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Open ME Association: The UK ME/CFS Post Mortem Tissue Bank and Tissue Donation

Discussion in 'Recruitment into current ME/CFS research studies' started by Andy, Jul 27, 2021.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
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    Location:
    Hampshire, UK
    "The ME Association is the only M.E. charity involved in the collection of post mortem tissue samples from people diagnosed with the disease in the UK.

    Our long-term aim is to establish a national ME/CFS Post Mortem Tissue Bank where greater numbers of samples can be collected and stored for vital research.

    ....

    Current situation

    Plans to set up a formal ‘bricks and mortar’ post mortem facility are currently on hold. This is due to the enormous cost such a project would incur and the continuing cost of launching and maintaining the UK ME/CFS Biobank.

    In the meantime, we are continuing to work with a consultant neuropathologist at Addenbrooke’s Hospital in Cambridge in arranging post mortems on an individual basis when we are notified that someone has died and the person has made it clear that they want to donate their body to ME/CFS research"

    https://meassociation.org.uk/research/research-projects/post-mortem-tissue-bank/
     
    ahimsa, MEMarge, Louie41 and 16 others like this.
  2. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    14,360
    Location:
    Hampshire, UK
    I was reminded of this today, and as I couldn't find a thread for it, here is a thread for it. We do though have this pre-existing Members-only discussion thread on the general subject, Post mortem tissue donation and autopsies.
     

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