Discussion in 'BioMedical ME/CFS News' started by Indigophoton, Jun 19, 2018.
A new video by @Graham, the first in a series of three, explaining the PACE trial (about 8 mins),
loving this @Graham will be posting on facebook groups/other forums as I think this could be accessible to the folks who 'dont do politics'
"A vexatious patient production"
@Graham, once again, bringin' it
Although I read lots of stuff about improvement criteria, your video made me really realise how lax they were.
Has Carol Monaghan got a copy ?
After watching Graham's YouTube video (and several sessions of CBT), I was persuaded to change my rating from a thumbs-down to a thumbs-up.
If anyone's interested in a poll and discussion on what your SF-36 physical functioning score is and what it means, if anything, I've put one up today in the members only area here.
Excellent, thanks @Graham!
This is soooo good! Thank you, @Graham. (Love the two paws, btw.)
A work of art, @Graham.
You are even better than Ian McKellen in the aeroplane safety video.
How did we miss that it was so simple?
You must have been a very good maths teacher.
Thanks all for the kind words. It's hard work trying to shear off all the complications and just to focus on the raw essentials in a language that most can follow. I'm glad you think it is working.
I'm hoping that the forthcoming Westminster Hall debate may trigger more interest in the issues. I'm currently part-way through video 2, which is going to cover the "recovery" fiasco. Then in the third I hope to 'encourage' folk to take a more active part in bringing the issues into public notice.
Getting the lighting right so that the viewer isn't dazzled by the reflected glare off the top of my head was a real challenge. I thought of having George on my lap to distract them from it, but he's too old to sit there for long.
It is absolutely brilliant, @Graham. I actually thought the lighting was a touch of genius. There is a bright spot on the background to the left of you which somehow takes the piss out of all these arty farty lighting engineers. (Not that I am suggesting that any other aspect of your video takes the piss out of anyone else of course but ...) It sort of says 'No this is not a slick video trying to persuade you of something, it is Graham talking sense. And you only noticed this bright spot because you wanted to know how he did it so brilliantly and the answer isn't in the bright spots or even the fetching T shirt. It is Graham talking sense. And his sense of timing is worthy of Dave Allen.
We really ought to have (blue heart) buttons available...... for
"A vexatious patient production" and
Edit......my blue heart emoji got lost......
I thought this was excellent. The main issue stripped bare and explained with simple clarity.
Kudos to you @Graham - you must have been a great teacher.
I' m looking forward to the next installment.
Can someone link this video in to the twitter threads involving @Mike Godwin, Wessely and Sharpe? I'd love to be a fly on the wall and watch Sharpe, Wessely, Chalder, White and co. watch Graham quietly and clearly demolishing their £5 million trial.
I wonder whether Carol Monaghan can show it at the debate on Thursday. I think it would be a brilliant way to show the MP's (most of whom aren't scientists and assume medical trials involve high level science) just what a pile of crap the PACE trial is. Is anyone in touch with her?
We didn't miss it. Various people here have been saying for a while that CBT/GET are designed to alter perception of one's health and thus questionnaire answering behaviour. I don't remember who expressed it first.
Graham did an excellent job expressing it in simpler terms though, and showing that you don't even need any sort of therapy. The bias is so easy to introduce.
Yes, I got it from Esther12. But lets give Graham his due, this is so succinct, yet gives every detail.
@Graham, having carefully examined the evidence, I think @Jonathan Edwards has made you the exception to the rule by "liking" your video (either that or he momentarily forgot the rule in his awe...)
Separate names with a comma.