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General Advocacy Discussions

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  1. JohnTheJack
    Sticky

    What research do you want to see? (study ideas)

    JohnTheJack, Jul 7, 2018 ... 5 6 7
    Replies:
    135
    Views:
    13,505
    forestglip
    Sep 4, 2024
  2. Simon M

    Published poems by Veronica Ashenhurst, who has Severe ME

    Simon M, Oct 4, 2021 ... 2 3
    Replies:
    45
    Views:
    8,724
    Simon M
    Sep 10, 2024
  3. Cybergreen91

    2024: Looking for scientific minds for live Twitter Space discussion

    Cybergreen91, Aug 31, 2024
    Replies:
    1
    Views:
    257
    Jonathan Edwards
    Aug 31, 2024
  4. Jaybee00

    Writers needed to debunk pseudoscience—paid

    Jaybee00, Aug 11, 2024
    Replies:
    4
    Views:
    388
    Ash
    Aug 11, 2024
  5. Jaybee00

    Melinda Gates resigns from Gates Foundation

    Jaybee00, May 13, 2024 ... 2
    Replies:
    22
    Views:
    1,670
    Jaybee00
    Jul 28, 2024
  6. bobbler

    Deadline midnight tonight: Review into "Duty of Candour" on gov.uk

    bobbler, May 29, 2024
    Replies:
    2
    Views:
    468
    rvallee
    May 29, 2024
  7. Haveyoutriedyoga

    Communicating the inquiry and new training

    Haveyoutriedyoga, May 22, 2024
    Replies:
    0
    Views:
    495
    Haveyoutriedyoga
    May 22, 2024
  8. JellyBabyKid

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    JellyBabyKid, Apr 20, 2024 ... 2
    Replies:
    30
    Views:
    1,401
    Sean
    May 20, 2024
  9. Dolphin

    Fundraising for ME/CFS research - opportunities, problems

    Dolphin, Aug 14, 2019 ... 3 4 5
    Replies:
    80
    Views:
    8,143
    Dolphin
    May 18, 2024
  10. Jaybee00

    New MECFS rap song by artist Ren!

    Jaybee00, May 10, 2024
    Replies:
    15
    Views:
    1,178
    Aaron
    May 17, 2024
  11. EndME

    Project ideas for DecodeME data

    EndME, May 17, 2024
    Replies:
    4
    Views:
    562
    EndME
    May 17, 2024
  12. FMMM1

    cognitive dissonance - radio 4 program

    FMMM1, Mar 20, 2024
    Replies:
    0
    Views:
    599
    FMMM1
    Mar 20, 2024
  13. adrienne

    FOIA denied CFSAC dissolution 2018/56 responsive records

    adrienne, Jan 5, 2024
    Replies:
    6
    Views:
    924
    adrienne
    Jan 7, 2024
  14. Suffolkres

    Healthwatch England - Resource for Campaign Assistance

    Suffolkres, Jan 16, 2019
    Replies:
    17
    Views:
    2,227
    bobbler
    Dec 17, 2023
  15. bobbler

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    bobbler, Mar 11, 2023
    Replies:
    11
    Views:
    1,762
    bobbler
    Nov 20, 2023
  16. bobbler

    Influence and Participation toolkit?

    bobbler, Nov 17, 2023
    Replies:
    4
    Views:
    871
    Hutan
    Nov 18, 2023
  17. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3
    Replies:
    57
    Views:
    7,221
    bobbler
    Nov 11, 2023
  18. Hutan

    Responsible ME/CFS journalism - how to report on treatments?

    Hutan, Oct 21, 2023 ... 2
    Replies:
    20
    Views:
    2,426
    Sean
    Oct 30, 2023
  19. Tom Kindlon

    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit.

    Tom Kindlon, Oct 28, 2023
    Replies:
    4
    Views:
    1,044
    Tom Kindlon
    Oct 28, 2023
  20. Sly Saint

    Encyclopedia Britannica website: entry on CFS

    Sly Saint, Jan 10, 2022
    Replies:
    1
    Views:
    1,423
    Sly Saint
    Oct 15, 2023
  21. Dx Revision Watch

    ME Association: iterations of objectives between 2021 and 2023

    Dx Revision Watch, Sep 15, 2023
    Replies:
    15
    Views:
    1,376
    Sean
    Sep 18, 2023
Showing threads 1 to 20 of 210

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