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Recommendations for NHS referral requests in the Brighton area please

Discussion in 'ME/CFS Doctors' started by Liv aka Mrs Sowester, May 28, 2018.

  1. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

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    My adult daughter has worsened recently and needs help, especially with orthostatic intolerance which is affecting her ability to work and increasing her anxiety.
    To date the only help she has had has been psychologically orientated, she's engaged with it fully and her latest NHS therapist agrees she needs help with her biological illness and doesn't have false illness beliefs.
    She needs to access a decent NHS clinic or specialist (if one exists in the Brighton area!) and plans to ask her doctor for a referral.

    Any advice, recommendations or warnings locals could give would be very useful indeed :)
     
    Last edited: May 28, 2018
    MEMarge, Barry, alktipping and 7 others like this.
  2. MeSci

    MeSci Senior Member (Voting Rights)

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  3. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    MEMarge, alktipping, MeSci and 2 others like this.
  4. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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  5. NelliePledge

    NelliePledge Moderator Staff Member

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    There are Brighton ish people on here but I can’t remember who. Obviously worth being aware it’s Colin Barton part of the world so avoid his group as they have EC as medical adviser

    And Brighton is where Neil Harrison is doing that research.
    I think ReMEmber also cover Sussex tho. Sorry I’m garbling.
     
  6. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

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    Yes please, personal recs, good and bad will be really useful. I think an avoid list is just as important as a good list.
    She's only just managing to carry on teaching part time at the moment and a referral to the wrong place at this stage could mean the difference between her continuing to live the life she choses for a while longer and having to come home to be looked after.

    Fantastic, this chap looks promising, thank you.
     
  7. Adrian

    Adrian Administrator Staff Member

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    I think @Graham is somewhere near the area
     
  8. Graham

    Graham Senior Member (Voting Rights)

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  9. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    I have found him helpful and really knowledgable too. Yes, you can get Bursaries from the ME Trust.
     
    MEMarge and adambeyoncelowe like this.

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