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USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

Discussion in 'General ME/CFS News' started by Sly Saint, Sep 28, 2018.

  1. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    I can confirm there was no CFS topic discussion inserted into the morning session.


    Afternoon session has just started. Live stream (or catch up) here:



    Currently discussing Dravet syndrome from Diagnosis Topics Part 1.
     
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  2. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Day 2 of the March 5-6 NCHS/CDC ICD-10-CM Coordination and Maintenance Committee meeting has now ended.

    There was no discussion topic for CFS inserted into either the morning or afternoon session as a late agenda item.


    https://www.cdc.gov/nchs/icd/icd10cm_maintenance.htm#Meetings

    Proposals Part 1: Diagnosis Topics:


    https://www.cdc.gov/nchs/data/icd/Topic-packet-March-2019-Part-1.pdf

    Proposals Part 2: Diagnosis Topics:

    https://www.cdc.gov/nchs/data/icd/Topic-packet-March-2019-Part-2.pdf



    So, either:

    a) a decision has been made on the CFS proposals presented at the September 2018 meeting; or
    b) no decision has been made on the proposals presented at the September meeting and the topic has been left hanging; or
    c) no decision has been made and proposals are intended to be re-presented, potentially with revisions, for further discussion at the September 2019 meeting or at a subsequent meeting.

    The next meeting of the NCHS/CDC C & M Committee will be September 10-11, 2019.
     
    Last edited: Mar 6, 2019
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  3. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    @JaimeS

    Hi Jaimes, a few weeks ago, I left a comment in response to the reports on SNOMED CT and ICD-10-CM in this Sept-Oct 2018 Research Roundup report (published November 15, 2018):

    https://www.meaction.net/2018/11/15/sept-oct-research-roundup/


    There was no confirmation that my comment had successfully uploaded and was awaiting moderation. As the comment has not appeared, I have posted again, today, this time using a different browser.

    In case this does not upload, either, I am appending a copy of my comment in this thread as it concerns ICD-10-CM and the September 2018 NCHS/CDC ICD-10-CM Coordination and Maintenance Committee meeting proposals.

    (I've greyed out the comments that relate to SNOMED CT since these are not relevant to this thread.)

    As I've said in my comment, I am concerned that the heading "ICD coding changes on the horizon" may give some readers the impression that the proposals presented at the September 2018 C & M Committee meeting are a done deal.

    Whereas, the outcome of these proposals has not been publicly disclosed and it is premature to state that there are "ICD coding changes on the horizon."

    When you've got a minute, I'd be pleased if you could let me know whether my comment uploaded today has been received and whether the clarifications that I have suggested could be incorporated into the text of the reports.

    Thanks, Suzy


    As submitted on 8 May:


    Thank you for your kind acknowledgement of my advocacy work. I hope you won't mind my pointing out the following clarifications:

    In your report on SNOMED CT and the change of parent category for CFS, the implementation timeline in this paragraph isn't quite correct:

    You've said:

    "This recategorization was approved in July and published this October. This same reclassification was approved and published in the US SNOMED the month before (September 2018); and the Canadians incorporated the new classification as of October 30, 2018."

    SNOMED International's terminology managers approved the request to relocate Chronic fatigue syndrome under the parent category, Disorder of nervous system, in February 2018.

    This change was first implemented in the July 2018 release of SNOMED CT's International Edition.

    This change for CFS in the International Edition was subsequently incorporated into the US, Belgium,
    Danish and Netherlands editions in September 2018, and in the Canadian and UK editions in October 2018. (All national editions have now absorbed this change.)


    In the section on ICD, where you have:

    ICD coding changes on the horizon

    Changes in classification have been proposed within the ICD, or the International Classification of Diseases etc.
    I would suggest that it needs to be clarified at the very beginning of this section that the proposed changes you have listed refer to proposals for the US specific, ICD-10-CM, only, and not to the WHO's ICD-10 or ICD-11. Also that the content of the US's ICD-10-CM is the responsibility of NCHS/CDC.

    These proposals were presented and discussed at the September 2018 meeting of the NCHS/CDC ICD-10-CM Coordination and Maintenance Committee, followed by a public comment period.

    Since there has been no public confirmation from NCHS/CDC that these proposals have been approved by the Director of NCHS, it is premature and potentially misleading to head this section of your report "ICD coding changes on the horizon".

    I'd suggest editing the headline "ICD coding changes on the horizon" to reflect that these were proposals presented for discussion and public comment and that no NCHS/CDC decision on these proposals has been published.

    Suzy Chapman​
     
    Last edited: May 8, 2019
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  4. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    The FY 2020 Release of the files for ICD-10-CM is expected to be posted by CDC on this page in June:

    https://www.cdc.gov/nchs/icd/icd10cm.htm

    The 2020 Release ICD-10-CM codes are to be used from October 1, 2019 through September 30, 2020 and replace the FY 2019 release.
     
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  5. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Next meeting of the NCHS/CDC C & M Committee:

    https://www.cdc.gov/nchs/icd/icd10cm_maintenance.htm

    ICD-10-CM Coordination and Maintenance Committee


    Upcoming Meetings


    https://www.cdc.gov/nchs/icd/icd10cm_maintenance.htm#Meetings

    September 10-11, 2019

    June 14, 2019 is the deadline for requestors: Those members of the public requesting that topics be discussed at the September 10-11, 2019 ICD-10 Coordination and Maintenance Committee meeting must have their requests submitted to CMS for procedures and NCHS for diagnoses.
     
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  6. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    I will confirm when CDC has posted the ICD-10-CM Tabular List and Index for FY 2020, which are due to be posted this month, that no new code for SEID has been added to Chapter 6.
     
