australia

[The headline says Long Covid, so I put it in this forum, but this article also applies to ME/CFS, and probably many more chronic illnesses that aren't well known by the staff in hospital emergency rooms.] Emergency departments aren’t trained for Long COVID — and patients are paying the price

Long Covid Symptom Clusters, Correlates and Predictors in a Highly Vaccinated Australian Population in 2023 Essa Tawfiq; Rosalie Chen; Damian Alexander Honeyman; Rebecca Dawson; Mohana Kunasekaran; Adriana Notaras; Deepti Gurdasani; Helen Skouteris; Darshini Ayton; Chandini Raina MacIntyre...

https://csiro.qualtrics.com/jfe/form/SV_50apVQ5MHXTReBw Are you living with, caring for, or treating someone with Long COVID or Myalgic Encephalitis/Chronic Fatigue Syndrome (ME/CFS)? We want to hear from you! The Australian E-Health Research Centre (AEHRC) and Monash University have...

2014 paper Sarah Knight, Adrienne Harvey, Susan Towns, Donald Payne, Lionel Lubitz, Kathy Rowe, Colette Reveley, Sabine Hennel, Harriet Hiscock, Adam Scheinberg Abstract Aim The diagnosis and management of paediatric chronic fatigue syndrome/myalgic encepnalomyelitis (CFS/ME) represent ongoing...

=AZXXDXH_Si301X5VdOTSIXL0nix76oA0OvNmEJP0zaolTiiz0ze0d-N-BDuR8oATO_jRE7GvMMO4tqseHTBZPRE9uqoLDOOMwAB3-r_lLzvzj9tuBgTleZiO4a3icfvX2r0I4g5IXLoouiy7osED6Ut0CEJ0404eSLL4MLt02js5DaO5ZZFCb0rjdp0Fm667DGI&__tn__=-UC%2CP-R']National Centre for Neuroimmunology and Emerging Diseases - NCNED...

Abstract Introduction Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling condition that can affect adolescents during a vulnerable period of development. The underlying biological mechanisms for ME/CFS remain unclear and have rarely been investigated in the adolescent...

Anurag Adhikari, Janesha Maddumage, Emily M Eriksson, Sarah J Annesley, Victoria A Lawson, Vanessa L Bryant and Stephanie Gras Med J Aust 2024; 221 (9): S40-S48. || doi: 10.5694/mja2.52456 Published online: 4 November 2024...

Highlights Illness invalidation occurs for people managing a range of chronic health symptoms. Psychological distress was associated with illness invalidation from three sources. Illness invalidation from family members was most strongly associated with distress. Multimorbidity and longer...

https://www.emerge.org.au/get-involved-in-research/ Have you been diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or orthostatic intolerance? Researchers at the Baker Heart and Diabetes Institute (Melbourne, Victoria) request your contribution to research that hopes...

Daniel Missailidis, PhD on X: Did you know that you can donate directly to our ME/CFS research labs at La Trobe University? Every dollar supports the costs of our research directly and literally buys us more time to continue studying the cell biology of ME/CFS. #research #MECFS...

Abstract Objective: To estimate the number of people in Australia with long COVID by age group, and the associated medium term productivity and economic losses. Study design: Modelling study: a susceptible–exposed–infected–recovered (SEIR) model to estimate the number of people with long COVID...

Press release from Australian government announcing $1.1 million for the NHMRC to develop ME/CFS guidelines https://www.emerge.org.au/news/media-release-backing-belief-with-better-support-for-people-with-chronic-fatigue/ OFFICIAL MARK BUTLER MP MINISTER FOR HEALTH AND AGED CARE MEDIA...

Hi everybody, I finally have the ethics in place to begin recruiting for our recently funded Mason Foundation study. ICC criteria. Healthy controls and pwME in VIC, Australia. Involves some questionaires and a blood and feces collection. We will home visit severely affected people. Primary...

An old but influential paper: I B Hickie 1, A W Hooker, D Hadzi-Pavlovic, B K Bennett, A J Wilson, A R Lloyd Abstract Objectives: To determine the prevalence and sociodemographic and psychiatric correlates of prolonged fatigue syndromes among patients in primary care. Design: Prospective...

Let me know if this document has already been posted and I'll delete the thread: "Long COVID" Living evidence summary Queensland Health Update: 5 October 2023 https://www.qld.gov.au/__data/assets/pdf_file/0023/380741/long-covid-living-evidence-summary.pdf Page 10 (from a 12 pp document)...

This thread is for a list of sub-national Australian ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. ME/CFS/FM Support Association Queensland - http://www.mecfsfmq.org.au - mefmtba@bigpond.com...

[I wasn't sure which forum to post this in] EMERGE Australia Recovery Position Statement https://www.emerge.org.au/recovery-position-statement/ Start of pdf: Statement The general consensus is that full recovery from ME/CFS is not common. However, the research into recovery is plagued by...

For abstract see post #3 This post is about a response to the paper. Multidisciplinary team management of functional neurological disorder in the community full letter https://wchh.onlinelibrary.wiley.com/doi/10.1002/pnp.806

We are thrilled to share some exciting news with you! Thanks to the incredible generosity of the McCusker Charitable Foundation, and their commitment to advancing medical research, we are embarking on an unprecedented journey that promises to revolutionize the care of people with ME/CFS and Long...

Abstract Background: Some investigators believe that a proportion of chronically unwell patients, many with fatigue, have an underlying rickettsial disease. Aim: To investigate the prevalence of markers of rickettsial infection in patients with chronic illnesses. Design: Observational study...