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Open Worldwide: Long COVID Studies Database

Discussion in 'Recruitment into current ME/CFS research studies' started by wingate, May 25, 2024.

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  1. wingate

    wingate Senior Member (Voting Rights)

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    173
    Link: https://longcovidstudies.net/

    Article about the project in The Sick Times here: https://thesicktimes.org/2024/03/26...ical-trial-this-new-project-helps-track-them/
     
    wingate, May 25, 2024
    #1
    Peter Trewhitt, John Mac, Yann04 and 2 others like this.
  2. Trish

    Trish Moderator Staff Member

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    53,248
    Location:
    UK
    Studies listed in the UK look useless. Most are variations of exercises for breathing or fitness, there's also psychology, acupuncture, HRV biofeedback, and cognitive rehab.

    Edit: I have corrected this. When I tried the website I didn't realise the filter was set to select the UK. There are lots of studies for other countries too.
     
    Trish, May 25, 2024
    #2
    Dolphin, RedFox, Sean and 3 others like this.
  3. Yann04

    Yann04 Senior Member (Voting Rights)

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    426
    Location:
    Switzerland (Romandie)
    Yep. Cool project to have a database though. I just wish there was a way to inform people about enrolling in potentially harmful stufies.
     
    Yann04, May 25, 2024
    #3
    Dolphin, Hutan, RedFox and 4 others like this.
  4. Yann04

    Yann04 Senior Member (Voting Rights)

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    426
    Location:
    Switzerland (Romandie)
    If it reassures you the studies look slightly more biomedical/observational here in Switzerland. Although most seem to exclude people with an ME diagnosis.

    One tries to measure disease course through exercise capacity (if taking an exercise test every few weeks aint a confounding factor I don’t know what is). I bet that study will say we have very good prognosis while having a very high dropout rate…
     
    Last edited: May 25, 2024
    Yann04, May 25, 2024
    #4
    Hutan, RedFox, Sean and 5 others like this.

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