cmrc

There are plans for an ME Research Collaborative (previously CMRC) conference later this year (September, if possible). We are currently putting together a draft agenda in the hope of approaching potential funders. The dates are not yet fully fixed. The conference will be hybrid (in-person and...

An ME/CFS workshop has been announced by the MRC and NIHR. https://mrc.ukri.org/funding/science-areas/population-systems-medicine/our-science-and-contacts-psmb/cfsme/#workshop Statement from Stephen Holgate on behalf of the CMRC Statement from CureME Biobank Team FAQ from the ME/CFS...

https://www.actionforme.org.uk/news/early-bird-registration-now-open-cmrc-2020/ Event ticket page, https://www.eventbee.com/v/uk-cfsme-research-collaborative-6th-annual-science-conference/event?eid=105083142#/tickets

Minutes of meeting January 2019. Agenda Minutes and Matters Arising MRC Strategy Board CMRC Working Groups CMRC Membership AOB https://www.actionforme.org.uk/uploads/images/2019/01/CMRC_minutes_1.pdf

https://www.actionforme.org.uk/uploads/images/2018/12/cmrc-board-minutes-nov-2018_2.pdf Highlights are establishment of working groups, no conference next year, the high level report is on hold, the priorities partnership meetings have begun, the MRC have asked for further submissions regarding...

Another date for our diary, Esther Crawley confirmed as a speaker at the European Society for Paediatric Infectious Diseases (ESPID) later this year: http://espidmeeting.org/2018/scientific-information/confirmed-invited-speakers#.WkuWyJCnzMI

Prof Carmine Pariante presented on 'MRC Funded Update: Persistent fatigue induced by interferon-alpha: a novel, inflammation-based, proxy model of Chronic Fatigue Syndrome'. See also the MEA summary page 19.

Q & A session with David Tuller.

This thread has been split from the CMRC conference thread here. See also the MEA Summary page 9. Well I do think many of us (myself included) are hiding from healthcare because we can do without the patronizing abuse which is all many health-care providers seem to have to offer, and I also...

This thread has been split from the CMRC conference thread here See also the MEA Summary page 5. ________________________________________________ Nina Muirhead's presentation is very good and I think she will be an asset to the cause. I don’t understand why the type of enquires with medical...

This thread has been split from the main thread about the CMRC conference here. My summary of Holgate’s fifteen minutes: Emphases the five years length of CMRC effort, ( whilst he’d been head of something very similar previously along with charities and researchers). Used the phrase “it’s...

This thread has been split from the conference thread here Prof Alain Moreau presented on the 'Identification of post-exertional dysregulated circulating microRNAs in ME/CFS pathogenesis' See also the MEA Summary page 6. Somewhere around the 25 minute mark, Moreau starts talking about a...

Trial By Error: The CFS/ME Research Collaborative Conference So I attended the CFS/ME Research Collaborative conference two weeks ago in Bristol. The two-day event was a refreshingly PACE-free zone–as far as I could tell, I was the only person who mentioned that piece of crap in public...

https://www.actionforme.org.uk/uploads/images/2018/07/DRAFT_Minutes_CMRC_10.7.18.pdf I’ve not seen these or this news anywhere before so posting here. I can’t see much else in significant developments. Another BACME member is involved. Dr Louis nacul was there as an observer. Mainly a...

http://www.meassociation.org.uk/2018/06/the-me-association-to-fund-six-student-bursaries-for-2018-cmrc-research-conference-19-june-2018/

https://www.actionforme.org.uk/uploads/images/2018/05/Draft_Chair_approved_mins_24.4.18.pdf I don't know if this has already been published, it's the April CMRC minutes. I looked it up to see what was most recent. It seems Sonya chowdhurys time and salary is largely devoted to her role and work...

I'm delighted to announce that Professor Chris Ponting, Chair of Medical Bioinformatics, Edinburgh University and Deputy Chair of the CMRC, has agreed to an email Q&A with us, so I'm now looking for questions to ask him. For reference, AfME had this brief Q&A with him, so ideally we want to...

The CMRC's new biomedical focus and big ambitions In a dramatic move last week, the UK CFS/ME Research Collaborative (CMRC) committed itself to a new, biomedical direction. It has started taking concrete action to engage with patients and also announced ambitious plans to enable much more...

Yesterday's news from the CFS/ME Research Collaborative A recap of yesterday's news and an email to Sue Paterson, director of legal services at the University of Bristol with an inquiry of professor Crawley's new role at Bristol and of more details about Crawley's departure.

...according to today's announcement about the CMRC's new purpose, objectives and values: https://www.s4me.info/threads/cmrc-agree-on-a-new-purpose-objectives-and-values-which-replace-its-previous-charter-march-2018-ec-also-to-leave-the-board-of-the-cmrc.2809/#post-50325 Should be interesting...