Abstract:
Mast cell activation (MCA) is seen in a variety of clinical contexts and pathologies, including IgE-dependent allergic inflammation, other immunologic and inflammatory reactions, primary mast cell (MC) disorders, and hereditary alpha tryptasemia (HAT). MCA-related symptoms range from...
Free fulltext:
https://onlinelibrary.wiley.com/doi/full/10.1111/all.15304
Idiopathic mast cell activation syndrome is more often suspected than diagnosed—A prospective real-life study
Thomas Buttgereit, Sophie Gu, Leonor Carneiro-Leão, Annika Gutsche, Marcus Maurer, Frank Siebenhaar
First...
Wirth and Lohn
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often associated with various other syndromes or conditions including mast cell activation (MCA), dysmenorrhea and endometriosis, postural tachycardia (POTS) and small fiber neuropathy (SFN). The causes of...
U.K. Where to buy pepcid/famotidine
Hi all, we want to try famotidine as a treatment for Long Covid but I have discovered that Boots does not stock it, yet it seems to be an OTC medication in the UK (sold as Pepcid). Does anyone know where to buy it? Thank you
Abstract
Background
Recently there has been increased interest in a possible association between mast cell activation (MCA) disorder and postural orthostatic tachycardia syndrome (POTS). This study examined the frequency with which symptoms and laboratory findings suggesting MCA disorder...
Abstract
COVID‐19 leads to severe respiratory problems, but also to long‐COVID syndrome associated primarily with cognitive dysfunction and fatigue. Long‐COVID syndrome symptoms, especially brain fog, are similar to those experienced by patients undertaking or following chemotherapy for cancer...
This thread has been split from
Concerns about craniocervical instability surgery in ME/CFS
....I know you have a lot of pull on here @Jonathan Edwards, but I didn't know you didn't believe in MCAS being a real diagnosis. As I live in the States, I have to say that there seem to be a lot of...
(I wasn't sure which forum to post this to). This is being promoted as being a relevance to people with ME. I haven't watched it and know very little if anything about this area.
Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders
First 20 minutes are an introduction and offsetting MCAS against mastocytosis. After that he focuses on the type of MCAS that overlaps with POTS and EDS, mentioning the following article:
JJ Lyons et...
Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals.
The former will eventually be packaged into handouts patients can give their surgeon...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5943358/
PDF:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5943358/pdf/41398_2018_Article_143.pdf
ETA by admin. Replaced the text in the quote, which was hard to read due to PDF formatting, with the same text from the webpage version, no other...
Abstract
A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...
Not sure this is the best place for this? I leave it for the Moderators to decide and move if necessary.
An article in The Guardian today from a woman with MCAS. The comments BTL (beneath the line) are worth looking at too - very sympathetic compared to ones under articles about ME...
this might be slightly incoherent or too long due to brain
not working.
i have lung issues.(*)
my doctor's initial idea was 7 days of prednisone to calm
lungs down, plus an adrenaline inhaler.
i was a little concerned, but only on the basis of anecdotal
reports and general caution. for...
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