Under-Served Groups and Myalgic Encephalomyelitis Research Workshop; Multiple Barriers to Effective Healthcare, Research and Public Participation
Monica Jane Bolton, Carolyn A. Chew-Graham, Harm van Marwijk
ABSTRACT
Public involvement in research and other initiatives for myalgic...
Medical ambivalence and Long Covid: The disconnects, entanglements, and productivities shaping ethnic minority experiences in the UK
Ridge; Broom; Alwan; Chew-Graham; Smyth; Gopal; Kingstone; Gaszczyk; Begum
Structural violence -related to ‘isms’ like racism, sexism, and ableism – pertains to...
"#ThereForME is a campaign founded by Karen and Emma, two carers for partners with very severe ME/Long Covid. #ThereForME is calling for an NHS that's there for people with ME and Long Covid."
https://linktr.ee/ThereForME (Provides many links, including to an executive summary of the "Building...
Background: People from ethnic minority groups are disproportionately affected by COVID-19, are less likely to access primary healthcare and report dissatisfaction with healthcare. Whilst the prevalence of Long Covid in ethnic minority groups is unclear, these groups are under-represented in...
Peters, S., Wearden, A., Morriss, R. et al. Challenges of nurse delivery of psychological interventions for long-term conditions in primary care: a qualitative exploration of the case of chronic fatigue syndrome/myalgic encephalitis. Implementation Sci 6, 132 (2011)...
Quote:
The varied presentation of long COVID, particularly the neuropsychiatric complications, can cause uncertainty for GPs, making the diagnosis difficult. Whatever this uncertainty for clinicians, however, primary care must play a key role in supporting young people with long COVID and their...
(Chew Graham is one of the authors)
full article here
https://bjgplife.com/chronic-fatigue-syndrome-myalgic-encephalomyelitis-an-invisible-illness-that-benefits-from-a-relationship-based-care-approach/
Edit:
This article is based on research by the same authors discussed here:
A...
Full title: Association of SARS-CoV-2 Infection With Psychological Distress, Psychotropic Prescribing, Fatigue, and Sleep Problems Among UK Primary Care Patients
Kathryn M. Abel, MD, PhD1,2,3,4; Matthew J. Carr, PhD4,5,6; Darren M. Ashcroft, PhD4,5,6; Trudie Chalder, PhD7; Carolyn A...
Post-COVID-19 syndrome, often called ‘long COVID’ refers to signs and/or symptoms that develop following COVID-19 infection, which continue for more than 12 weeks and are not explained by an alternative diagnosis.1 Long COVID presents with clusters of symptoms, often overlapping, can affect any...
https://kclpure.kcl.ac.uk/portal/en/publications/is-infection-with-covid19-causing-an-increased-risk-of-psychological-distress-psychotropic-prescribing-or-sleep-and-fatigue-problems(a1979edd-3821-454a-b488-b9c716e49e7b).html
Is infection with COVID-19 causing an increased risk of psychological...
Not new but thought it might be of interest.
(the Peer Review report is also available , one of the reviewers is Chew-Graham)
Abstract
Background
Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) can cause profound and prolonged illness and disability, and poses significant problems...
COVID-19 Infection and Subsequent Psychiatric Morbidity, Sleep Problems and Fatigue: Analysis of an English Primary Care Cohort of 226,521 Positive Patients
Abstract
Background: While some people who have had COVID-19 experience fatigue and sleep problems long after the acute phase of the...
This post is copied and some posts discussing the article moved from this thread.
BMJ feature: Chronic fatigue syndrome and long covid: moving beyond the controversy
Long article, which starts with fun stuff like:
“I submitted the first positive trial of cognitive behavioural therapy [CBT] as...
Background
The coronavirus disease (COVID‐19) pandemic has had far‐reaching effects upon lives, healthcare systems and society. Some who had an apparently 'mild' COVID‐19 infection continue to suffer from persistent symptoms, including chest pain, breathlessness, fatigue, cognitive impairment...
https://www.sciencedirect.com/science/article/abs/pii/S0277953620305888
Some of these have been involved with annoying papers in the past
Social Science & Medicine
Available online 16 September 2020, 113369
In Press, Journal Pre-proof
I'm sure we must already have discussed this, but I've not found the thread/discussion so thought that I'd risk to problem of a re-post (sorry mods).
https://www.whatdotheyknow.com/request/cfs_fine_what_story_does_the_obj_2#incoming-1026066
Woolie's summary of FINE:
As Woolie says, they did...
Moderator note: Moved from this thread:
Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS
I have e-mailed the following letter to Professor Carolyn Chew-Graham of Keele University, who has repeatedly mis-quoted a key data point about the cost of so-called...
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Posted on 17 May 2018
Researchers at Keele University are looking for people with Chronic Fatigue Syndrome (CFS) or Myalgic Encephalomyelitis (ME) to discuss a study which aims to give a better understanding of the support needs of people suffering with the condition.
A meeting will be...
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