A couple of months old but of relevance as Coffey is now the Secretary of State for Health and Social Care:
"MPs have asked the work and pensions secretary to justify her refusal to release nine potentially embarrassing reports about her department’s work, at least four of which focus on...
Joseph Roundtree Foundation, "From disability to destitution", 2022, Tom Clark and Peter Matejic
"The official story on poverty among disabled people is bad enough. But new JRF analysis reveals that when it comes to the real essentials of life, like heating and food, the problem is far worse...
I'm not sure whether this document has any "teeth" (a way to enforce it) but I thought this might be helpful for disabled folks in the USA who are able to travel.
The US Department of Transportation has just posted the first ever Airline Passengers with Disabilities Bill of Rights...
'Looking Forward' to Another Year of ME....
This Chronic Elephant Blog is about how coping with the daunting prospect of another year of ME:
https://thechronicelephant.blogspot.co.uk/2018/01/hippy-pants.html
"A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC).
Nearly every survey respondent (98 per cent) said that lack of understanding of ELC was a barrier to inclusion.
The second biggest barrier revealed by the survey was...
This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/
The November and December schedule for the Living w/ ME Support Group has just been announced:
Sunday, November 12: Avoiding Crashes
Sunday, December 10: Surviving the...
I'm probably asking for something that already exists in a thread somewhere but can't find what I'm looking for and I can't figure out the terms to search for it.
I'm trying to find current/recent forms and checklists for disability. I am in the process of filling out paperwork for some...
This survey is part of a collaboration between Disability Rights UK and Chronic Illness Inclusion.
The aim of this survey is to explore 1) Whether people with different energy-limiting health conditions and impairments are interested in working together on issues of social justice and...
"More than 1 billion people, around 15% of the global population, have some form of disability. Disabilities include long-term sensory, mental, intellectual, or physical impairments that can impact people's daily lives, health care, and support needs. The prevalence of disabilities will most...
This is the kind of issue that makes physicians roll their eyes, which is exactly why it is important to discuss as it can't be fixed from the outside. Technically with the backdrop of Long Covid but it's a general discussion...
We Need To Rethink The Penalties And Rewards Of Identifying As “Disabled”
https://www.forbes.com/sites/andrewpulrang/2021/05/23/we-need-to-rethink-the-penalties-and-rewards-of-identifying-as-disabled/?sh=4413c9063094
"The Commons Work and Pensions Committee is investigating the gap between the employment rates of disabled and non-disabled people and how the Department for Work and Pensions can better support disabled people in the labour market.
This evidence session is expected to cover issues around...
"How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your disability, your life? Share your experiences with us, it won't take long"
https://www.smartsurvey.co.uk/s/BBCDisabilityCovid19/
(Not sure whether I've posted this before)
19 April
People often feel nervous when they visit a doctor with some fearing their symptoms may not be believed. But what if you are the doctor, and your colleagues dismiss your disabilities and mental health difficulties? Miranda Schreiber explores...
Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic. (Pix is of an @unrestfilm event yrs ago. Slide behind me is a statement of support for people w/ ME fr the entire Massachusetts Congressional...
This is a beautiful piece about becoming chronically ill, learning to cope under the extreme burden, and accepting a new reality. It was written over the course of a year by Matt Lazell-Fairman, who has ME, and whom I know through his wife Katie. Matt is also the son of Mary Dimmock, who now...
Is your age within the range of 18 to 35?
Do you identify as a disabled person?
Do you currently live in a European State?
Do you have experience or are interested in disability activism and disability politics?
If you answered yes to these questions then please consider taking part in this...
By Litsa Dremousis
"As is true for many disabled Americans, my health-care costs resemble pipe bombs that keep blowing up my bank account, leaving it a pile of smoldering ash. As such, I can’t afford a house.
Like many disabled Americans, I live in a multiunit dwelling where the majority of my...
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