activity

  1. SNT Gatchaman

    Long COVID and Significant Activity Limitation Among Adults, by Age — United States, June 1–13, 2022, to June 7–19, 2023, , Nicole D. Ford

    Long COVID and Significant Activity Limitation Among Adults, by Age — United States, June 1–13, 2022, to June 7–19, 2023 Nicole D. Ford et al. Long COVID is a condition encompassing a wide range of health problems that emerge, persist, or return following COVID-19. CDC analyzed national repeat...
  2. B

    The process of CBT for CFS: Which changes in perpetuating cognitions and behaviour are related to a reduction in fatigue?, 2013, Knoop et al.

    Copied from ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19. You are probably much more on the money that I am. My mind initially went to even more cynical assumptions. Goodness knows why they need a less and...
  3. Sly Saint

    Measurement Methods for Physical Activity and Energy Expenditure: a Review, 2017, Ndahimana, Kim

    Abstract Physical activity is defined as any bodily movement produced by skeletal muscles that results in energy expenditure. The benefits of physical activity for health maintenance have been well documented, especially in the prevention and management of chronic diseases. Therefore, accurate...
  4. Andy

    “Pacing does help you get your life back”: The acceptability of a newly developed activity pacing framework for chronic pain/fatigue, 2021, Antcliff

    Abstract Objectives We have developed and feasibility tested an activity pacing framework for clinicians to standardise their recommendations of activity pacing to patients with chronic pain/fatigue. This study aimed to explore the acceptability and fidelity to this framework in preparation for...
  5. Andy

    Webinar: Workwell Foundation, "ME/CFS Activity Management through Heart Rate Monitoring", March 4th at 12:00pm PST

    From a Workwell email. Workwell is pleased to announce the first webinar of our VIP series. Each webinar will provide access to the latest research and clinical information available from our team of experts. Access is limited to 20 participants to provide a small group setting to promote...
  6. Andy

    Patterns of daytime physical activity in patients with chronic fatigue syndrome, 2020, Chalder, Sharpe, White et al

    Not sure if this deserves it's own thread or should be folded into the PACE thread as it's based on PACE trial data. Paywall, https://www.sciencedirect.com/science/article/abs/pii/S0022399919310323 Sci hub, https://sci-hub.tw/10.1016/j.jpsychores.2020.110154
  7. Sly Saint

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique https://onlinelibrary.wiley.com/doi/abs/10.1002/msc.1430 (not yet available on sci-hub)
  8. Andy

    Recruiting: Developing an Activity Pacing Framework: Feasibility and Acceptability, Antcliff et al

    Not a recommendation. Although there has been something published recently by the same people running this trial I think this is something different, albeit related. https://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=2460&location=&distance=
  9. Andy

    Activity baseline vs activity ceiling, why concepts and language matter

    So, I'm sure many of us are familiar with the idea of establishing an activity baseline, which is where the activity that you are able to manage doesn't trigger PEM. I would argue though that the concept of a baseline is inherently dangerous for PwME as it implies a position that can then be...
  10. MSEsperanza

    [...] Outcome expectancies and behavioral experiences in the context of physical activity among cancer patients (2019), Ungar et al

    Ungar, N., Rupprecht, F., Steindorf, K., Wiskemann, J., & Sieverding, M. (2019). Worse or even better than expected?—Outcome expectancies and behavioral experiences in the context of physical activity among cancer patients. Journal of Health Psychology. doi: 10.1177/1359105319832345...
  11. Esther12

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say much: https://researchportal.bath.ac.uk/en/publications/physical-activity-patterns-among-children-and-adolescents-with-mi (Edit: Open access...
  12. Hoopoe

    Symptom fluctuations and daily physical activity in patients with chronic fatigue syndrome: a case-control study, Nijs et al (2011)

    A study that is of interest because it measured activity levels with an accelerometer. https://www.ncbi.nlm.nih.gov/pubmed/22032215 Unfortunately the authors did not investigate further to find out the "direction of these relations".
  13. Andy

    The influence of balance, physical disability, strength, mechanosensitivity and spinal mobility on physical activity...., 2018, Perez-Marmol et al

    Paywalled at https://www.clinbiomech.com/article/S0268-0033(18)30839-8/fulltext
  14. Sly Saint

    Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory.

    Physiotherapy. 2018 Mar;104(1):129-135. doi: 10.1016/j.physio.2017.07.005. Epub 2017 Aug 4. Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory. Thompson DP1, Antcliff D2, Woby SR3...
  15. Andy

    The Nation's Health: "Simple exercise counteracts effects of inactivity on health"

    This article highlights how, for patients with illnesses that don't trigger PEM, even relatively small amounts of activity is beneficial. In my opinion, for patients with ME, this should be turned about, even relatively small amounts of seemingly innocuous activity are potentially harmful...
  16. H

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    https://www.ncbi.nlm.nih.gov/pubmed/29471861 https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2500-3
  17. MeSci

    Greater specificity of activity memories in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (2017) Maryanne Martin

    URL: https://www.sciencedirect.com/science/article/pii/S1755296617300601 Greater specificity of activity memories in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: Implications for exercise-based treatment Maryanne Martin, Iana Alexeeva(*) - Department of Experimental Psychology, Medical...
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