mcas

  1. Yann04

    Review Diagnosis, Classification and Management of Mast Cell Activation Syndromes (MCAS) in the Era of Personalized Medicine, 2020, Valent et al

    Abstract: Mast cell activation (MCA) is seen in a variety of clinical contexts and pathologies, including IgE-dependent allergic inflammation, other immunologic and inflammatory reactions, primary mast cell (MC) disorders, and hereditary alpha tryptasemia (HAT). MCA-related symptoms range from...
  2. Dolphin

    Idiopathic mast cell activation syndrome is more often suspected than diagnosed—A prospective real-life study, 2023, Buttgereit et al.

    Free fulltext: https://onlinelibrary.wiley.com/doi/full/10.1111/all.15304 Idiopathic mast cell activation syndrome is more often suspected than diagnosed—A prospective real-life study Thomas Buttgereit, Sophie Gu, Leonor Carneiro-Leão, Annika Gutsche, Marcus Maurer, Frank Siebenhaar First...
  3. Sly Saint

    Hypothesis [ME/CFS] and Comorbidities: Linked by Vascular Pathomechanisms and Vasoactive Mediators? 2023, Wirth and Löhn

    Wirth and Lohn Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often associated with various other syndromes or conditions including mast cell activation (MCA), dysmenorrhea and endometriosis, postural tachycardia (POTS) and small fiber neuropathy (SFN). The causes of...
  4. P

    Antihistamines

    U.K. Where to buy pepcid/famotidine Hi all, we want to try famotidine as a treatment for Long Covid but I have discovered that Boots does not stock it, yet it seems to be an OTC medication in the UK (sold as Pepcid). Does anyone know where to buy it? Thank you
  5. Andy

    Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association, 2021, Kohno et al

    Abstract Background Recently there has been increased interest in a possible association between mast cell activation (MCA) disorder and postural orthostatic tachycardia syndrome (POTS). This study examined the frequency with which symptoms and laboratory findings suggesting MCA disorder...
  6. Wyva

    Long‐COVID syndrome‐associated brain fog and chemofog: Luteolin to the rescue, 2021, Theoharides et al

    Abstract COVID‐19 leads to severe respiratory problems, but also to long‐COVID syndrome associated primarily with cognitive dysfunction and fatigue. Long‐COVID syndrome symptoms, especially brain fog, are similar to those experienced by patients undertaking or following chemotherapy for cancer...
  7. InfiniteRubix

    Local immune response to food antigens drives meal-induced abdominal pain, 2021, Aguilera-Lizarraga et al

    Local immune response to food antigens drives meal-induced abdominal pain https://www.nature.com/articles/s41586-020-03118-2
  8. Dakota15

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    This thread has been split from Concerns about craniocervical instability surgery in ME/CFS ....I know you have a lot of pull on here @Jonathan Edwards, but I didn't know you didn't believe in MCAS being a real diagnosis. As I live in the States, I have to say that there seem to be a lot of...
  9. Dolphin

    Diagnosis of mast cell activation syndrome: a global “consensus-2”, 2020, Afrin et al

    Free full text: https://www.degruyter.com/view/journals/dx/ahead-of-print/article-10.1515-dx-2020-0005/article-10.1515-dx-2020-0005.xml
  10. Dolphin

    First Irish lecture on Mast Cell Activation Syndrome at NUI Maynooth 18th November 2019

    (I wasn't sure which forum to post this to). This is being promoted as being a relevance to people with ME. I haven't watched it and know very little if anything about this area.
  11. Liessa

    Video: Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders

    Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders First 20 minutes are an introduction and offsetting MCAS against mastocytosis. After that he focuses on the type of MCAS that overlaps with POTS and EDS, mentioning the following article: JJ Lyons et...
  12. J

    Treatment of ME patients in ERs and Hospitals

    Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals. The former will eventually be packaged into handouts patients can give their surgeon...
  13. P

    White matter abnormalities are also repeatedly present in patients with systemic mast cell activation syndrome (2018) Molderings et al

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5943358/ PDF:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5943358/pdf/41398_2018_Article_143.pdf ETA by admin. Replaced the text in the quote, which was hard to read due to PDF formatting, with the same text from the webpage version, no other...
  14. adreno

    Successful treatment of POTS and MCAS using LDN, immunoglobulin and antibiotics

    Abstract A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...
  15. ladycatlover

    Article on MCAS in The Guardian

    Not sure this is the best place for this? I leave it for the Moderators to decide and move if necessary. An article in The Guardian today from a woman with MCAS. The comments BTL (beneath the line) are worth looking at too - very sympathetic compared to ones under articles about ME...
  16. Samuel

    inhalers, nebulizers, prednisone, montelukast, tricky stuff, related stuff

    this might be slightly incoherent or too long due to brain not working. i have lung issues.(*) my doctor's initial idea was 7 days of prednisone to calm lungs down, plus an adrenaline inhaler. i was a little concerned, but only on the basis of anecdotal reports and general caution. for...
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