I’m looking for resources on why the Name “CFS” is problematic and “ME” or “ME/CFS” is recommended. Specifically I’m in contact with multiple people and communities that use the terminology “CFS” or “CFS/ME” and I would like to share with them a convincing document or...

Date & Time : Fri, Jun 16 5:00 PM - 7:00 PM **Events may have been canceled or postponed. Please contact the venue to confirm the event. https://www.independent.com/events/movie-screening-movie-about-m-e-long-covid-event/

This thread segued into the perennial discussion of naming this illness. I’m interested in what would be the necessary conditions for a name change to gain acceptance, whether the preferred option was SEID, Ramsey’s, a Shepherdesque acronym-preserving tweak, or in some future utopia a label...

Abstract There have been numerous iterations of naming convention specified for Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). As health care turns to “big data” analytics to gain insights, the Google Trends database was mined to ascertain worldwide trends of public interest...

I've recently come across the problem of a name for ME/CFS in the Maori language seemingly being created by a translator to be the equivalent of 'chronic fatigue' but using an uncommon word for 'chronic' that can also mean loitering and shirking. (discussed here News from Aotearoa/New Zealand...

The Why: The Historic ME/CFS Call To Arms Paperback – April 26, 2022 by Hillary J Johnson (Author) If you have acquired Myalgic Encephalomyelitis (a.k.a. “chronic fatigue syndrome”) in recent years, you may have wondered why the U.S. government has done so little to promote research or...

Abstract In 2015, the American Institute of Medicine, now called the National Academy of Medicine, (IOM/NAM) proposed new diagnostic criteria for both Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and a new label: Systemic Exertion Intolerance Disease (SEID). This study aimed to...

I don't think this has been posted before The power of power, narrated, and naming things that are so numerous we know longer see them. The Journal of Cognitive Analytic Therapy, Summer 2020 https://indd.adobe.com/view/609fdba1-b9d8-4220-b877-1824b6b75f0a Open on double page spread 18 of 30...

Abstract There are many words for what physicians commonly refer to as Somatoform Disorder. However, none is particularly patient-centered; to greater or lesser extent, they are all framed by medical jargon. Based on his experience as a seasoned clinician, the author suggests family physicians...

https://www.meaction.net/2021/08/23/meaction-6-me-orgs-call-for-cdc-to-change-how-it-tracks-me-cfs/

Abstract Medically unexplained symptoms (MUS) are persistent bodily symptoms without known pathology. An unofficial term has recently emerged in Taiwan to accommodate MUS: autonomic imbalance (AI). AI literally refers to disturbances of the autonomic nervous system (ANS) that innervates vital...

This post and several following have been moved from several threads. Edited to insert: This thread is monitoring the progress and outcome of the following: 1 Requests for creating new SNOMED CT Concepts codes for "Post COVID-19 syndrome"; "Long Covid"; Sequelae and late effects of...

Found by @DigitalDrifter who asked me to post it. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5401495/?page=1 Journal of the Royal College of Physicians, London, Nov-Dec 1996 Chronic Fatigue Syndrome Summary of a Report of a Joint Committee of the Royal Colleges of Physicians, Psychiatrists...

https://threadreaderapp.com/thread/1272740501968449536.html

https://www.tandfonline.com/doi/full/10.1080/21641846.2020.1757809

ME/SEID would be definitionally appropriate on literal terminological grounds, if associated with superior diagnostic criteria, such as the CCC or ICC. This would appear to be an improvement vs stigma, accurate understanding etc. for NICE purposes and actually offer a solid measure to adopt...

This post and the following ones have been moved from this thread. https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/improving-access-to-psychological-therapies-data-set/submit-data-to-the-iapt-data-set-v2.0---from-1-april-2020 Submitting IAPT v2.0 data...