me/cfs

*This post is in the process of being updated. People have given me feedback that sharing the Bluesky/Twitter threads is not a preferred/accessible option, so I will be taking the time to try to convey the relevant information here (it will likely have to be spread across multiple threads...

Question: has anyone made an overview of publicly available dataset on ME/CFS? For example a list with links to papers or repositories where the ME/CFS dataset is available and can be downloaded by anyone, perhaps classified by topics such as immunology, metabolomics ..., etc.?

Beneficial effects of intermittent intravenous saline infusion in dysautonomic patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: a caseseries Per Sjogren, Helena Huhmar, Bo Christer Bertilson, Björn A Bragée, Olli Polo [Line breaks added] Purpose Myalgic...

What Doesn't Kill You Lives in the grip of ME/CFS ✓ Coming in 2025 ✓ 100% of profit reinvested in ME/CFS research and education "What Doesn't Kill You" is a forthcoming documentary exploring the lives of people battling ME/CFS, a scandalously underfunded and chronically ignored disease...

Multifaceted evolution focused on maximal exploitation of domain knowledge for the consensus inference of Gene Regulatory Networks Adrián Segura-Ortiz, Karen Giménez-Orenga, José García-Nieto, Elisa Oltra, José F. Aldana-Montes [Line breaks added] Highlights • BIO-INSIGHT optimizes GRN...

Affective and chronic fatigue symptoms are associated with serum neuronal damage markers in Parkinson’s disease Hussein Kadhem Al-Hakeim, Hayder Naji Khudhair, Sayed-Omid Ranaei-Siadat, Fataneh Fatemi, Fateme Mirzajani , Mengqi Niu & Michael Maes [Line breaks added] Abstract Parkinson’s...

Abstract: Background Sphingomyelin phosphodiesterase acid-like 3B (SMPDL3B) is emerging as a potential biomarker and therapeutic target in myalgic encephalomyelitis (ME), a complex multisystem disorder characterized by immune dysfunction, metabolic disturbances, and persistent fatigue. This...

Received via email about a new book download with a link to an online 3 day event on 17-19, July 2025. Sharing only so people know what so called experts are presenting as fact. Email Contents ME/CFS affects 2.5 million Americans, yet 90% remain undiagnosed. For decades, patients have searched...

Abstract While post-infectious (PI-ME/CFS) and gradual onset (GO-ME/CFS) myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) manifest similar symptoms, it has long been suspected that different disease processes underlie them. However, the lack of biological evidence has left this...

Reaction time deficits in a 3D virtual reality test in patients with ME/CFS Anja-Maria Ladek; Marianna Lucio; Christian Y Mardin; Bettina Hohberger [Line breaks added] Purpose Chronic Fatigue Syndrome (ME/CFS) is a debilitating post-infectious disorder affecting approximately 140,000–310,000...

Abstract: Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post-Acute Sequelae of COVID-19 (PASC) often have neurocognitive complaints that involve memory and concentration problems and difficulties paying attention. Other neurocognitive domains such as...

https://www.preprints.org/manuscript/202507.0058/v1 Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating, multi-system disease characterized by profound fatigue, post-exertional malaise (PEM), and a constellation of immune, neurological, and autonomic symptoms...

https://www.sciencedirect.com/science/article/abs/pii/S1542012425000850 The Ocular Surface Volume 38, October 2025, Pages 64-71 Heightened visual light sensitivity discomfort measured by the ocular photosensitivity analyzer is associated with chronic ocular pain Ema V. Karakoleva a b c...

Full title: Immune Signatures in Post-Acute Sequelae of COVID-19 (PASC) and Myalgia/Chronic Fatigue Syndrome (ME/CFS): Insights from the Fecal Microbiome and Serum Cytokine Profiles Abstract While there are many postulates for the etiology of post-viral chronic fatigue and other...

https://www.preprints.org/manuscript/202506.2016/v1 Abstract Fatigue is the most common symptom of Long-COVID (LC), characterized by persistent or new symptoms occurring at least three months after the initial SARS-CoV-2 infection, with no other identifiable cause. This study aims to assess the...

Causal Relationship Between Diet, Lipids, Immune Cells, and Chronic Fatigue Syndrome: A Two-Mediation Mendelian Randomization Study Jixu Li, Qi Qin, Yiran Zhu, Yulu Qian, Jialu Yin, Xin Gao, Huijuan Wen, Pei Wang [Line breaks added] Abstract Chronic fatigue syndrome (CFS) is a disorder...

2011 study Authors Garcia L, Kerr J, Fletcher MA, Sol C, Klimas N. Institution University of Miami Miller School of Medicine and Miami VA Medical Center, Miami, Florida, USA, and St George’s University of London, London, UK ]Funding The study was funded by a research grant ME Research UK...

Abstract: Background/Objectives: The aetiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic and severe debilitating disease with a complex phenotype, remains elusive. Associations with infectious diseases and autoimmune and neuropsychiatric disorders have been...

Investigating liminality in the lived experiences of young adults with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Toller, L University of Exeter PhD in Sociology [Line breaks added] Abstract This study investigates the lived experiences of young adults (aged 18-25) with...

The pivotal role of central sensitization in long COVID, fibromyalgia and myalgic encephalomyelitis/chronic fatigue syndrome Don L. Goldenberg Introduction Long COVID is a condition characterized by persistent unexplained symptoms following COVID-19 infection. These symptoms are not related to...