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  1. J

    I was in pain for years. After I was repeatedly told I just had ‘bad periods’, a giant cyst was found on my ovary. By Holly Bourne. The Times (London)

    (Paywalled) https://www.thetimes.co.uk/article/endometriosis-i-was-in-pain-for-years-why-did-no-one-help-gt0wtltcq
  2. J

    A bivalent Epstein-Barr virus vaccine induces neutralizing antibodies that block infection and confer immunity in humanized mice, 2022, Wei et al

    https://www.science.org/doi/10.1126/scitranslmed.abf3685?utm_source=rss&utm_medium=rss&utm_campaign=rss-stm
  3. J

    Targeted A-to-G base editing in human mitochondrial DNA with programmable deaminases, 2022, Cho et al

    Direct link to PDF: https://www.cell.com/cell/pdf/S0092-8674(22)00389-0.pdf
  4. J

    Review in The Sunday Times (London) of book on history of psychiatry

    Review by Sebastian Faulks of Desperate Remedies: Psychiatry and the Mysteries of Mental Illness by Andrew Scull. This in the review stood out to me: Review (paywalled)...
  5. J

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Phil Hammond on BBC Radio 4 (merged thread) I had the radio on in the background while I was doing things in the kitchen and caught bits of this programme. There is a passage where he talks about the work he does. I thought it was interesting that, if I recall correctly, he described it as for...
  6. J

    England footballer forced to take break because of fatigue

    Not sure if this is actually related to ME, but may be of interest. https://www.bbc.co.uk/sport/football/61123213
  7. J

    A general thread on the PACE trial!

    That was one of my requests. I haven't been well enough to appeal but will try this year. It's timed out but I am going to ask if the tribunal will hear it because I have had Covid (twice) and been unwell. I started that request years ago and have already been through one appeal for it.
  8. J

    Covid-19 vaccines and vaccinations

    I haven't looked at the study the anti-vaxxers quote so cannot say for sure, but the players are a low-risk group and have been vaccinated, which is known to protect against serious illness, so this would seem unlikely, and hardly a good response to an anti-vaxxer. The FIFA figure being used as...
  9. J

    Covid-19 vaccines and vaccinations

    Good (paywalled) article by Tom Whipple addressing claims made by antivaxxers. https://www.thetimes.co.uk/article/how-to-argue-with-a-covid-antivaxxer-rdvwfs8gt Summary: Claim: Vaccines have caused mass deaths and disability. Response: Vaccinate (almost) whole population and report anything...
  10. J

    Fiona Watt, Chief Executive of MRC (UK), apologizes for bullying

    MRC is now part of UKRI. On UKRI website: https://www.ukri.org/news/ukri-issues-statement-on-bullying-complaint/ News article (paywalled): https://www.thetimes.co.uk/article/scientist-who-took-on-bullies-says-shes-sorry-for-bullying-7pstqn0qr Watt, for those who had forgotten, has been a...
  11. J

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Another excellent video. Thanks to Natalie and Josh and all who helped.
  12. J

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Or indeed, as Crawley showed, if you use the same kind of trial design, the Lightning Process.
  13. J

    Evie Toombes case: patients who suffer harm when doctors don't follow best practice

    This case may seem remote from ME, but it may have general implications for patients who suffer harm when doctors do not follow best practice. From (£) https://www.thetimes.co.uk/article/evie-toombes-showjumper-with-spina-bifida-wins-millions-after-suing-gp-over-her-birth-h66cns30g
  14. J

    The Times: My Mother, Munchausen’s and Me by Helen Naylor review — the tyrant in the sick bed

    I think there may be some truth in this. We have spent all the time we have been ill facing doubt and questioning, so we have, understandably, circled the wagons. It is something of an article of faith among us (and actually a rule on this forum) not to question others' diagnosis. Several times...
  15. J

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Remember, (when it suits them) they're not making any assumptions about the illness or whether it is or is not pathological. They're just rehabilitating patients.
  16. J

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Yeah, as with ME, there will be many announcements of breakthroughs and biomarkers, etc, which turn out to be red herrings. I remember in 1987 going to St Mary's, Paddington, for the ME blood test announced with great fanfare on BBC news. But I was young then...
  17. J

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    After Montgomery's letter to the committee, I sent the attached response to him. He passed it on to the HRA who replied as follows: I have copied the letter (attached) to a few people but nothing came of it. Misleading parliament is a very serious matter. I would note in particular in this...
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