Chronic Denial
"A debunked theory about chronic fatigue syndrome is being recycled to explain Long Covid—with troubling results."
By David Tuller
More at link.
https://www.kirby.unsw.edu.au/events/long-covid-psycho-behavioural-or-biological-current-state-evidence
An in person & online event (registration required) with presenters Dr David Joffe & Dr David Tuller @dave30th on Tuesday 18 March 2025.
That title will no doubt catch out a few from the BPS...
Opinion piece by George Winter
The time has come to confront the damage caused by flawed science and give ME the recognition it deserves
Writing in The Guardian in July, Dr Alastair Miller – who has “… been involved in the diagnosis and management of this condition since the mid-1980s…” –...
Description: David Tuller returns to TWiV to provide an update on ME/CFS, the PACE trial, developments related to the NICE guidelines, and how similar practices and ideologies are being applied to long COVID.
"Even though the US Centers for Disease Control and Prevention in Atlanta is the country’s leading public health agency, other government entities are not always up-to-speed on the latest recommendations. That could explain why the Department of Veterans Affairs appears to be using a variation...
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This month marks the seventh anniversary of Virology Blog’s publication of my 15,000-word investigation of the egregiously flawed and fraudulent piece of crap known as the PACE trial.
...
Pursuing this project, exposing fallacious scientific reasoning, and puncturing the egos of these...
Join us on the 18th of October when Dr David Tuller, Senior Fellow in Public Health and Journalism at UC Berkeley’s Center for Global Public Health, will speak with us about the trope of ‘medically unexplained symptoms’ (MUS) and the bolstering of research findings to support the tenuous...
This post has been copied from this thread:
Percentage of people with ME/CFS able to work or attend school
The latest Virology blog:
“Trial By Error: Research From GET/CBT Ideological Brigades Shows No Improvements
in Work Status” see...
Adam Lowe, known in some incarnations as Beyonce Holes, is a longtime ME/CFS patient and advocate in Manchester, England, served as a lay member of the committee that produced the new clinical guidance published last October by the UK’s National Institute for Health and Care Excellence. (This...
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UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion
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@dave30th talks to @adambeyoncelowe about the guideline review and his part in it.
https://www.facebook.com/530121828/videos/938121200416367/
New interview by Vincent Racaniello with David Tuller!
- David Tuller returns to TWiV to revisit his work to expose the methodological and ethical problems with the PACE trial, and the post-acute sequelae to SARS-CoV-2 infection, also known as long COVID.
Abstract
Objective
We investigated the effectiveness of Graded Exercise Therapy (GET) delivered to patients with Chronic Fatigue Syndrome (CFS/ME) in a routine, specialist clinic by measuring patient-reported outcome data collected prospectively over several timepoints alongside therapy...
2021
bps
chalder
clinical outcomes
davidtuller
get
iapt
long covid
me/cfs
mus
nice guideline
paper
peter denton white
pps
psychosomatic medicine
trial by error
uk me/cfs clinic
Abstract
PRINCE Secondary was a randomised trial to test the efficacy and cost-effectiveness of therapist-delivered, transdiagnostic cognitive behavioural therapy (TDT-CBT) for patients with persistent physical symptoms (PPS) (Chalder et al., 2021). In total, 324 PPS patients were randomised to...
"As I have recently written, four major clinical trials of CBT for so-called MUS have documented the opposite of what the investigators hoped to prove. In fact, the evidence from this research suggests that CBT is not an effective treatment for these conditions. That hasn’t stopped these...
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In past decades, much research into ME/CFS treatment was devoted to psychological and behavioral interventions. More recently, these studies and their reported findings have been widely criticized as deeply flawed. A 2015 report from the U.S. Institute of Medicine (now the National...
"Treatment harms to patients with ME/CFS"
Quote:
- Despite evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), the dominant therapeutic approach has been cognitive behaviour therapy (CBT) and graded exercise therapy (GET)...
This is a private initiative from a family who has previously organised two large conferences in Stryn, Norway. They also do fundraising for biomedical research into ME. All money goes to Fluge, Mella and their team at Haukeland University Hospital. (more about their fundraising in English...
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