Long COVID and Significant Activity Limitation Among Adults, by Age — United States, June 1–13, 2022, to June 7–19, 2023
Nicole D. Ford et al.
Long COVID is a condition encompassing a wide range of health problems that emerge, persist, or return following COVID-19. CDC analyzed national repeat...
Copied from ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19.
You are probably much more on the money that I am. My mind initially went to even more cynical assumptions. Goodness knows why they need a less and...
Abstract
Physical activity is defined as any bodily movement produced by skeletal muscles that results in energy expenditure. The benefits of physical activity for health maintenance have been well documented, especially in the prevention and management of chronic diseases. Therefore, accurate...
Abstract
Objectives
We have developed and feasibility tested an activity pacing framework for clinicians to standardise their recommendations of activity pacing to patients with chronic pain/fatigue. This study aimed to explore the acceptability and fidelity to this framework in preparation for...
From a Workwell email.
Workwell is pleased to announce the first webinar of our VIP series. Each webinar will provide access to the latest research and clinical information available from our team of experts. Access is limited to 20 participants to provide a small group setting to promote...
Not sure if this deserves it's own thread or should be folded into the PACE thread as it's based on PACE trial data.
Paywall, https://www.sciencedirect.com/science/article/abs/pii/S0022399919310323
Sci hub, https://sci-hub.tw/10.1016/j.jpsychores.2020.110154
Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique
https://onlinelibrary.wiley.com/doi/abs/10.1002/msc.1430
(not yet available on sci-hub)
Not a recommendation. Although there has been something published recently by the same people running this trial I think this is something different, albeit related.
https://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=2460&location=&distance=
So, I'm sure many of us are familiar with the idea of establishing an activity baseline, which is where the activity that you are able to manage doesn't trigger PEM.
I would argue though that the concept of a baseline is inherently dangerous for PwME as it implies a position that can then be...
Ungar, N., Rupprecht, F., Steindorf, K., Wiskemann, J., & Sieverding, M. (2019). Worse or even better than expected?—Outcome expectancies and behavioral experiences in the context of physical activity among cancer patients. Journal of Health Psychology. doi: 10.1177/1359105319832345...
Can't actually find this paper, but the abstract has been posted at Bath and I thought it might be of interest, even though they don't really say much:
https://researchportal.bath.ac.uk/en/publications/physical-activity-patterns-among-children-and-adolescents-with-mi
(Edit: Open access...
A study that is of interest because it measured activity levels with an accelerometer.
https://www.ncbi.nlm.nih.gov/pubmed/22032215
Unfortunately the authors did not investigate further to find out the "direction of these relations".
Physiotherapy. 2018 Mar;104(1):129-135. doi: 10.1016/j.physio.2017.07.005. Epub 2017 Aug 4.
Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory.
Thompson DP1, Antcliff D2, Woby SR3...
This article highlights how, for patients with illnesses that don't trigger PEM, even relatively small amounts of activity is beneficial. In my opinion, for patients with ME, this should be turned about, even relatively small amounts of seemingly innocuous activity are potentially harmful...
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