chronic illness

  1. MeSci

    5 dilemmas faced by the chronically ill as they age (from an ME/CFS viewpoint)

    Source: Psychology Today Date: November 8, 2018 Author: Toni Bernhard URL: https://www.psychologytoday.com/ca/blog/turning-straw-gold/201811/5-dilemmas-faced-the-chronically-ill-they-age 5 dilemmas faced by the chronically ill as they age ---------------------------------------------------...
  2. Andy

    Blog: Changing the system so that more chronically ill people can work

    https://inclusionproject.org.uk/guest-post/changing-the-system-so-that-more-chronically-ill-people-can-work/
  3. Andy

    Chronic Illness Inclusion Project: Mo Stewart [independent researcher] responds to “Reclaiming Chronic Illness” discussion paper

    https://inclusionproject.org.uk/guest-post/mo-stewart-responds-to-reclaiming-chronic-illness/
  4. Andy

    School Nurses Can Improve the Lives of Students With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2018, Friedman et al

    Does this count as "good" psychosocial research, as in, in terms of where to put it on the forum? Paywalled at http://journals.sagepub.com/doi/abs/10.1177/1942602X18795299?journalCode=nasb
  5. A

    EBM and chronic illnesses

    If this is the wrong category please move This came from a twitter feed this morning and i know you will all have your own thoughts. Certainly a discussion provoker...
  6. Indigophoton

    Metabolic features and regulation of the healing cycle—A new model for chronic disease pathogenesis and treatment, Robert K Naviaux, 2018

    Not specifically about ME, but includes CFS in the list of conditions considered. https://www.sciencedirect.com/science/article/pii/S1567724918301053#tf0005
    • Indigophoton
    • Thread
    • 2018 allostatic load antipurinergic therapy cell danger response chronic illness healing cycle integrated stress response m0 m1 m2 mitochondria metabokines metabolic memory mitochondria mitochondrial nexus naviaux purinergic signaling
    • Replies: 71
    • Forum: Other health news and research
  7. NelliePledge

    introductory report from Chronic Illness Inclusion project

    http://www.centreforwelfarereform.org/uploads/attachment/617/reclaiming-chronic-illness.pdf I havent read all this yet Summary This discussion paper presents the ideas and assumptions behind the Chronic Illness Inclusion Project (CIIP), part of the DRILL programme of disability research. 1 My...
  8. Indigophoton

    The Stories We Tell Ourselves: Prisons or Paths to Freedom

    From the blog "A Chronic Voice", https://www.achronicvoice.com/2018/06/03/stories-freedom/
  9. G

    Can we trust results from early clinical trials?

    Read rest of the article here.
  10. Sly Saint

    In the Kingdom of the Sick: A Social History of Chronic Illness in America

    In the Kingdom of the Sick: A Social History of Chronic Illness in America - by Laurie Edwards Interview with the Author here: https://www.psychologytoday.com/blog/turning-straw-gold/201306/in-the-kingdom-the-sick-interview-laurie-edwards "When patients are sick with symptoms that aren’t...
  11. MsUnderstood

    Diane Shipley: Sick Women...Chronic Illness Narratives

    Here's a link to another article that discusses the recent change in how those with chronic illnesses and disabilities are depicted in both news articles and pop culture: https://www.bitchmedia.org/article/chronic-illness-onscreen SICK WOMEN HOW WOMEN TOOK CONTROL OF CHRONIC ILLNESS NARRATIVES...
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