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  7. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    See also:

    https://www.federalregister.gov/doc...immune-disorders-and-nutritional-deficiencies

    18 June 2019: Proposed changes to the definition of chronic fatigue syndrome (CFS) under § 4.88a and the name change for DC 6354.
    See: SUPPLEMENTARY INFORMATION.


    Edited to add: See Sly Saint's Post #20 in this thread for extracts from the Federal Register document above:

    A Proposed Rule by the Veterans Affairs Department on 02/05/2019 (US format - UK format 05/02/2019)

    https://www.s4me.info/threads/a-pro...format-uk-format-05-02-2019.8056/#post-177725
     
    Last edited: Jun 19, 2019
  8. Medfeb

    Medfeb Senior Member (Voting Rights)

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    Just to clarify - this is the notice that a proposed change to a) adopt Fukuda as diagnostic criteria for CFS and b) change the name to "SEID/CFS" has been rejected by the Veterans' Administration. The proposed change was not for the ICD-10-CM but for a system used by the US Veterans' Administration to evaluate disability.
     
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Location:
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    see
    https://www.s4me.info/threads/a-pro...format-uk-format-05-02-2019.8056/#post-177725
     
  10. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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  11. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Note that unlike the Veterans Affairs public comment exercise, the NHCS/CDC ICD-10-CM C & M Committee does not publish responses or summarize responses, nor does it publish rationales for decisions made following consideration of the proposals presented at its twice yearly meetings.
     
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  12. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    PDFs for FY ICD-10-CM Tabular List and Index

    The FY 2020 ICD-10-CM Index has also been checked and there has been no addition of Systemic exertion intolerance disease as an Index term only.

    Not all the FY 2020 files are available yet on the CDC site:

    https://www.cdc.gov/nchs/icd/icd10cm.htm#FY 2020 release of ICD-10-CM

    The Preface; Guidelines; Conversion Table and some other files have yet to be added.


    The Tabular List and Index are always large PDFs and can be quite difficult to locate amongst the 30 odd files in various file formats within the Zip file or Directory. For ease of access, I usually place copies of the Tabular List and the Index in my Dx Revision Watch files area. Note this will be the last year that I shall be doing this.

    Here are the files (if you are reposting links for the PDFs please warn phone users and those using slow connections of the file size):


    FY 2020 ICD-10-CM Tabular List [28 MB]:

    https://dxrevisionwatch.files.wordpress.com/2019/06/icd10cm_tabular_2020.pdf

    or Shortlink:

    https://wp.me/aKrrB-4Wu


    FY 2020 ICD-10-CM Index [40 MB]:

    https://dxrevisionwatch.files.wordpress.com/2019/06/icd10cm_index_2020.pdf

    or Shortlink:

    https://wp.me/aKrrB-4Wt
     
    Last edited: Jun 23, 2019
  13. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Well...since no-one else has posted this, I guess I'll have to...

    Upcoming NCHS/CDC ICD-10-CM Coordination and Maintenance Committee Meeting:


    https://www.cdc.gov/nchs/icd/icd10cm_maintenance.htm

    ICD-10-CM Coordination and Maintenance Committee Meeting, September 10-11

    Tentative Agenda:
    https://cdc.gov/nchs/data/icd/tentative_agenda_sept_2019_final.pdf

    ICD-10-CM diagnosis topics

    Abnormal Neonatal Screening
    Pediatric Feeding Disorder
    Sickle Cell Disease
    X-Linked Myotubular Myopathy
    ICD-10-CM Addendum


    "This updated list of tentative diagnosis agenda topics is not final. The final topics material will be available electronically from the NCHS and CMS web sites prior to the meeting."



    The full Topic Packet for ICD-10-CM (diagnosis codes) and ICD-10-PHC (procedure codes) is usually posted one day before Day One of the meeting but there is currently no item on the Tentative Agenda for discussion of proposals for CFS or SEID.

    When the full Topic Packet is available the day before the meeting (I suggest monitoring for this from Friday, 6 September) would someone like to take responsibility for posting a copy in this thread plus links for the live videocasts for Day One and Day Two.
     
  14. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Today and Wednesday:

    U.S. NCHS/CDC meeting:

    ICD-10-CM Coordination and Maintenance Committee
    Meeting September 10-11, 2019


    Proposals Part 1: https://www.cdc.gov/nchs/data/icd/Topic-packet-Sept-2019-Part1.pdf
    Proposals Part 2: https://www.cdc.gov/nchs/data/icd/Topic-packet-Sept-2019-Part2.pdf

    ---------

    Note: No discussion or proposals in either Topic Packet 1 or 2 for changes to existing ICD-10-CM codes:

    R53.82 CFS NOS;
    G93.3: PVFS, BME;

    nor any proposals for addition of SEID either as a unique code, or as an inclusion under an existing code.
     
    Last edited: Sep 10, 2019
  15. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Next ICD-10-CM Coordination and Maintenance Committee meeting: March 17-18, 2020

    Deadline for submission for March 17-18, 2020 C & M meeting:


    Deadline for requestors: members of the public requesting topics to be discussed at the March 17-18, 2020 ICD-10 Coordination and Maintenance Committee meeting must have requests submitted to CMS or procedures and NCHS for diagnoses by December 6, 2019.

    Tentative agenda for the Diagnosis part of the March 17-18, 2020 ICD-10 Coordination and Maintenance Committee meeting to be posted on NCHS homepage in February: https://www.cdc.gov/nchs/icd/icd10cm_maintenance.htm

    Full Topic Packets are released a day or two prior to Day One of the meeting.

    For full comment and submission schedule dates: https://www.cdc.gov/nchs/data/icd/Topic-packet-Sept-2019-Part1.pdf


    [Edited to correct "January" to "February"]
     
    Last edited: Sep 11, 2019

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