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ehlers-danlos syndrome

  1. Hoopoe
    Thread

    Heterozygous THBS2 pathogenic variant causes Ehlers–Danlos syndrome with prominent vascular features in humans and mice 2024 Hadar et al

    A new type of Ehlers-Danlos syndrome with vascular features has been discovered. https://www.nature.com/articles/s41431-024-01559-1
    Thread by: Hoopoe, Apr 6, 2024, 1 replies, in forum: Other health news and research
  2. SNT Gatchaman
    Thread

    Hemostatic abnormalities in patients with Ehlers–Danlos syndrome, 2018, Artoni et al.

    Hemostatic abnormalities in patients with Ehlers–Danlos syndrome A. Artoni; A. Bassotti; M. Abbattista; B. Marinelli; A. Lecchi; F. Gianniello; M....
    Thread by: SNT Gatchaman, Sep 6, 2023, 11 replies, in forum: 'Conditions related to ME/CFS' news and research
  3. SNT Gatchaman
    Thread

    Characterization of bleeding symptoms in Ehlers–Danlos syndrome, 2023, Kumskova et al.

    Characterization of bleeding symptoms in Ehlers–Danlos syndrome Mariia Kumskova; Gagan D. Flora; Janice Staber; Steven R. Lentz; Anil K. Chauhan...
    Thread by: SNT Gatchaman, Sep 6, 2023, 1 replies, in forum: 'Conditions related to ME/CFS' news and research
  4. SNT Gatchaman
    Thread

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO, 2021, Hakim et al.

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO Alan J. Hakim; Brad T. Tinkle;...
    Thread by: SNT Gatchaman, Apr 1, 2023, 2 replies, in forum: 'Conditions related to ME/CFS' news and research
  5. RedFox
    Thread

    Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes

    Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes...
    Thread by: RedFox, Feb 19, 2023, 7 replies, in forum: 'Conditions related to ME/CFS' news and research
  6. cassava7
    Thread

    The [ME/CFS] Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing..., 2021, van Campen et al

    The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during...
    Thread by: cassava7, Jun 19, 2021, 1 replies, in forum: ME/CFS research
  7. cassava7
    Thread

    CFS is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome, 2011, Castori et al.

    Castori M, Celletti C, Camerota F, Grammatico P. Chronic fatigue syndrome is commonly diagnosed in patients with Ehlers-Danlos syndrome...
    Thread by: cassava7, Aug 30, 2020, 7 replies, in forum: 'Conditions related to ME/CFS' news and research
  8. Hoopoe
    Thread

    Piezogenic papules in Ehlers-Danlos and ME/CFS?

    I saw this on twitter today. To my surprise I have of few these papules on each side. [MEDIA]
    Thread by: Hoopoe, Jul 24, 2019, 7 replies, in forum: General and other signs and symptoms
  9. MSEsperanza
    Thread

    Mast cell activation syndrome: Importance of consensus criteria and call for research (J Allerg Clin Immunol), Valent et al 2018

    Mast cell activation syndrome: Importance of consensus criteria and call for research, Valent, Peter et al. 2018, Journal of Allergy and Clinical...
    Thread by: MSEsperanza, Jun 18, 2019, 20 replies, in forum: Immune: Autoimmune and Mast Cell Disorders
  10. Andy
    Thread

    Video: Peter Rowe - Orthostatic Intolerance in EDS/HSD

    Peter Rowe discusses orthostatic intolerance in Ehlers-Danlos syndromes and Hyprmobility spectrum disorders, in a webinar from December 19, 2018....
    Thread by: Andy, Jan 4, 2019, 0 replies, in forum: Cardiovascular and exercise physiology (CPET)
  11. Andy
    Thread

    Theory article: Chronic Fatigue Syndrome: From Chronic Fatigue to More Specific Syndromes, 2018, Blitshteyn & Chopra

    Abstract In the last decade, a group of chronic disorders associated with fatigue (CDAF) emerged as the leading cause of chronic fatigue, chronic...
    Thread by: Andy, Oct 8, 2018, 5 replies, in forum: ME/CFS research
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