USA: Report of the Medical Student Section Reference Committee : American Medical Association (November 2020)

Sly Saint

Sly Saint

Senior Member (Voting Rights)
Not quite sure what this is but all references to Myalgic Encephalomyelitis/Chronic fatigue syndrome are to be removed (can't cut and paste relevant bits that show redactions p41/42):

below is one of them.
The third Resolve of Resolution 009 be deleted: 37
38
RESOLVED, That our AMA will collaborate with other 39 medical and educational entities to promote education 40 of post-viral syndromes, including but not limited to 41 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 42 (ME/CFS), to minimize the harm and disability current 43 and future patients face.
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VRC testimony was universally supportive of the spirit of Resolution 009. There were 15 concerns about specifically listing Myalgic Encephalomyelitis and Chronic Fatigue 16 Syndrome (ME/CFS), as this might narrow advocacy related to other post-viral 17 syndromes, including those which affect COVID-19 “long haulers.” Your Reference 18 Committee’s proposed amendments aim to streamline the resolution and remove the 19 specific references to ME/CFS. Your Reference Committee noted possible ambiguity in 20 the term “long hauler” and that other terms exist for this new syndrome (long COVID, post-21 COVID syndrome, chronic COVID syndrome, among others) and concerns that the term 22 commonly used may have changed by June 2021. However, we believe it is appropriate 23 to use the term “long hauler” as this is currently included in the vernacular around the 24 disease. We found the third Resolve to be redundant and added a reference to medical 25 students to the second Resolve in order to combine the asks of the second and third 26 Resolves and further consolidate the language of this resolution
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https://www.ama-assn.org/system/files/2020-10/nov2020-mss-ref-com-report.pdf

@Wilhelmina Jenkins
 
Typical. Do nothing. Declare "job done". I guess the meaning of "universally supportive of" now means "didn't do jack squat and never intended to".

That "concern" is especially horse shit. What advocacy related to other post-viral syndromes? The ones you also do nothing about? What does "might narrow" even mean? Are we making decisions based entirely on speculation now? The resolution literally mentions "other post-viral syndromes" so how does that even? What? Is the meaning of words?

Total dysfunction. Like headless chickens.
 
Sly Saint said:
... all references to Myalgic Encephalomyelitis/Chronic fatigue syndrome are to be removed (can't cut and paste relevant bits that show redactions p41/42):
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Thankyou. I don't think the AMA is so befuddled as not to notice its befuddling language. But a show of befuddlement pertains upon any mention of ME/CFS, let alone "post-viral syndromes".

Here are these amendments - the additions were underlined, and the redactions crossed out:

RESOLVED,

That our AMA
will encourage Congress to enact
advocate for
legislation to provide funding for research, prevention, control, and treatment
of post viral syndromes
and long-term sequalae (sic)
associated with COVID-19,
including
those experienced by long haulers;
, but not limited to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS);

and be it further RESOLVED,

That our AMA
will support
provide
physicians
and medical students with
in providing
accurate and current information on post-viral syndromes
and long-term sequelae
associated with COVID-19,
including
those experienced by long-haulers.
but not limited to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS);

and be it further RESOLVED,

That our AMA will collaborate with other medical and educational entities to promote education of post-viral syndromes, including but not limited to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to minimize the harm and disability current and future patients face

1. I had not crossed out the "will" in the 1st amended resolve, which took out the "will"

2. I had underlined the "included" in the 2nd amended resolve, but it was in the original
 
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bicentennial said:
Thankyou. I don't think the AMA is so befuddled as not to notice its befuddling language. But a show of befuddlement pertains upon any mention of ME/CFS, let alone "post-viral syndromes".

Here are these amendments - the additions were underlined, and the redactions crossed out:

RESOLVED,

That our AMA will
encourage Congress to enact
advocate for
legislation to provide funding for research, prevention, control, and treatment
of post viral syndromes
and long-term sequalae (sic)
associated with COVID-19,
including
those experienced by long haulers;
, but not limited to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS);

and be it further RESOLVED,

That our AMA
will support
provide
physicians
and medical students with
in providing
accurate and current information on post-viral syndromes
and long-term sequelae
associated with COVID-19,
including those experienced by long-haulers.
but not limited to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS);

and be it further RESOLVED,

That our AMA will collaborate with other medical and educational entities to promote education of post-viral syndromes, including but not limited to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to minimize the harm and disability current and future patients face
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Is this the complete edit

because if so what I'm reading is that they struck through what was 'for ME/CFS' explicitly in those 3 places and replaced with 'long-haulers'

I'm aware that minutes need to both be short and are done by whoever is in that admin post (which might be a physician/academic 'doing that role for that meeting' not necessarily an admin member of staff)

But doing this made it ambiguous that ME/CFS was explicitly included (and does that relate to funding anywhere?)

