emerge

https://www.emerge.org.au/get-involved-in-research/ Have you been diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or orthostatic intolerance? Researchers at the Baker Heart and Diabetes Institute (Melbourne, Victoria) request your contribution to research that hopes...

[I wasn't sure which forum to post this in] EMERGE Australia Recovery Position Statement https://www.emerge.org.au/recovery-position-statement/ Start of pdf: Statement The general consensus is that full recovery from ME/CFS is not common. However, the research into recovery is plagued by...

"Caring for people with ME/CFS who are bedbound" (2023) 8-page fact sheet from Emerge Australia https://emerge.org.au/wp-content/uploads/2023/04/caringforpeoplewithmecfswhoarebedbound.pdf

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https://www.emerge.org.au/online-community

https://www.emerge.org.au/health-and-wellbeing-survey-2019

Posted by Emerge Australia Apr 2019 Daniel Missailidis & Amber Jaa-Kwee - La Trobe University, Victoria University, Australia transcript here: https://mecfsconference.org.au/wp-content/uploads/2019/04/Day1Report.pdf eta: video has english subtitles eta2: Daniel Missailidis paper here...

https://emerge.org.au/medical-research-future-fund-win-for-emerge-australia-epidemiology-and-health-economic-impacts-of-me-cfs/#.XYxesKjYo3E

Warnings that the Australian CFS guidelines were 'biased, out-of-touch and potentially harmful' were ignored. Thousands are receiving harmful medical treatment and denied disability support due to failure to update them back in 2012. Back in the 90s, the government saw a need for guidelines...

Another one from the symposium that I found interesting - https://mecfsconference.org.au/videos/paulfisher/ Final slide to give an idea of the contents of the presentation.

We met with senior executives from the National Disability Insurance Agency, who administer the NDIS. Here’s what happened in the meeting: https://meaustralia.net/2019/03/30/disability-agency-consults-on-me-and-cfs/

Post on Facebook from Emerge. https://www.facebook.com/EmergeAustraliaInc/videos/10156541270639111/

Emerge Australia is hosting an international research symposium, 12-15 March 2019, in Melbourne, Australia. This symposium, “ME/CFS: The biological basis, diagnosis, treatment and management” is supported by funding from the Department of Health. Key speakers include Dr. Neil McGregor, Professor...

Emerge Australia CEO, Heidi Nicholl, and Sydney patient, Jade Barclay, appeared on the Today show on Channel 9 in Australia this morning. The segment runs for just over 10 mins. (Sorry, I can’t figure out how to embed the clip. Feel free to let me know if you do!)...

Emerge Australia conducted a health and welfare survey of 600 Australians with ME/CFS, and has released a 77 page report of the findings. The survey covers a range of topics, including time to diagnosis, key symptoms experienced, treatments which were useful. Link to report...

There are three posts on Emerges FB in reverse order. This is the correct order: Video 1 Video 2 Video 3 note: you might need to turn the sound on. hope this works, if not FB page is here https://www.facebook.com/EmergeAustraliaInc/

Emerge has just posted this on FB. "SBS is looking for people to go on camera who are severely affected with ME/CFS and have had difficulties with the NDIS. The Feed, a daily news and current affairs program on SBS Viceland, is making a 10-15 documentary about the latest research around ME/CFS...