Vincent Deary, "CFS and the facts of life - an article for clinicians"

"The problem may well be that some of our [CBT] treatments are too evidence based." Of course, that's obviously it.

In part, this article seems to be some sob story about how CBT practitioners are misunderstood and maligned by ungrateful patients.

"It would seem that for some sufferers, the key ingredient of best practice CBT - collaboration - is missing." And guess whose fault that is - yep, it's us patients failing to collaborate with the CBT voodoo doctors that is the reason that it's got such a poor reputation.

https://www.kcl.ac.uk/ioppn/depts/pm/research/cfs/health/index.aspx

 

Their "evidence based" approach appears to have completely overlooked that the actual evidence (not in quotes) in the real world (i.e. not in poorly constructed, heavily biased and quite frankly, IMO, fraudulent studies) strongly suggests that they are wrong, and that demanding, by means of coercive CBT, that ME patients exercise, in a manner dictated by GET, when one of the core symptoms of ME is exertion intolerance, is totally batshit crazy.

 

Many of the problems of CFS could be avoided by the provision of secure asylums.

Not for the patients.

 

Proposed subtitle: How to Paternalistically Manipulate Your Patients for Their Own Good

I'm appalled that a university is publishing this abusive, denialist, & unscientific bullshit on their website.

 

Can I respectfully suggest a title amendment @Valentijn ?

Proposed subtitle: How to Paternalistically Manipulate Your Patients for Their Your Own Good

 

My mother's going to be relieved when I tell her it's not all her fault it's my husband's.

edit - typo

 

When was this written? Can anyone be so dumb as to write this in 2017-18?

If I twittered:

Dear Dr Deary,
You really do seemed to have missed the point. The 'evidence base' for CBT is valueless, as is now well documented. It is not the lack of empathy the patients are concerned about, it is the complete lack of understanding of either human nature or scientific method that worries them. The homeopaths at least do not make people feel small.

Best wishes
Jo Edwards
UCL

 

I hope that one of these days, one of them is going to be confronted by a knowledgable speaker about their terrible methodology in front of a running camera, in a setting where critical thought and dissent is permitted.

 

Harassment you mean??

 

I think that happened with David Tuller asking a question of Esther Crawley, so we already know the outcome: security personnel are summoned to remove the knowledgeable speaker

 

It's old-ish. Pretty sure it's from before 2011, but I don't know when it first appeared.

 

I think it's pretty old too. However, the fact that it's still up there indicates that they believe the information for is still current.

That or they are not keeping their web site updated - which seems unlikely.

Eta - crossed post with @Trish . She types quick!

 

How come they never come along anyone with ME that does some low-level exercise (which obviously doesn't help)? One reason might be they don't exercise themselves or ignore all those who exercise? Is it maybe them with the exercise phobia?

Really...

 

I think that they recently moved it to a new address, so that's another indication that they still stand by it.

 

Yep, disgusting stuff.