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Source: Journal of the American Medical Association (JAMA) Vol 320, #8, p 750 Date: August 28, 2018 URL: https://jamanetwork.com/journals/jama/article-abstract/2698504 Chronic Fatigue Care -------------------- Bridget Kuehn, MSJ A new CDC website aims to improve the diagnosis and care of...

Received this just now: Station: YouTube / SMCI Date: August 30, 2018 WebTV: Item: Webinar Lisette Duarte

Maybe also worth looking at https://www.s4me.info/threads/teenager-with-me’s-life-has-been-transformed-by-a-robot-that-helps-her-learn.4033/#post-72295 Source: BBC News Date: August 30, 2018 Author: Padraig Belton URL: https://www.bbc.com/news/business-45332710 'My robot makes me feel like...

Source: Solve ME/CFS Initiative Date: September 13, 2018 Time: 15:00-16:00 UTC URL: https://register.gotowebinar.com/register/7863577812392103170 Appropriately and Accurately Assessing Symptoms in Patients with ME ---------------------------------------------------------- Join Leonard A...

Sorry but I can't read everything so am not sure if this has been posted: Source: Medical Research Council Date: August 28, 2018 URL: https://mrc.ukri.org/news/browse/criticism-of-the-pace-trial/ Criticism of the PACE trial --------------------------- The Times recently reported on a letter...

Hope this isn't already posted: Source: Love Belfast Date: August 27, 2018 URL: https://lovebelfast.co.uk/fibromyalgia-conference-northern-ireland/ Major ME and fibromyalgia conference set for September International speakers for Belfast event...

I'm afraid that isn't the case. They use animals in research. Those of us who disagree with such use, including myself who has studied the subject intensively, will not give to such research, as it is worthless. I will not say more here as my brain has packed up, but direct you to my Phoenix...

:eek: You've done well to still be alive then!

I've put that I get hearing loss, but for all I know it might be due to one of the other things. I haven't had it for a few months.

Is it quite right to say this?

I've sent the info to my MP too (Scott Mann).

I've signed it (I think!).

Source: Eventbrite Date: August 2018 URL: https://www.eventbrite.co.uk/e/management-of-mecfs-adult-paediatric-first-do-no-harm-tickets-46131336068 Management of ME/CFS: Adult & Paediatric - 'First Do No Harm.' ---------------------------------------------------------- Mon 17 September 2018...

Most of us stay young-looking? Or it is just (most of?) the women? Do we have a poll on this? (OK, it may look trivial, but maybe it isn't?) (Sorry about all the question marks!)

I wonder what they consider "frequently talking about symptoms”? Isn't that what a patient is supposed to talk about with a health professional?

This is a mistake, I think: "There are around 200,000 sufferers in the UK." Shouldn't it be 250,000?

So do I, but typical ones of us in the Western world don't get enough in the winter (who go outside and are not covered with suntan lotion all the time!). Although they say we have enough to cope until the spring, I think we may lose vitamins and minerals faster than other people.

I don't think this is necessarily exceptional - I got a 2 in my first Open University degree with ME (might have got a 1/distinction if circumstances hadn't been so dire), and a distinction-grade Masters - both in science. I took my later exams at home too. It's gone out of the window in the...

The person who posted this originally has added this link: "The full text of Chapter 25 can be found here, https://www.dropbox.com/s/54j6ya7u9vsik8u/Textbook of Psychosomatic Medicine and Consultation-Liaison Psychiatry - Chp 25 - Chronic Fatigue and Fibromyalgia Syndromes - Michael Sharpe &...

Maybe they don't want to comment until the correction's been made?