barton

Reuters: full article here: eta: link deleted please use this one http://archive.today/lwDNQ

CFS/ME National Services Survey Feb 2018 Snap shot audit BACME National Services Workstream Report Published March 2019 https://www.bacme.info/sites/bacme.info/files/BACME CFS ME National services survey March19.pdf

I'm sure the MEA would claim that they are being a neutral broker of information that PwME might find interesting but personally I'm disappointed that they continue to aid a group that, to my knowledge, still supports PACE and has close ties to BACME.

Source: Brighton & Hove Independent Date: August 7, 2018 Author: Amy Horsfield URL: https://www.brightonandhoveindependent.co.uk/news/health/scientist-joins-sussex-me-society-s-advisory-team-1-8593430 Scientist joins Sussex ME Society's advisory team...

via http://www.theargus.co.uk/enewspapers/

My adult daughter has worsened recently and needs help, especially with orthostatic intolerance which is affecting her ability to work and increasing her anxiety. To date the only help she has had has been psychologically orientated, she's engaged with it fully and her latest NHS therapist...

https://www.bacme.info/patient-support-groups See link at the bottom of the page, "Message from the Chair on ME Awareness Month 2018" Dear Members, The merry month of MAY is not such a merry month for all of us, especially those who are ill; it is however a hardworking month for ME Awareness...

The PRIME project: developing a patient evidence‐base Sophie Staniszewska, DPhil (Oxon) BSc (Hons), 1 Sally Crowe, Post Graduate Diploma, 2 Douglas Badenoch, MSc, 3 Carol Edwards, BA MSc PhD, 4 Jan Savage, RN BSc (Hons) PhD, 5 and Will Norman, PhD MA (Hons) 6 Acknowledgements We are grateful...

Posted by: "Dr. Marc-Alexander Fluks" Sent: Saturday 13 January 2018 10:46 To: LOCALME <localme@yahoogroups.com>; MEACTIONUK <meactionuk@yahoogroups.com>; MECHAT-L <mechat-l@listserv.icors.org>; Colin Barton <colin.barton@btinternet.com> Subject: Alastair Miller: The prognosis of CFS/ME The...

Posted by Dr. Marc-Alexander Fluks to various fora. Can't find it online, only similar ones including 'thousands' instead of 'hundreds' of patients. Source: ME Association Winter magazine Ref: http://www.measussex.org.uk Thirty years of seeing patients with ME/CFS...