mcas

Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals. The former will eventually be packaged into handouts patients can give their surgeon...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5943358/ PDF:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5943358/pdf/41398_2018_Article_143.pdf ETA by admin. Replaced the text in the quote, which was hard to read due to PDF formatting, with the same text from the webpage version, no other...

Abstract A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...

Not sure this is the best place for this? I leave it for the Moderators to decide and move if necessary. An article in The Guardian today from a woman with MCAS. The comments BTL (beneath the line) are worth looking at too - very sympathetic compared to ones under articles about ME...

Miriam Tucker: Mast Cell Activation May Underlie CFS "ME/CFS is a descriptive diagnosis of a bunch of symptoms, but it says nothing about what's causing the symptoms, which is probably part of the reason it's so hard for it to get recognition. So, the question becomes, What other pathology is...

this might be slightly incoherent or too long due to brain not working. i have lung issues.(*) my doctor's initial idea was 7 days of prednisone to calm lungs down, plus an adrenaline inhaler. i was a little concerned, but only on the basis of anecdotal reports and general caution. for...