debate

"Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome – Baroness Thornton Oral questions" https://www.theyworkforyou.com/calendar/?d=2021-10-12#cal35881 (don't have any more details)

full debate here https://www.theyworkforyou.com/whall/?id=2019-06-25a.294.0&s=Chronic+Fatigue+Syndrome#g294.1

[see thread (with petition) re-amalgamation of testing for both benefits] https://www.s4me.info/threads/dont-merge-the-assessments-for-pip-and-esa-april-2019.9032/ full debate here: https://www.theyworkforyou.com/whall/?id=2019-04-24a.318.4&s=Myalgic+Encephalomyelitis#g324.0

Becky Hatfield is trying to get a bagful of letters together for Steve Brine (think he is still Under Secretary of State for Department of Health and Social Care.....things are changing so rapidly in UK Govt). There has been a disappointing response to her Twitter and Facebook requests. so I am...

Steve Brine's Troubling Claim in Parliamentary Debate on ME I want to focus on a point Brine made regarding the importance of including updated information about ME in medical education—one of the key planks in the motion passed by unanimous voice vote on Thursday.

Moderator note: This post has been copied to create a new thread on the day of the debate. The thread on preparations for the debate is here Ways to watch live; https://parliamentlive.tv/Commons https://www.bbc.co.uk/iplayer/live/bbcparliament (UK only) (The BBC Parliament channel can also be...

Carol Monaghan Scores Another Parliamentary Debate "Carol Monaghan, a member of Parliament from the Glasgow area, has done it again. This week she is spearheading a three-hour debate in the House of Commons about the awful situation confronting ME patients in the UK. (The organizers of this...

This post and the following ones have been moved from this thread.

https://www.bbc.co.uk/news/uk-england-derbyshire-46880547 A debate has been held in parliament about a chronic pain condition after a petition attracted more than 115,000 signatures. Toby Perkins, MP for Chesterfield, organised the debate along with constituent and fibromyalgia campaigner...

:woot::woot::woot::woot::woot::woot::woot::woot: Thanks to all those who've long researched and written about PACE - it's those many, many years of work by patients such as @Tom Kindlon and others who spotted the problems from the get-go, and the support of academics such as @dave30th David...

My Member of Parliament Carol Monaghan MP will be at the Backbench Business Committee meeting today at 2:30 to discuss the next UK Parliamentary Debate. https://calendar.parliament.uk This link for Parliament TV below should work nearer the time...

Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP http://www.margaretwilliams.me/2018/hooper-to-phillipson.pdf 16th July 2018 Dear Bridget, Many thanks for forwarding the letter of 14th June 2018 (PO-1133220) from Lord O’Shaughnessy, Parliamentary Under Secretary of...

This thread was created by moving posts from this thread. Several posts suggesting and agreeing to the move have been deleted or edited. My wife and I did in fact attend one of our MP's surgery appointments today. We had been allocated 10 mins and were in there more like 25 mins. Our MP is a...

Pretty good article on BBC news website about recent parliamentary debate “Chronic fatigue syndrome, or ME, is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession - according to an MP who has been campaigning in Parliament to change...

Rochdale Online: MP calls for “much more to be done to tackle ME” http://www.rochdaleonline.co.uk/news-features/2/news-headlines/119844/mp-calls-for-much-more-to-be-done-to-tackle-me Liz McInnes, Member of Parliament for Heywood and Middleton, has called for “much more to be done to tackle ME”...

MPs demand more biomedical research for cruel ‘death sentence’ disease | 22 June 2018 http://www.meassociation.org.uk/2018/06/mps-demand-more-biomedical-research-funding-for-cruel-death-sentence-disease-22-june-2018/ ME Association Press Release, By John Siddle, 21 June 2018. MPs demanded...

Two important actions in the #MEAction report on yesterday's Westminster debate: Thank the MPs who attended We need your help to keep the momentum going. Now more than ever, it’s crucial we have the capacity to sustain and grow the impact of this work. Donate today to our crowdfunding...

http://researchbriefings.parliament.uk/ResearchBriefing/Summary/CDP-2018-0155#fullreport

For years dismissed as 'laziness', but now cruel disease is finally getting attention it deserves Rochdale News: "Now a three-hour Westminster Hall debate on Thursday afternoon (21 June, 1.30 to 4.30 pm), supported by the ME Association and other charities, will discuss treatments and research...

Well done to Carol for getting this done. Details here: https://www.meaction.net/2018/06/06/uk-secures-westminster-hall-debate-on-me/ I don't know whether this precludes a debate in the House of Commons...