2020

  1. Sly Saint

    Cardiopulmonary Testing in ME/CFS to Improve Diagnostic Accuracy: due to be published Dec 2020

    University of Oslo https://www.clinicaltrials.gov/ct2/show/NCT02970240
  2. Andy

    Azlocillin can be the potential drug candidate against drug-tolerant Borrelia burgdorferi sensu stricto JLB31. 2020, Pothineni et al

    Open access, https://www.nature.com/articles/s41598-020-59600-4
  3. Andy

    Alterations in Fecal Microbiomes and Serum Metabolomes of Fatigued Patients With Quiescent Inflammatory Bowel Diseases, 2020, Borren et al

    Paywall, https://www.cghjournal.org/article/S1542-3565(20)30323-2/pdf Not available via Sci hub at time of posting.
  4. Andy

    Trial By Error: What Now?

    http://www.virology.ws/2020/03/18/trial-by-error-what-now/
  5. Andy

    Complex syndromes of chronic pain, fatigue and cognitive impairment linked to autoimmune dysautonomia & small fiber neuropathy, 2020, Schoenfeld et al

    Paywall, https://www.sciencedirect.com/science/article/abs/pii/S1521661619306680 Not available via Sci hub at time of posting.
  6. Sly Saint

    Application of normalisation process theory in understanding implementation processes in primary care settings in the UK: a systematic review - 2020

    Lisa Huddlestone, Jessica Turner, Helen Eborall, Nicky Hudson, Melanie Davies & Graham Martin https://bmcfampract.biomedcentral.com/articles/10.1186/s12875-020-01107-y?utm_source=other&utm_medium=other&utm_content=null&utm_campaign=BSCN_2_DD01_CN_bmcso_article_paid_XMOL
  7. Andy

    UK - The Young ME Sufferers (TYMES) Trust

    TIME FOR A PROFESSIONAL RETHINK ON ME : Your heart is as important as your head - blog by Jane Colby https://uttingwolffspouts.com/2018/05/12/when-children-dont-get-well/
  8. Sly Saint

    “The real me shining through M.E.”: Visualizing masculinity and identity threat in men with ME/CFS using photovoice and IPA.- Wilde et al 2020

    “The real me shining through M.E.”: Visualizing masculinity and identity threat in men with myalgic encephalomyelitis/chronic fatigue syndrome using photovoice and IPA. In: Psychology of Men & Masculinities https://psycnet.apa.org/record/2019-32617-001
  9. Sly Saint

    Isolation of ultrasmall (filterable) bacteria from patients suffering from ME, and patients and staff of a paediatric hospital- Alharbi - Mar 2020

    https://www.sciencedirect.com/science/article/pii/S1319562X20300887 (is this the study that Karl Morten refers to?)
  10. Andy

    Peripheral endothelial dysfunction in myalgic encephalomyelitis/chronic fatigue syndrome, 2020, Scherbakov et al

    Open access, https://onlinelibrary.wiley.com/doi/full/10.1002/ehf2.12633
  11. Andy

    Action CIND Webinar: "Post-Exertional Malaise: Identifying, Understanding and Preventing", March 24th at 11am PST/2pm EST

    Topic Post-Exertional Malaise: Identifying, Understanding and Preventing Description Post-exertional malaise (PEM) is the hallmark clinical feature of ME/CFS. The webinar will present research that advances our understanding of this important complex of symptoms and introduce a timecourse for...
  12. Andy

    Characterization of Cortisol Dysregulation in Fibromyalgia and Chronic Fatigue Syndromes: A State-Space Approach, 2020, Pednekar et al

    Paywall, https://ieeexplore.ieee.org/document/9025248 Sci hub gives a link but to the wrong paper.
  13. F

    EUROMENE - Final Conference Common strategy on research of ME/CFS will take place on 12 - 13 March, 2020 at Rīga Stradiņš University, Latvia

    @Andy could you do a tweet or something to advertise this? Not sure if the presentations will be available to view on demand or if they will only be available vwhen they are live streamed - I'll ask and post the reply. "EUROMENE Conference in Riga will be available to view online. RSU...
  14. Sly Saint

    Interventions to treat pain in paediatric CFS/ME: a systematic review - Crawley et al Jan 2020

    https://bmjpaedsopen.bmj.com/content/4/1/e000617 full paper pdf: https://bmjpaedsopen.bmj.com/content/bmjpo/4/1/e000617.full.pdf "However, patients who recover appear to have less pain than those who do not recover." :cookie:
  15. Andy

    Imaging Brain Mechanisms of Functional Somatic Syndromes: Potential as a Biomarker?, 2020, Kano et al

    To paraphrase, "We've found changes in the brains of people with "FSS", this then proves that "FSS" is valid category! It certainly doesn't mean that there is an actual disease mechanism at work, oh no!" :banghead: Open access...
  16. Andy

    Cytomegalovirus, Epstein‐Barr Virus and Human Herpesvirus 6 Infections in Patients with [ME/CFS], 2020, Shikova et al

    Paywall, https://onlinelibrary.wiley.com/doi/pdf/10.1002/jmv.25744 Not available via Sci hub at time of posting.
  17. Sly Saint

    Australian DOH: What we’re doing about other chronic conditions (Mar 2020)

    Australian Govt Dept of Health What are other chronic conditions? Some chronic conditions do not fit into larger condition groups such as respiratory, musculoskeletal or cardiovascular conditions. Examples of other chronic conditions we are addressing include: chronic fatigue syndrome (also...
  18. Dolphin

    From IBS to ME – The dysbiotic march hypothesis, 2020, Berstad

    Free full text: https://www.sciencedirect.com/science/article/pii/S0306987720301559
  19. Dolphin

    Self-Management of Chronic Fatigue Syndrome in Adolescents, 2020, Katherine Rowe et al

    Free full text: https://www.intechopen.com/online-first/self-management-of-chronic-fatigue-syndrome-in-adolescents
  20. Sly Saint

    BIOMARKER FOR MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME (ME/CFS) - Yamamoto et al 27 Feb 2020

    https://patentscope.wipo.int/search/en/detail.jsf?docId=WO2020040210&tab=PCTBIBLIO (main paper in japanese)
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