This seems like a positive development (apologies if this has already been posted, I did look but couldn't find it anywhere).
https://www.actionforme.org.uk/get-support-now/our-healthcare-services/healthcare-services-for-me/
Moved post
Treatment and rehabilitation of adolescents and children with complex conditions service (TRACCS)
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Treatment and rehabilitation of adolescents and children with complex conditions service (TRACCS)
Living...
Moved from the News from Scandinavia thread
(This isn't news, but I wasn't sure where else to put it. Sorry. Felt important to document.)
This is from a post by Dr Björn Bragée of Bragée ME-center in Stockholm, Sweden. It was published in March 2021, in a public Facebook group on precision...
Masano Health AB is a privately owned digital rehab company in Sweden. It's a quite new company, started in November-December 2020 according to information on their website.
They updated their website yesterday to add information about their digital rehab for ME/CFS...
came across this from Jan 2022
Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (or encephalopathy) (ME) Service
A Prior Information Notice
by NHS HAMPSHIRE, SOUTHAMPTON AND ISLE OF WIGHT CCG
type
Contract (Services)
Duration
4 year
Value
£1M...
Moved posts
ME Association - "Bedfordshire Chronic Fatigue Service and the new NICE guideline – feedback required"
https://meassociation.org.uk/2021/11/bedfordshire-chronic-fatigue-service-and-the-new-nice-guideline-feedback-required/
Reporting about this sly bit of rebranding...
NHS South Tyneside and Sunderland
the website does not appear to have been updated at all:
still links to the 2007 guideline and
https://www.stsft.nhs.uk/services/chronic-fatigue-syndrome
Humber teaching hospital
service is under Adult Mental Health Services
Chronic Fatigue Syndrome Service (CFS)
The Team provides a multi-disciplinary service for adult patients with a diagnosis of Chronic Fatigue Syndrome (CFS).
No mention of ME anywhere, nor the NICE guidelines...
Royal Free Hospital
https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/chronic-fatigue-syndrome-treatment/
recommended reading still
Fatigue
Overcoming chronic fatigue: a self-help guide using cognitive behavioural techniques (Mary Burgess and Trudie Chalder)
Coping better...
Copied post. This thread has been created to discuss the Nottingham service and their online materials.
There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work.
Do we have a thread here where we have discussed the...
@Tom Kindlon posted a link to the following on fb (sorry but I've l lost without trace Tom's original fb post), but thought I'd capture this here, seeing as the Royal Liverpool have been deleting comments people made. Captured this too late for those deleted comments, but in case any more get...
"The Physical Health Psychology team offer a range of services across Cumbria and North Lancashire to help you to manage your physical symptoms and live a happier, healthier life.
We are a team of Healthcare Professionals made up of Psychological Practitioners, CBT Therapists, Occupational...
The NUT Hospital Trust operates a 'Chronic Fatigue Syndrome (CFS/ME) therapy psychology service' to assess and treat 'patients with CFS/ME'.
Their services are described as
"Our team provides individualised care for patients to:
Sustain or gradually extend their physical, emotional and mental...
This thread has been created by merging several threads on social prescribing
BBC News: More 'social prescribers' to ease pressure on GPs. 28.01.19
https://www.bbc.co.uk/news/health-46999922
alternative therapy
bbc
bps
ccg
gps
health inequality
helen stokes-lampard
me/cfsme/cfsservice
nhs
primary care
social prescribing
united kingdom
vcs
volunteer
Abstract
Background and Objective: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a severe illness with the hallmark symptom of Post-Exertional Malaise (PEM). Currently, no biomarkers or established diagnostic tests for ME/CFS exist. In Germany, it is estimated that over 300,000...
Abstract
Background
NHS specialist chronic fatigue syndrome (CFS/ME) services in England treat approximately 8000 adult patients each year. Variation in therapy programmes and treatment outcomes across services has not been described.
Methods
We described treatments provided by 11 CFS/ME...
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