USA: Massachusetts ME/CFS & FM Association news

Discussion in 'News from organisations' started by Jaybee00, Oct 22, 2021.

  1. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Location:
    Oregon, USA
    Yeah, it didn't look that great to me, either. I didn't include this item in our weekly news brief.
     
  2. Sean

    Sean Moderator Staff Member

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    Location:
    Australia
    They are told that they are suffering from stress; that they are depressed or anxious. The implication is that their condition is psychosomatic; meaning that their emotions are manifesting as physical symptoms. This is a very invalidating experience that adds insult to injury.

    It is a lot worse than that. It is adding serious injury to serious injury.
     
  3. Dolphin

    Dolphin Senior Member (Voting Rights)

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    https://www.massmecfs.org/news-events/66-sunday-conversations/877-sunday-conversations-feb2024

    Massachusetts ME / CFS & FM Association

    Sunday Conversation for February:

    Small Group Discussions

    "Living with co-morbidities or other serious illnesses"

    Sunday, February 18, 2024, 4 p.m. Eastern Time [9 PM in Great Britain & Ireland)

    Please join us for small group discussions on living with ME/CFS and
    common co-morbidities or other serious illnesses. We will divide into
    groups based on age/stage of life: Young Adult, Adult, Seniors/Aging,
    or Ally/Caregiver, wherever you think you fit!

    This topic was suggested by several respondents in our recent survey!

    Register now!

    **Registration closes one hour before the event begins, so register now!**



    COMING UP!
    “Co-morbidity” is a fancy name for a diagnosable condition that can
    exist side-by-side with another diagnosable condition.

    People diagnosed with ME/CFS, Fibromyalgia, or Long COVID commonly
    have other diagnosable conditions as well. It is important to
    recognize these, because having additional diagnoses may allow your
    health care provider to prescribe additional treatments, and insurance
    may cover certain tests or treatments for these conditions.

    In our Sunday Conversations series for 2024, we hope to include
    programs describing specific co-morbid conditions that are common in
    ME/CFS, Fibromyalgia, and Long COVID. You may have already heard of,
    or been diagnosed with, some of these co-morbidities. We hope the
    information in the next several Sunday Conversations will be useful to
    you!

    March 17 - Dysautonomia

    April 21 - Mold 101

    To be continued...
     
  4. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,650
    Location:
    Oregon, USA
    Next up in the Sunday Conversations series:

    “Dysautonomias 101: More Than Just POTS”

    Sunday, March 17, 2024, 4 p.m. Eastern Time

    https://www.massmecfs.org/news-events/66-sunday-conversations/881-sunday-conversations-mar2024
    Registration required. A recording will be available after the event.

    Find the time in your time zone here:
    https://www.timeanddate.com/worldcl...ore+Than+Just+POTS&iso=20240317T16&p1=43&ah=1
     
    Sean, Amw66, Dolphin and 2 others like this.
  5. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,144
    The slides and a recording are now available:
    https://www.massmecfs.org/news-events/66-sunday-conversations/881-sunday-conversations-mar2024

     
    ahimsa, Sean and Peter Trewhitt like this.

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