This thread has been split from
https://www.s4me.info/threads/jk-rowling-donates-£15-3m-to-edinburgh-ms-research-centre.11260/
And as I've said in another thread, since 2004, the MEA has been run by a small and relatively unchanging Board of Trustees who determine its policies and have...
It'd be great if ME/CFS research funds could be set up in more countries, either as part of existing groups, stand-alone or affiliates of other charities
As I have argued before, research progress is most likely if all of the following are contributing significant funds to research:
(i)...
Hopefully this hasn't already been linked to, ME Research UK are asking for votes to secure a research donation [ETA: actually it's a £10k donation from MultiLotto]:
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Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK
The MRC do not work like the American NIH. The NIH earmark a certain amount of money for each category of "illness"...
please can people comment on the reasons why if they wish
I’m trying to see what the views are and why on this matter
Basically the MRC are in talks with the CMRC over a funding proposal for extending the uk biobank and doing genetics research (this is taking a long time ) and have an...
Moderator note: This post and subsequent discussion have been moved from this thread:
May 2019 - Awareness Week including Millions Missing
Were any U.K. “protests” visibly demanding research funds from our state funders? I’ve watched a few videos where the “general picture” or life stories etc...
The Norwegian ME Association donated on May 12th funds for two research projects.
One of the research projects is by Fluge, Mella and their team. They want to try and find more objective ways to measure changes in patients enrolled in clinical trials by continuous measurement of physical...
Dear friends and family members. Research is moving forward in the field of ME/CFS and although much has been accomplished, it is only a fragment of what can be achieved. Many of us are eager to know more. Therefore, acceleration of researches is vital. Now, financing studies and researches...
Merged threads
"The charity, reMEmber, for people with ME (Chronic Fatigue Syndrome), has been awarded the grant by the Sussex Community Foundation for its Clinical Network and Children’s Service Project."...
Has anyone done a breakdown of funding between the two camps?
Ideally I'd like something for UK, and global:
BPS research $ per year, biomedical $ per year.
Clearly there would be some room for argument - for example a biomarker paper that mentions CBT as useful.
I feel a useful argument to...
I received an email today that the NIHR (England) is seeking new committee members. I haven't had a chance to read through the details so am unsure of who this may be relevant to, but more information can be found at the below links...
This is for the UK but somebody could post information from the US or elsewhere if they were so inclined.
I'm not going to look through the list at this time...
https://www.vox.com/future-perfect/2019/1/18/18183939/science-funding-grant-lotteries-research
Excerpt:
Our current grant review process doesn’t select the best proposals, by a long shot. One study found very little correlation between how a grant was scored and whether the research it produced...
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