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  1. Sly Saint

    Blog: 'Summary so far of "Something in the blood"' by Simon McGrath

    This thread ends in 2019. Have any of these findings been replicated?
  2. Sly Saint

    UK Faculty of Liaison Psychiatry Conference 2023 May 10,11,12

  3. Sly Saint

    ELUCIDate Study: Bristol University

    ELUCIDate long-term consequences of Childhood Infections using administrative and research Data https://elucidatestudy.blogs.bristol.ac.uk/about-us/ https://elucidatestudy.blogs.bristol.ac.uk/
    • Sly Saint
    • Thread
    • bristol university children crawley elucidate study long covid terence stephenson
    • Replies: 5
    • Forum: Long Covid research
  4. Sly Saint

    Understanding the Lived Experience of Eczema The "Voice of the Patient" Report on the Eczema Patient-Focused Drug Development Meeting 2020

    Experts demand traffic-light labels to show strength of eczema cream full article Experts demand traffic-light labels to show strength of eczema cream (msn.com) see also ITSAN – Support for a global community living with Eczema and TSWS
  5. Sly Saint

    Ethnic minority patients yearn for warmth from health care professionals, research finds

    https://www.westminster.ac.uk/news/ethnic-minority-patients-yearn-for-warmth-from-health-care-professionals-research-finds
  6. Sly Saint

    Long COVID in Children and Youth After Infection or Reinfection with the Omicron Variant: A Prospective Observational Study, 2023 CLoCK consortium

    Abstract To describe the prevalence of long COVID in children infected for the first time (n=332) or reinfected (n=243) with Omicron variant SARS-CoV-2, compared with test-negative children (n=311). 12-16% infected with Omicron met the research definition of long COVID at 3 and 6 months after...
  7. Sly Saint

    Northern Ireland: News from Hope 4 ME & Fibro

  8. Sly Saint

    News from Australia

    @Caroline Struthers
  9. Sly Saint

    UK: Sue Pemberton has retired

    Sue Pemberton: Looking back on a distinguished career as an ME/CFS specialist clinician Sue Pemberton: Looking back on a distinguished career as an ME/CFS specialist clinician | The ME Association
  10. Sly Saint

    Detection of Elevated Level of Tetrahydrobiopterin in Serum Samples of ME/CFS Patients with Orthostatic Intolerance: A Pilot Study 2023,Gottschalk ea

    Abstract Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) is a multisystem chronic illness characterized by severe muscle fatigue, pain, dizziness, and brain fog. Many patients with ME/CFS experience orthostatic intolerance (OI), which is characterized by frequent dizziness...
    • Sly Saint
    • Thread
    • avik roy bh4 gottschalk orthostatic intolerance tetrahydrobiopterin
    • Replies: 15
    • Forum: ME/CFS research
  11. Sly Saint

    UK government report (HoC Committee): Reproducibility and Research Integrity, 10 May 2023

    This is a House of Commons Committee report, with recommendations to government. The Government has two months to respond. Reproducibility and Research Integrity - Science, Innovation and Technology Committee (parliament.uk) full report and related info Reproducibility and Research Integrity -...
  12. Sly Saint

    BBC Radio 4: The Truth Police

    The Truth Police - BBC Sounds
  13. Sly Saint

    The Role of Neurorehabilitation in Post-COVID-19 Syndrome 2023, Diem et al

    the paper cited is the criticism of the new NICE guidelines "Flottorp, S.A.; Brurberg, K.G.; Fink, P.; Knoop, H.; Wyller, V.B.B. New NICE guideline on chronic fatigue syndrome: More ideology than science? Lancet 2022, 399, 611–613. [Google Scholar] [CrossRef] [PubMed]" which cites the...
  14. Sly Saint

    Research news from Bhupesh Prusty

    another twitter on Prustys talk
  15. Sly Saint

    News from Germany

    German Bundestag - Health Committee re-engages with ME/CFS - Breaking Latest News https://www.breakinglatest.news/health/german-bundestag-health-committee-re-engages-with-me-cfs/
  16. Sly Saint

    News from Australia

  17. Sly Saint

    The Role of Neurorehabilitation in Post-COVID-19 Syndrome 2023, Diem et al

    Abstract: Post-COVID-19 syndrome is an ongoing challenge for healthcare systems as well as for society. The clinical picture of post-COVID-19 syndrome is heterogeneous, including fatigue, sleep disturbances, pain, hair loss, and gastrointestinal symptoms such as chronic diarrhea. Neurological...
    • Sly Saint
    • Thread
    • cbt cochrane review get long covid post covid-19 syndrome recover trial rehabilitation
    • Replies: 2
    • Forum: Long Covid research
  18. Sly Saint

    New Zealand: ANZMES

    Merged Special Episode Part One: ME/CFS, disability and health equity - Know M.E. Series
  19. Sly Saint

    News from Scotland

    ME in Scotland: 'I've battled ME my entire adult life - the help is still not there' full article https://news.stv.tv/scotland/me-in-scotland-sufferers-with-chronic-fatigue-condition-left-with-little-support
  20. Sly Saint

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    @Katie - ME/CFS Med Ed welcome
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