Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

Discussion in 'General ME/CFS news' started by ahimsa, Oct 5, 2020.

  1. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Code:
    https://www.youtube.com/watch?v=2hrPnK1OWXQ

    https://www.youtube.com/watch?v=2hrPnK1OWXQ


     
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  2. ahimsa

    ahimsa Senior Member (Voting Rights)

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  3. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    Tom who?
     
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  4. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    He's a quiet guy, you probably have never heard of him, he never promotes himself/his social media channels at all :laugh:
     
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  5. Trish

    Trish Moderator Staff Member

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    Great interview, @Tom Kindlon. You come across really well, and I just love that Irish accent.
     
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  6. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    It was good to put a voice to your writings -- thanks for sharing....and the work you do @Tom Kindlon
     
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  7. Forbin

    Forbin Senior Member (Voting Rights)

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    Around 6:00, Llewellyn King says, "Trinity is the great University of Ireland..." and the computer-generated subtitles say "Trinity is the great University of Iowa..." :)


    [To be fair, the audio is a bit garbled at that point.]
     
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  8. ahimsa

    ahimsa Senior Member (Voting Rights)

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    LOL! And this is why auto-generated subtitles are often called CRAP-tions instead of captions.

    When it's a minor error it's no big deal but some of the errors are pretty bad.

    I can hear pretty well. I can usually figure out what's being said (although sometimes accents throw me off). But I often read transcripts instead because it takes more energy for me to watch a video than to read the transcript.

    However, people who are deaf or hard of hearing need captions or transcripts that have been edited/corrected by a human being.
     
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  9. dreampop

    dreampop Senior Member (Voting Rights)

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    I've always wondered who is Llewellyn King and who did he become involved in me/cfs?

    edit: corrected my mispelling of his first name
     
    Last edited: Oct 8, 2020
  10. Forbin

    Forbin Senior Member (Voting Rights)

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    So far as I know, King became interested in ME because his friend and colleague, retired Wall Street analyst Deborah Waroff, has been afflicted by it since 1989. Together they created a YouTube series called "ME/CFS ALERT" which is devoted to investigating the disease from many different angles.
     
    Last edited: Oct 7, 2020
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  11. Peter

    Peter Senior Member (Voting Rights)

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    Nice interview and thanks for all hard work. I can relate very much to the development of disease, from hanging on for a long time, to the completely other spectrum today.

    Anecdotally Dublin will always be a special place, cause that was in the early confusing days of ME. Just about 15 years ago we were some friends going over to Dublin to visit a friend, planned long time ago. I do remember that I flew over one day before the rest of the guys, so that I could rest in advance and maybe take part in some activities. Spent much of the time in the hotel. But I did manage to see the fabulous Trinity and the Guinness museum. Even a little hurling!

    So much for fear/avoidance, bad motivation and all such nonsense and speculation as part of ME? Guess everyone with same trajectory of disease wish they actually were a whole lot more fearful and did the right things back in the days. Unfortunately that was not possible with little knowledge and no sound advice.
     
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  12. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Thanks for all the feedback. It’s difficult putting yourself out there. I’m sure many have restrained themselves given the critical comments many incl. I often make in the ME world!

    There have been quite a few comments generally about my accent: you have it all wrong, you all have accents, I’m the only person in the world who doesn’t have an accent :laugh:
     
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  13. dreampop

    dreampop Senior Member (Voting Rights)

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    Makes total sense. He has a wonderful voice for pbs, I may watch some of his videos on his website.

    @Tom Kindlon It was a lovely piece, and it does take courage to put yourself out there. I think you handled everything with class and clarity.
     
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  14. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  15. Mariaba

    Mariaba New Member

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    Lovely interview Tom. I liked the informal conversational tone, letting your personality shine through. I hope there's a part 2.
     
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  16. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Thanks, that's nice to hear.

    The possibility was never brought up by Llewellyn or any of his team, so there doesn't seem to be any plans at present.
     
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  17. Trish

    Trish Moderator Staff Member

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    Hi @Tom Kindlon, I was surprised to see the reference to Co-Cure as I'd never heard of it. I did a google search and found this website:
    https://www.co-cure.org/
    I can't find anywhere on the site any names of writers. I wonder whether you still have any involvement in it.
     
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  18. Kitty

    Kitty Senior Member (Voting Rights)

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    I've been receiving their email updates ever since I was diagnosed in 1999 – for years it was one of very few sources of news about research and developments in ME.
     
  19. Sean

    Sean Moderator Staff Member

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    Thanks, Tom & Mr King. :thumbup:

    Yes, we can tell that because nearly every third of your fine words is perfectly clear.

    *he says in a broad north Australian drawl*

    :p
     
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  20. Trish

    Trish Moderator Staff Member

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    That's good to hear.

    That seems to make the website I found rather puzzling. There are very few articles on it, and while it has one or two recent developments briefly mentioned, there is nothing much at all about research. I wondered whether this was a different organisation. The website I found seems a bit over simplified and even, in some places, misleading.
     
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