Some threads have been merged to create this news thread
The future of the NHS: no longer the envy of the world?
Picked up from social media. Article in the Lancet London School of Economics have this project with an independent commission looking to identify big challenges faced by the NHS...
"#ThereForME is a campaign founded by Karen and Emma, two carers for partners with very severe ME/Long Covid. #ThereForME is calling for an NHS that's there for people with ME and Long Covid."
https://linktr.ee/ThereForME (Provides many links, including to an executive summary of the "Building...
Some posts have been moved from Anyone tried Lightning Process for Long Covid?
Here is the link to the promo for it live on Tuesday 21 May 8:00pm UK time and full recording available after then.
https://www.bbc.co.uk/programmes/m001zg5q
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Moderator note: For anyone reading this...
Edit:
Full title of trial, led by Leicester University, UK:
A phase IIa double blind, randomised placebo-controlled trial of Tocilizumab to investigate the effect on health-related quality of life in adults with Long COVID and persistent inflammation (PHOSP-I)
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UK BBC: Long Covid...
BBC Hard Talk interview:
Stephen Sackur speaks to palliative care doctor and writer Rachel Clarke. Her books about the reality of doctoring, confronting Covid and, most of all, about dealing with death are unvarnished, moving and thought-provoking. She asks us to consider a tough question - can...
Countryfile (last night).
Inclusive farming.
about 3/4s through the prog, a young woman with ME is featured (using a motorised wheelchair).
https://www.bbc.co.uk/iplayer/episode/m001fqgg/countryfile-inclusive-farming
Recently uploaded to YouTube.
This was uploaded in 2021 by a different user, but was taken down shortly after due to copyright.
"To be told 'your illness is all in the mind' or 'pull yourself together' is no help to people like Mollie Champion -14 years seeking a diagnosis and still not cured...
BBC article, "The race to understand 'immune amnesia'"
ETA: Added link that I originally overlooked to include, and @Arnie Pye kindly sorted for me, but thought I'd better include in this post anyway.
https://www.bbc.com/future/article/20211112-the-people-with-immune-amnesia
I just realised I can access the BBC science magazine on Scribd.
Very short articles but may prompt you to dig deeper
Suggestion re developing a vaccine for IBD
I'm reading "A Fungal Vaccine Could Boost Your Microbiome And Prevent Gut Disease" on Scribd.
Check it out...
Panorama's Long Covid: Will I Ever Get Better? will be on BBC One at 19:35 BST on Monday 12 July and on BBC iPlayer (UK only)
https://www.bbc.co.uk/news/health-57776010
"How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your disability, your life? Share your experiences with us, it won't take long"
https://www.smartsurvey.co.uk/s/BBCDisabilityCovid19/
This is a long article about someone with EDS.
Nil-by-mouth foodie: The chef who will never eat again - BBC News
By Kirstie Brewer
BBC News
Loretta Harmes hasn't eaten for six years, but she hasn't lost her passion for cooking. Even though she cannot taste her recipes, she has a growing...
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Taking the dog for a walk is a routine task for most people. But Jessica Rafferty would often have to cut outings short due to crippling pain.
She, like one in 10 women, lives with endometriosis - a condition where tissue similar to the lining of the womb grows elsewhere inside the body. It...
My mum watched Horizon today, just now, on BBC two, about long COVID..and told me to listen to one bit on iPlayer. We found it at the 43 minute mark. Sorry I’m not well enough to do a transcript but maybe someone else can. It’s a few minutes long.
It’s an amazing bit of coverage on ME!
there’s...
This post has been copied and some following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid
"Paul Garner: For 7 weeks I have been through a roller coaster of ill health, extreme emotions, and utter exhaustion
May 5, 2020
Paul Garner, professor of...
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