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ehlers-danlos syndrome

  1. forestglip
    Thread

    Review Ignored, Dismissed, and Minimized: Understanding the Harmful Consequences of Invalidation in Health Care [...], 2025, Bontempo et al

    Ignored, Dismissed, and Minimized: Understanding the Harmful Consequences of Invalidation in Health Care—A Systematic Meta-Synthesis of...
    Thread by: forestglip, May 1, 2025, 16 replies, in forum: ME/CFS research
  2. forestglip
    Thread

    Similar Ehlers–Danlos Syndrome Profiles Produced by Variants in Multiple Collagen Genes, 2025, Tonk et al

    Similar Ehlers–Danlos Syndrome Profiles Produced by Variants in Multiple Collagen Genes Sahil S Tonk, Golder N Wilson Background Despite...
    Thread by: forestglip, Feb 28, 2025, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  3. ME/CFS Skeptic
    Thread

    hEDS and hypermobility spectrum disorder - ME/CFS Skeptic

    A new blog post on the problems with hEDS and hypermobility spectrum disorder. https://mecfsskeptic.com/heds-and-hypermobility-spectrum-disorder/...
    Thread by: ME/CFS Skeptic, Oct 16, 2024, 13 replies, in forum: 'Conditions related to ME/CFS' news and research
  4. Hoopoe
    Thread

    Heterozygous THBS2 pathogenic variant causes Ehlers–Danlos syndrome with prominent vascular features in humans and mice 2024 Hadar et al

    A new type of Ehlers-Danlos syndrome with vascular features has been discovered. https://www.nature.com/articles/s41431-024-01559-1
    Thread by: Hoopoe, Apr 6, 2024, 1 replies, in forum: Other health news and research
  5. SNT Gatchaman
    Thread

    Hemostatic abnormalities in patients with Ehlers–Danlos syndrome, 2018, Artoni et al.

    Hemostatic abnormalities in patients with Ehlers–Danlos syndrome A. Artoni; A. Bassotti; M. Abbattista; B. Marinelli; A. Lecchi; F. Gianniello; M....
    Thread by: SNT Gatchaman, Sep 6, 2023, 11 replies, in forum: 'Conditions related to ME/CFS' news and research
  6. SNT Gatchaman
    Thread

    Characterization of bleeding symptoms in Ehlers–Danlos syndrome, 2023, Kumskova et al.

    Characterization of bleeding symptoms in Ehlers–Danlos syndrome Mariia Kumskova; Gagan D. Flora; Janice Staber; Steven R. Lentz; Anil K. Chauhan...
    Thread by: SNT Gatchaman, Sep 6, 2023, 1 replies, in forum: 'Conditions related to ME/CFS' news and research
  7. SNT Gatchaman
    Thread

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO, 2021, Hakim et al.

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO Alan J. Hakim; Brad T. Tinkle;...
    Thread by: SNT Gatchaman, Apr 1, 2023, 2 replies, in forum: 'Conditions related to ME/CFS' news and research
  8. RedFox
    Thread

    Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes

    Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes...
    Thread by: RedFox, Feb 19, 2023, 7 replies, in forum: 'Conditions related to ME/CFS' news and research
  9. cassava7
    Thread

    The [ME/CFS] Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing..., 2021, van Campen et al

    The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during...
    Thread by: cassava7, Jun 19, 2021, 1 replies, in forum: ME/CFS research
  10. cassava7
    Thread

    CFS is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome, 2011, Castori et al.

    Castori M, Celletti C, Camerota F, Grammatico P. Chronic fatigue syndrome is commonly diagnosed in patients with Ehlers-Danlos syndrome...
    Thread by: cassava7, Aug 30, 2020, 7 replies, in forum: 'Conditions related to ME/CFS' news and research
  11. Hoopoe
    Thread

    Piezogenic papules in Ehlers-Danlos and ME/CFS?

    I saw this on twitter today. To my surprise I have of few these papules on each side. [MEDIA]
    Thread by: Hoopoe, Jul 24, 2019, 7 replies, in forum: General and other signs and symptoms
  12. MSEsperanza
    Thread

    Mast cell activation syndrome: Importance of consensus criteria and call for research (J Allerg Clin Immunol), Valent et al 2018

    Mast cell activation syndrome: Importance of consensus criteria and call for research, Valent, Peter et al. 2018, Journal of Allergy and Clinical...
    Thread by: MSEsperanza, Jun 18, 2019, 20 replies, in forum: Immune: Autoimmune and Mast Cell Disorders
  13. Andy
    Thread

    Video: Peter Rowe - Orthostatic Intolerance in EDS/HSD

    Peter Rowe discusses orthostatic intolerance in Ehlers-Danlos syndromes and Hyprmobility spectrum disorders, in a webinar from December 19, 2018....
    Thread by: Andy, Jan 4, 2019, 0 replies, in forum: Cardiovascular and exercise physiology (CPET)
  14. Andy
    Thread

    Theory article: Chronic Fatigue Syndrome: From Chronic Fatigue to More Specific Syndromes, 2018, Blitshteyn & Chopra

    Abstract In the last decade, a group of chronic disorders associated with fatigue (CDAF) emerged as the leading cause of chronic fatigue, chronic...
    Thread by: Andy, Oct 8, 2018, 5 replies, in forum: ME/CFS research
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