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Merged thread Rep. Jamie Raskin announces he has ‘serious but curable form of cancer’ USA Ugh Jamie Raskin has been a long time supporter of MECFS causes https://www.cnn.com/2022/12/28/politics/jamie-raskin-cancer/index.html E.g...

Did you email them?

There is a petition—looks like all nationalities can sign. Treatments include CBT, exercise.

https://www.nature.com/articles/s41584-022-00873-6 Fibromyalgia is characterized by widespread pain, fatigue, sleep disturbances and other symptoms, and has a substantial socioeconomic impact. Current biomedical and psychosocial treatments are unsatisfactory for many patients, and treatment...

But there is a limit to the happiness we can find in maintaining what is generally accepted as a healthy or beautiful body: If you are fortunate enough to live a long life, your body will break down. And it is not only age that can have its way with our bodies. Illness, accident or disability...

Thread

So there are three programs—only the innovation investigator program is limited to the 3 universities—the other 2 are open to all. e.g. Current faculty at all career stages are encouraged to apply, and Arc is excited about the opportunity to support scientists at early career stages (~10 years...

Please circulate!!!! https://arcinstitute.org/jobs/faculty-and-fellows Arc Investigator Programs As part of our mission to understand and treat complex human diseases, the Arc Institute is launching searches across three investigator programs. All Arc investigators receive unrestricted...

Moved from the Long covid in the media thread. For the full title and abstract of the published paper see post #9. Potential New Treatment for “Brain Fog” in Long COVID Patients, 2022, Yale School of Medicine

Features Ilene Ruhoy and EDS https://wapo.st/3iVKGqd

But was sushi administered along with the wasabi? Important! Imagine the improvement if co-administered with high quality toro!

Yes to this thread. Which is why I’m not a fan of statements like PEM is the most devastating/important criteria for MECFS. Which is why I’m not the biggest fan of putting people on treadmills to get at the cause of MECFS. Also a subset of patients don’t seem to be affected by brain fog...

But the purpose of doing a clinical trial is to find out whether this is true!! Also if ~25% ( or less) of patients can get a huge permanent (non-pooping out) boost from Abilify then that is a huge and very important finding. There are people on Abilify for 3+ years with no poop out.

Schizophrenia, Not MECFS, but interesting. It is, perhaps, no surprise that Dr. Torrey became an outlier in his profession. He was a sophomore at Princeton when his mother called to tell him something was wrong with his sister, Rhoda, who had just turned 18 and was due to start college in the...

Actually not sure if married or engaged, but a COI in either case. https://keywiki.org/Natalie_Shure

Cort Johnson https://www.healthrising.org/blog/2022/12/09/avindra-nath-chronic-fatigue-long-covid-interview/ Wish that they would submit the draft articles as preprints. Summary Three years after the pandemic interrupted any attempts to get back to DC and see Avindra Nath I was back. (This...

https://thegauntlet.substack.com/p/why-is-the-business-press-outreporting Why is the business press outreporting the left on COVID? Discusses the New Republic article.

Zeynep vs. Natalie