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General Advocacy Discussions

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  1. Sly Saint

    Trial By Error: A Long-Time Patient Reflects on a Stay-At-Home World 2 April 2020 By David Tuller, DrPH

    Sly Saint, Apr 3, 2020
    Replies:
    7
    Views:
    2,106
    TiredSam
    Apr 12, 2020
  2. JenB

    Treatment of ME patients in ERs and Hospitals

    JenB, Jul 27, 2018 ... 2
    Replies:
    34
    Views:
    4,257
    JenB
    Sep 20, 2018
  3. ScottTriGuy

    Top reasons ME research is an opportunity

    ScottTriGuy, Oct 5, 2018 ... 2
    Replies:
    27
    Views:
    2,744
    ScottTriGuy
    Oct 17, 2018
  4. RuthT

    Thunderclap on Thursday re TEDX Bristol

    RuthT, Oct 30, 2017
    Replies:
    14
    Views:
    2,483
    RuthT
    Oct 31, 2017
  5. NelliePledge

    The Steph show channel 4 U.K.

    NelliePledge, Mar 29, 2020
    Replies:
    12
    Views:
    1,973
    MEMarge
    Mar 31, 2020
  6. Samuel

    The order of magnitude is off — ME/CFS is a human rights issue

    Samuel, Feb 20, 2022
    Replies:
    8
    Views:
    1,475
    Trish
    Apr 26, 2022
  7. InitialConditions

    The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

    InitialConditions, Feb 3, 2022
    Replies:
    4
    Views:
    1,607
    NelliePledge
    Dec 3, 2022
  8. Dx Revision Watch

    The future and funding of UK ME/CFS charities

    Dx Revision Watch, Sep 12, 2019 ... 2 3
    Replies:
    50
    Views:
    3,448
    Mike Dean
    Dec 6, 2020
  9. Hoopoe

    The EU wants to know what research objectives are important

    Hoopoe, Jul 8, 2019
    Replies:
    2
    Views:
    923
    Hoopoe
    Jul 8, 2019
  10. Sly Saint

    The Brain Charity - website content on ME/CFS

    Sly Saint, Jun 17, 2019
    Replies:
    4
    Views:
    1,500
    Ash
    Sep 11, 2023
  11. daftasabrush

    The actual views of "ME activists" are...

    daftasabrush, Mar 27, 2019
    Replies:
    11
    Views:
    1,519
    daftasabrush
    Apr 16, 2019
  12. AllenJB

    The $100 million challenge

    AllenJB, Nov 3, 2019
    Replies:
    14
    Views:
    1,143
    rvallee
    Nov 4, 2019
  13. Robert 1973

    Suggestion for S4ME thread of ME testimonies

    Robert 1973, Jan 23, 2021 ... 2
    Replies:
    23
    Views:
    3,100
    Invisible Woman
    Mar 20, 2021
  14. Barry

    Suggesting an additional advocacy direction

    Barry, Oct 9, 2018 ... 2
    Replies:
    26
    Views:
    2,986
    Snow Leopard
    Oct 20, 2018
  15. Jaybee00

    Stop yelling out the window/ALS fundraising

    Jaybee00, Mar 26, 2020
    Replies:
    0
    Views:
    816
    Jaybee00
    Mar 26, 2020
  16. Luther Blissett

    Stop rewarding websites with donotlink.it

    Luther Blissett, Nov 2, 2018
    Replies:
    1
    Views:
    2,268
    svetoslav80
    Nov 3, 2018
  17. Sly Saint

    Steve Topple - to stop writing for the Canary

    Sly Saint, Feb 11, 2019
    Replies:
    1
    Views:
    1,065
    Andy
    Feb 11, 2019
  18. Andy

    Solve ME/CFS Initiative at the Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting in Washington, D.C., 2019

    Andy, Sep 29, 2019
    Replies:
    2
    Views:
    1,247
    ahimsa
    Oct 3, 2019
  19. ahimsa

    Solve M.E. Presents: Legislative Cafe Chat on Thursday, Jan. 21

    ahimsa, Jan 16, 2021
    Replies:
    2
    Views:
    1,056
    ahimsa
    Jan 23, 2021
  20. Hoopoe

    Should Science for ME produce its own ME guidelines?

    Hoopoe, Jun 2, 2021
    Replies:
    2
    Views:
    760
    Hoopoe
    Jun 3, 2021
Showing threads 41 to 60 of 204

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