disability

  1. C

    United Kingdom: MPs ask Coffey why she is hiding nine secret DWP reports

    A couple of months old but of relevance as Coffey is now the Secretary of State for Health and Social Care: "MPs have asked the work and pensions secretary to justify her refusal to release nine potentially embarrassing reports about her department’s work, at least four of which focus on...
  2. C

    Joseph Roundtree Foundation, From disability to destitution, 2022, Clark & Matejic

    Joseph Roundtree Foundation, "From disability to destitution", 2022, Tom Clark and Peter Matejic "The official story on poverty among disabled people is bad enough. But new JRF analysis reveals that when it comes to the real essentials of life, like heating and food, the problem is far worse...
  3. ahimsa

    USA: Airline Passengers with Disabilities Bill of Rights

    I'm not sure whether this document has any "teeth" (a way to enforce it) but I thought this might be helpful for disabled folks in the USA who are able to travel. The US Department of Transportation has just posted the first ever Airline Passengers with Disabilities Bill of Rights...
  4. hellytheelephant

    The Chronic Elephant blog by hellytheelephant

    'Looking Forward' to Another Year of ME.... This Chronic Elephant Blog is about how coping with the daunting prospect of another year of ME: https://thechronicelephant.blogspot.co.uk/2018/01/hippy-pants.html
  5. Andy

    UK: Call for action on ‘unique’ barriers facing people with energy-limiting impairments

    "A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every survey respondent (98 per cent) said that lack of understanding of ELC was a barrier to inclusion. The second biggest barrier revealed by the survey was...
  6. ahimsa

    USA: News from #MEAction

    This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December schedule for the Living w/ ME Support Group has just been announced: Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the...
  7. rvallee

    Current forms and checklists for disability

    I'm probably asking for something that already exists in a thread somewhere but can't find what I'm looking for and I can't figure out the terms to search for it. I'm trying to find current/recent forms and checklists for disability. I am in the process of filling out paperwork for some...
  8. Andy

    Disability Rights UK/Chronic Illness Inclusion evidence gathering survey on potential collaboration between different illness groups, closes 25th Sept

    This survey is part of a collaboration between Disability Rights UK and Chronic Illness Inclusion. The aim of this survey is to explore 1) Whether people with different energy-limiting health conditions and impairments are interested in working together on issues of social justice and...
  9. Andy

    Editorial: Lancet: "Disability—a neglected issue in public health"

    "More than 1 billion people, around 15% of the global population, have some form of disability. Disabilities include long-term sensory, mental, intellectual, or physical impairments that can impact people's daily lives, health care, and support needs. The prevalence of disabilities will most...
  10. rvallee

    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    This is the kind of issue that makes physicians roll their eyes, which is exactly why it is important to discuss as it can't be fixed from the outside. Technically with the backdrop of Long Covid but it's a general discussion...
  11. Dolphin

    Forbes article: We Need To Rethink The Penalties And Rewards Of Identifying As “Disabled”, 2021, Pulrang

    We Need To Rethink The Penalties And Rewards Of Identifying As “Disabled” https://www.forbes.com/sites/andrewpulrang/2021/05/23/we-need-to-rethink-the-penalties-and-rewards-of-identifying-as-disabled/?sh=4413c9063094
  12. Andy

    UK: Video: Disability employment gap - Commons Work and Pensions Committee - 28 April 2021

    "The Commons Work and Pensions Committee is investigating the gap between the employment rates of disabled and non-disabled people and how the Department for Work and Pensions can better support disabled people in the labour market. This evidence session is expected to cover issues around...
  13. Andy

    UK: BBC survey: the experiences of disabled people in the UK during the Covid-19 pandemic

    "How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your disability, your life? Share your experiences with us, it won't take long" https://www.smartsurvey.co.uk/s/BBCDisabilityCovid19/
  14. MeSci

    The disabled doctors not believed by their colleagues

    (Not sure whether I've posted this before) 19 April People often feel nervous when they visit a doctor with some fearing their symptoms may not be believed. But what if you are the doctor, and your colleagues dismiss your disabilities and mental health difficulties? Miranda Schreiber explores...
  15. R

    USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID

    Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic. (Pix is of an @unrestfilm event yrs ago. Slide behind me is a statement of support for people w/ ME fr the entire Massachusetts Congressional...
  16. InitialConditions

    [Blog] How Singer-Songwriter John Prine Helped Me Accept A Life of Illness

    This is a beautiful piece about becoming chronically ill, learning to cope under the extreme burden, and accepting a new reality. It was written over the course of a year by Matt Lazell-Fairman, who has ME, and whom I know through his wife Katie. Matt is also the son of Mary Dimmock, who now...
  17. Andy

    Research survey: Young Disabled People’s Views and Experiences of Disability Activism across Europe

    Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience or are interested in disability activism and disability politics? If you answered yes to these questions then please consider taking part in this...
  18. Wyva

    Washington Post article: How the able-bodied can do better with disabled neighbors like me (author has ME)

    By Litsa Dremousis "As is true for many disabled Americans, my health-care costs resemble pipe bombs that keep blowing up my bank account, leaving it a pile of smoldering ash. As such, I can’t afford a house. Like many disabled Americans, I live in a multiunit dwelling where the majority of my...
  19. Andy

    UK: Public survey to gather views and experiences for the National Strategy of Disabled People, closes 23rd April 2021

    https://www.gov.uk/government/news/citizen-space-survey-national-strategy-for-disabled-people AfME article on this, https://www.actionforme.org.uk/news/national-strategy-for-disabled-people-have-your-say/
  20. Andy

    Video: Chronic illness and the social model of disability - Leonora Gunn

    https://youtu.be/fjWjb41bEOI
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