USA: ME/CFS Action for Florida - Feb 12th Deadline!

[Andy]

Florida Congressmen Gus Bilirakis and Darren Soto are leading the whole Florida delegation in Congress to sign a letter to National Institutes of Health (NIH) Director, Dr. Francis Collins, urging more urgent investment for research on ME/CFS.

We need Florida patients, caregivers, and loved ones to take action!

The Florida delegation is ready to lead after years of constituents, like you, raising their voices and because of advocacy and research results from Dr. Nancy Klimas and Nova Southeastern University. This action can set the precedent to have other states step up too.

The deadline for co-sponsorship is 5:00pm ET on Tuesday February 12th!

https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00078

 

[ahimsa]

Do we have any forum members who live in Florida?

This action looks worthwhile since there's already a letter that's going to be sent to the NIH. The letter sponsors are just looking to get more signatures.

I find sending email to government officials is a rewarding form of activism. It's not as effective as meeting in person but this is so much easier.

And since there is a template then it's not as difficult as coming up with an entire email from scratch.

Calling is also an option for those who are able to talk on the phone.

 

[Emily Taylor]

Thank you for sharing this action, Andy! For Florida folks - here's a link to all the phone numbers of all the Florida congressional delegation:
https://floridahousedc.org/congressional-delegation/

 

[Emily Taylor]

Good news! Deadline has been extended to COB tomorrow. We've got 16 signed on already! More than halfway for the complete delegation!

 

[Andy]

From a Solve email

Solve M.E. teamed up with local Florida advocates to launch a lightning advocacy action with huge success this week. Congressmen Gus Bilirakis and Darren Soto agreed to lead a Florida Congressional delegation to sign a letter to National Institutes of Health (NIH) Director, Dr. Francis Collins, urging more immediate action for research on ME/CFS. In just three business days, the team secured the support of all 27 representatives from Florida state!

Read the letter on our website at: http://go.solvecfs.org/e/192652/IH-ME-CFS-Support-02-13-20-pdf/23m7jt/146310826?h=r6osmcvHflZn4oCvrwHi8LRCc1zu2dpJNUmZnGEDDIA and don’t forget to send a thank you to @RepGusBilirakis and @RepDarrenSoto on Twitter for leading the charge.

Congratulations to all of Florida advocates who made this action a success!

 

[rvallee]

So that's basically told twice over, once from the budget and this extra, telling the NIH to do more.