me/cfs service

Due in the Journal of the Royal Society of Medicine https://kclpure.kcl.ac.uk/portal/files/132955332/pdf_proof_re_submit.pdf https://kclpure.kcl.ac.uk/portal/en/publications/cognitive-behavioural-therapy-for-chronic-fatigue-and-cfs(67b43c92-f30b-4e21-a7b6-1b94e2ead525).html

Persistent Physical Symptoms Research and Treatment Unit - Kings College London; South London and Maudsley NHS Trust for the rogues gallery of the 50 members of this team see https://www.kcl.ac.uk/research/persistent-physical-symptoms-research-and-treatment-unit-1

Your experience of ME services - Survey report by #MEAction UK Article: https://www.meaction.net/2019/10/17/me-services-in-the-uk-not-fit-for-purpose/ Full report: https://www.meaction.net/wp-content/uploads/2019/10/Your-experience-of-ME-services-Survey-report-by-MEAction-UK.pdf Results...

This thread has been formed by merging several threads This discussion has been split from this thread Edit November 2024, this thread has been renamed to reflect changes in areas served. UK campaign for better ME services in Suffolk and Norfolk Exactly DT, in 2009, we convincingly proved...

Moderator note This post has been copied from this thread and subsequent posts moved across. I think it was the BACME response to NICE that said only 8,000 ME patients use the NHS clinics. That's only 3.2% of the estimated 250,000 ME patients nationwide (or 6.4% if the number was actually only...

Don't think that this has been posted before - I just found it while looking for something else: https://www.kingshealthpartners.org/assets/000/001/145/KHPJ5100_Psych_Med_Booklet_280317_WEB_Complete_original.pdf?1491471608 There are bits and pieces in the intro, eg: Oh dear... you've got two...

(Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United Kingdom generally. If you have comments about specific services, please post on the relevant service thread (listed below or make a new thread). We...

This came up on Twitter, and although it mostly relates to diabetes, I thought a process like this could perhaps be useful for ME patients. PROVIDED - OF COURSE - THE CARE WAS NOT BASED ON PACE-STYLE CBT/GET...

Having read the drivel that is BACME's guidance on Therapy and Symptom Management in ME, the document that AfME seems to be pointing to as best practice, I'm wondering if we have been clear enough about what care we actually do want. There seems to be an awful lot of effort and money spent on...

I saw this on the Medscape website today. I think it's just a summary of recent changes posted on CDC website but I'm not sure. Full article (may require Medscape registration/login) - https://reference.medscape.com/viewarticle/900291_5

Source: Archives of Disease in Childhood Vol 103, Suppl 1, G18 Date: March 2018 URL: http://adc.bmj.com/content/103/Suppl_1/A7.2 Our chronic fatigue syndrome/encephalomyelitis service is nice, but is it patient friendly? experience of going beyond audit...

https://www.elft.nhs.uk/service/308/Chronic-Fatigue-Service So what happened shortly before December 2016?

https://www.careopinion.org.uk/opinions/422141