me association

https://meassociation.org.uk/2024/08/vumedi-dr-shepherd-talks-about-the-overlaps-between-long-covid-and-me-cfs-in-a-video-aimed-at-healthcare-professionals/ VuMedi (where the video features) describes the platform as “a video education platform for doctors. Over 450,000 doctors use VuMedi to...

ME Association: NHS England Launches New E-learning Module on ME/CFS! Forward-ME were offered two places at last week's British Association of Clinicians in ME/CFS (BACME) conference and Russell Fleming from the ME Association was able to attend. At the conference, and as part of the Delivery...

Moderator note: This post and the next two have been copied, and subsequent posts moved from this thread: JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff Posts about sex ratio have been moved to a new thread: ME/CFS Epidemiology - sex...

In 2023 the UK ME Association announced it was funding a project, currently ongoing, which is developing Patient Reported Outcome Measures (PROMs), announced here: ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services. The project is led by...

Wasn't sure where to put this but I wanted to note the following: It's not known whether or when the ME Association plans to update its Articles of Association to reflect a change in its objectives...

2021 Appointment of Professor Leslie Findley to be patron of the MEA - starts in this post, notice of his withdrawal here 2024 AGM, company documents, trustees, historic governance issues discussion starts here ********* This post copied and many subsequent posts moved from United Kingdom: ME...

"The ME Association is the only M.E. charity involved in the collection of post mortem tissue samples from people diagnosed with the disease in the UK. Our long-term aim is to establish a national ME/CFS Post Mortem Tissue Bank where greater numbers of samples can be collected and stored for...

2020 Christmas Appeal 'Call in the cavalry! Help us get out the correct news about graded exercise and CBT' https://meassociation.org.uk/2020/12/its-giving-tuesday-welcome-to-the-start-of-our-big-give-christmas-challenge/ This 'big giving' part of the appeal is live 1st - 8th December. The...

'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for them and what don’t are available for downloading. The link to the PDF is at the bottom of this story. The survey also shows what people with the...

The ME Association has just published it's latest guide. https://meassociation.org.uk/2020/08/now-available-the-2020-me-association-me-cfs-pvfs-clinical-and-research-guide/

I saw that Kingston CCG had tweeted that they would ensure all GP Practices have a copy of the MEA Purple Book, following this recommendation by the Richmond and Kingston ME Group. So I replied asking if they would encourage Wandsworth CCG to do the same. I got a positive Twitter reply from...

Morning all. Series two of The ME Show has just gone live. You can listen online at www.meassociation.org.uk/themeshow Or you can subscribe, rate and review in iTunes at https://itunes.apple.com/gb/podcast/the-me-show/id1374903449?mt=2&i=1000428583066 I hope you find the series...

Full question: Do you have a healthcare plan that is consulted, adhered to and kept up to date every time you see a healthcare professional? Available answer options: Yes - fully in place from a GP Yes - partly in place from a GP Yes - fully in place from hospital ME/CFS service Yes - partly...

I'm sure the MEA would claim that they are being a neutral broker of information that PwME might find interesting but personally I'm disappointed that they continue to aid a group that, to my knowledge, still supports PACE and has close ties to BACME.

http://www.meassociation.org.uk/2018/06/the-me-association-to-fund-six-student-bursaries-for-2018-cmrc-research-conference-19-june-2018/

Click http://www.meassociation.org.uk/ to take part, survey is in the centre panel of their homepage, scroll towards the bottom of the page to find it.

"Your schedule for another packed day of ME Awareness The main event: 7.00am Newsbeat Documentary 'M.E. and me' on BBC iPlayer (and hopefully YouTube) presented by Emma Donohoe. 8.10am BBC1 Breakfast Show Dr Eliana Lacerda a researcher from the M.E. Biobank and Emma Donohoe on the 'red sofa'...

Their poll is on pain management. It can be found on their homepage here, http://www.meassociation.org.uk/, middle column, towards the bottom of the page.

To go straight to the survey, it's on the MEA home page, http://www.meassociation.org.uk/, towards the bottom of the page, middle column. Options are: UK M.E. Biobank Role of infection Immune system dysfunction Mitochondrial function Neurological involvement e.g. inflammation, PoTS, and...