Recommendations for NHS referral requests in the Brighton area please

My adult daughter has worsened recently and needs help, especially with orthostatic intolerance which is affecting her ability to work and increasing her anxiety.
To date the only help she has had has been psychologically orientated, she's engaged with it fully and her latest NHS therapist agrees she needs help with her biological illness and doesn't have false illness beliefs.
She needs to access a decent NHS clinic or specialist (if one exists in the Brighton area!) and plans to ask her doctor for a referral.

Any advice, recommendations or warnings locals could give would be very useful indeed

 

I take it you've looked here? http://www.meassociation.org.uk/nhsspecialistservices/

 

The snag is that list includes the good and the bad. I think Mrs S is after a personal recommendation.

 

Dr Worthley from the ME Trust is based in Brighton. He's not NHS, but I think they offer bursaries for consultations if you can't afford the £20 per appointment.

He was helpful when I spoke to him on the phone: http://www.meassociation.org.uk/201...seeing-mecfs-patients-again-23-february-2017/

 

Yes please, personal recs, good and bad will be really useful. I think an avoid list is just as important as a good list.
She's only just managing to carry on teaching part time at the moment and a referral to the wrong place at this stage could mean the difference between her continuing to live the life she choses for a while longer and having to come home to be looked after.

Fantastic, this chap looks promising, thank you.

 

I'm sending you a PM, @Liv aka Mrs Sowester

 

I have found him helpful and really knowledgable too. Yes, you can get Bursaries from the ME Trust.