Recommendations for NHS referral requests in the Brighton area please

Liv aka Mrs Sowester

Liv aka Mrs Sowester

Senior Member (Voting Rights)
My adult daughter has worsened recently and needs help, especially with orthostatic intolerance which is affecting her ability to work and increasing her anxiety.
To date the only help she has had has been psychologically orientated, she's engaged with it fully and her latest NHS therapist agrees she needs help with her biological illness and doesn't have false illness beliefs.
She needs to access a decent NHS clinic or specialist (if one exists in the Brighton area!) and plans to ask her doctor for a referral.

Any advice, recommendations or warnings locals could give would be very useful indeed :)
 
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There are Brighton ish people on here but I can’t remember who. Obviously worth being aware it’s Colin Barton part of the world so avoid his group as they have EC as medical adviser

And Brighton is where Neil Harrison is doing that research.
I think ReMEmber also cover Sussex tho. Sorry I’m garbling.
 
Invisible Woman said:
The snag is that list includes the good and the bad. I think Mrs S is after a personal recommendation.
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Yes please, personal recs, good and bad will be really useful. I think an avoid list is just as important as a good list.
She's only just managing to carry on teaching part time at the moment and a referral to the wrong place at this stage could mean the difference between her continuing to live the life she choses for a while longer and having to come home to be looked after.

adambeyoncelowe said:
Dr Worthley from the ME Trust is based in Brighton. He's not NHS, but I think they offer bursaries for consultations if you can't afford the £20 per appointment.

He was helpful when I spoke to him on the phone: http://www.meassociation.org.uk/201...seeing-mecfs-patients-again-23-february-2017/
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Fantastic, this chap looks promising, thank you.
 
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