and if there were differences in what was at that point being reccommended by those who were experts in ME/CFS, and the current 'pack' were for 'long-haulers' then that means a change of proposed content ie even if it does include ME/CFS if it doesn't explicitly require separate info checking that what was said on ME/CFS was the right thing and it was to apply to ME/CFS not just what 'long-hauler' got interpreted as by each person reading it then you could have 'long covid' info being substituted in a document that was originally about ME/CFS?


at its worst possible interpretation or outcome (given the easiest to complete things tend to be those focused on) it looks like a policy originally intended to be about sorting out ME/CFS stuff has been hi-jacked into now being one about 'covid sequealae' and 'long-haulers' and thereby could exclude non-covid ME/CFS and particularly those who had it long term and have been through all the horrible damaging years of GET-CBT etc?
 
bobbler said:
struck through what was 'for ME/CFS' explicitly in those 3 places and replaced with 'long-haulers' ... does that relate to funding anywhere? ... ...

it doesn't explicitly require separate info checking that what was said on ME/CFS was the right thing ... you could have 'long covid' info being substituted in a document that was originally about ME/CFS?
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I will highlight the original bits showing the original intention to:

* encourage funds for Covid-associated post-viral syndromes including ME/CFS

* support information on all post-viral syndromes including ME/CFS

* network safe-guarding education of all post-viral syndromes including ME/CFS

Here is the original proposal for this resolution:

=================

RESOLVED, That our AMA will encourage Congress to enact legislation to provide funding for research, prevention, control, and treatment of post viral syndromes associated with COVID-19, including, but not limited to Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS);

and be it further RESOLVED, That our AMA will support physicians in providing accurate and current information on post-viral syndromes, including but not limited to Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS);

and be it further RESOLVED, That our AMA will collaborate with other medical and educational entities to promote education of post-viral syndromes, including but not limited to Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), to minimize the harm and disability current and future patients face.

bobbler said:
at its worst ... a policy originally intended to be about sorting out ME/CFS stuff has been hi-jacked into now being one about 'covid sequealae' and 'long-haulers'

and thereby could exclude non-covid ME/CFS and particularly those who had it long term and have been through all the horrible damaging years of GET-CBT etc?
Click to expand...
 
bicentennial said:
Also the minutes made a significant mistake when minuting an alteration in the 2nd resolve.
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(35)RESOLUTION 009

– CALL FOR INCREASED FUNDING AND RESEARCH FOR POST VIRAL SYNDROMES

RECOMMENDATION B:

The second Resolve of Resolution 009 be amended by addition and deletion as follows:

RESOLVED, That our AMA will support provide physicians and medical students with in providing accurate and current information on post-viral syndromes and long-term sequelae associated with COVID-19, including those experienced by long haulers. but not limited to Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS);

bobbler said:
minutes need to .. be short and are done by whoever ... is in that admin post (...might be a physician/academic '... not necessarily an admin member of staff) ... made it ambiguous that ME/CFS was explicitly included
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This minute-taker did not underline this addition: "associated with COVID-19", managing to make it look like the original resolve was:

RESOLVED, That our AMA will support physicians in providing accurate and current information on post-viral syndromes associated with COVID-19, including but not limited to Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS);

But the original resolve was:

RESOLVED, That our AMA will support physicians in providing accurate and current information on post-viral syndromes, including but not limited to Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS);
 
The complete, substituted version became:

==============

(35) RESOLUTION 009

CALL FOR INCREASED FUNDING AND RESEARCH FOR POST VIRAL SYNDROMES

RESOLVED, That our AMA advocate for legislation to provide funding for research, prevention, control, and treatment of post viral syndromes and long-term sequalae (sic) associated with COVID-19, including
those experienced by long haulers; and be it further

RESOLVED, That our AMA provide physicians and medical students with accurate and current information on post-viral syndromes and long-term sequelae associated with COVID-19, including those experienced by long haulers.

===============

But say no more about educating ignorant and opinionated regressives on the "harm and disability" we still face, alongsde the next crop.

Testing the AMA 5 years later: is it altogether biomedical or psychosocial preaching the powers of mind made bodily manifest? It cannot be both. On highly subsidised contracts.

Mmmhmm why do I suspect the circuitous definition that got plastered everywhere as if all our symptoms are an experience?

Does one "experience" a pimple?

I suspect that "experience" is half-way to "if you say so".

The last "bio-medical" theory I heard is that a virus does something to the brain. That is medically explained. But the consequence is not medically explained. It is a complex of experienced symptoms. It must be mentally explained.

And if almost all cases look intractable then there will be no more research, education, training, and clinic contracts for "specialists" to rehabilitate such skewed thought, behaviour and alienation.

So the mild and moderate cases cannot be intractable because they just must need all of the ongoing subsidised rehab contracts. Only the more severe cases can be intractable

Beam me up, Scotty
 
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