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I don't know if that's true. When especially fatigued and having to push to do things, I sometimes stutter and sometimes have tourette like symptoms. The moments this happens are PEM and push related for me. Also I have a good friend who stutters. he has a neurological condition that affects...

Thank you for all that went into this, I appreciate the thought and effort of putting together something like this. I was excited to see it because I'm going to be seeing a new primary care doctor and was hoping this would be a good thing to share with them and with others. I'm limited, so...

:thumbup::thumbup: :)

Thanks Hutan for posting the link and yours and everyone's work on it! I took a quick look at it and the links. I liked what little I saw. I do want to read it better when I'm feeling better and have the energy to use for it. Great topic. Not to derail this thread. Perhaps someday when I...

Same here. Pee a lot when I go if not on right dose of medication. Diabetes Insipidus is different than regular Diabetes. It wouldn't be tested for in the same way as Diabetes. Your doctor would have you do specific tests for Diabetes Insipidus. I don't know that most doctors would even...

Hi, @Jessie 107. For me with those symptoms, it ended up I had Diabetes Insipidus. It's not the same as Diabetes except the frequent urination. It's of the pituitary gland. My doctor says it's rare to have DI, yet I know of a few people with ME that have it. There's threads about it...

Thank you for working on and doing these guidances @Hutan :thumbsup: Is there a link to the guidance you did for doctors and nurses? Would love to see it and the one you're working on now too when it's done.

Thanks Trish. I was talking about the guidelines in general. For covid, and most likely for others, there's layers and layers of them. Sorry I shouldn't have assumed. Thanks Peter! Thanks, Hutan. Not able to look at that link at this time, yet assumed since most other pages that I've...

So much I want to write yet can't now. Living in a dangerous situation, guidelines for COVID that exist are making it worst and there are guidelines regarding Single Room Occupancy (SRO) buildings and various other kinds of shared housing that need to exist. I finally found something, it's the...

So frustrated! Can't go into more now though want to. Years of CDC's ME/CFS site frustrations and now COVID guideline frustrations. So dangerous and affecting lives. Who makes and writes the CDC guidelines and who updates them?

I found this FB group extremely helpful. I haven't started LDN yet, was looking into LDN a year ago and had lots of questions with particulars to me. I'm cautiously optimistic and hoping for good results when I can start it. The lowest dose people start with I usually start even lower than...

Same. Which makes it very hard to breath through face masks I wear when going to get water in the kitchen in my building. :( Using very thin cloth ones, cause can't breath with a better filtering one.

$37,025, 92% Raised toward our $40,000 Goal :) 4 DAYS LEFT Thank you everyone! And David!! https://crowdfund.berkeley.edu/project/20159

6 days left. $33,045, 82% Raised toward our $40,000 Goal 393 Donors. Thank you everyone and thank you David! https://crowdfund.berkeley.edu/project/20159

8 days left. $30,103, 75% Raised toward our $40,000 Goal Thank you everyone that contributed. :) https://crowdfund.berkeley.edu/project/20159

$27,070, 67% raised toward our $40,000 Goal 11 Days Left. https://crowdfund.berkeley.edu/project/20159

Does anyone know is the lather or suds necessary when laundering face masks? I'll need to wash mine by hand and the only detergent I can use doesn't make suds. Washing the masks with hand soap isn't an option. My fragrance free one that I can use leaves a scent residue that I would react...

$19,747, 49% raised towards $40,000 goal. Getting there. 16 days to go. Thank you everyone who's donated. https://crowdfund.berkeley.edu/project/20159t

Thank you for the replies and videos! :) Here's one another sweet person shared with me tooo. All you need is a T-shirt to make this mask. No scissors or anything else needed. Can always add other layers of cloth or other suggested things around your nose and mouth to make it a thicker filter.

$10,387, 25% of target. https://crowdfund.berkeley.edu/project/20159