1. Read the 'News in Brief' post for w/c 16th Sept by clicking here, Guest.
    Dismiss Notice

Updates on status of ICD-11 and changes to other classification and terminology systems

Discussion in 'General ME/CFS News' started by Dx Revision Watch, May 4, 2018.

  1. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK


    "...term Bodily Distress Disorder, which is included in the beta version of the ICD-11 (24). However, this term may be abandoned in the final version of ICD-11 (25)."


    There is no evidence in the paper at Reference (25) - the Gureje & Reed (2016) paper: Bodily distress disorder in ICD-11: problems and prospects, that the term "BDD" may be abandoned in the final version of ICD-11, nor in any of the papers published by the S3DWG workgroup since 2012, nor in any other WHO/ICD Revision sources.

    The term, "somatoform autonomous dysfunction" mentioned in this paper should be "Somatoform autonomic dysfunction" (ICD-10 F45.3).


    My proposal of March 1, 2017, for Deletion of Bodily distress disorder, referenced in this paper at (26), has yet to be processed, even though it had met the March 30, 2017 proposal deadline.

    My proposal of March 28, 2017, for insertion of exclusions under BDD for PVFS, BME and CFS, which had also met the March 30, 2017 deadline also remains unprocessed.
     
    Melanie, alktipping, Inara and 7 others like this.
  2. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    A Frozen release of the Beta draft was made on May 18 for quality assurance processes. This has not been posted on the Beta platform's Frozen Release page but can be found here:

    https://icd.who.int/browse11_2018-05-18/l-m/en

    I do not think this is the Beta freeze referred to by WHO's Dr John Grove scheduled for the end of May, in preparation for release of an initial version of ICD-11 in June.

    No date for the June release has been announced yet by WHO.
     
    Last edited: Jun 5, 2018
    Melanie, alktipping, Inara and 3 others like this.
  3. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    Extract:

    "The former DSM-IV somatoform disorder section mostly focused on the criterion that physical symptoms should medically unexplained (17), which left diagnostic and treatment difficulties unresolved (18–20). This changed with the introduction of the DSM-5 Somatic Symptom Disorders (SSD) in 2013. In DSM-5 the nature of the physical symptoms, i.e., being medically unexplained or not, is no longer a criterion. Instead, DSM-5 focuses on the way a patient emotionally, cognitively and behaviorally copes with the physical symptoms (21). According to the SSD classification, patients suffering from chronic medical conditions can also be diagnosed and receive treatment. This in its own right poses new diagnostic and treatment challenges (22, 23).

    The proposed ICD-11 beta draft classification of Bodily Distress Disorders (BDD) (24, 25) may differ from SSD (19). This has led to controversy and a proposal to delete BDD from the ICD-11 beta version (26) as it seems hard to discern from Bodily Distress Syndromes (27) that captures many of functional and somatoform disorders (28) and shows similarities with the ICD-10 classification of somatoform autonomous dysfunction (29). Similarly to functional disorders (FD), BDD mainly focuses on medically unexplained physical symptoms for its classification, rather than on their psychological conundrums (30). In order to cover the multitude of aspects described above, in this study, we will use the combined term of Somatic Symptom Disorders (SSD), Bodily Distress Disorders (BDD) and functional disorders (FD), as was done in an earlier study of the EURONET-SOMA network (31)..."


    The highlighted passage presents an incorrect interpretation of the ICD-11 core edition's conceptualization and characterization of Bodily distress disorder.

    One of the reasons for proposing deletion of BDD from ICD-11 is the similarity between the name proposed for the ICD-11 core version construct (Bodily distress disorder) and the name of the differently conceptualized, Fink et al (2010) construct (Bodily distress syndrome).

    There is a history of these two names being used interchangeably for the Fink et al (2010) construct and this has been the case since at least 2007. Five or six examples of researchers and practitioners using these two terms indiscriminately are provided in my rationale as evidence.

    As set out in progress and position papers published by the S3DWG work group and reiterated in my rationale, the focus of the ICD-11 core version's conceptualization of BDD is emotional, cognitive and behavioral responses. The nature of the physical symptoms, i.e., being medically unexplained or not, is no longer a criterion. Like the SSD classification, patients suffering from chronic medical conditions can also be diagnosed with BDD: "If another health condition is causing or contributing to the symptoms, the degree of attention is clearly excessive in relation to its nature and progression."

    Somatic symptom disorder is listed under Synonyms to BDD and Fink, himself, acknowledges that ICD-11's BDD is close to DSM-5's SSD [1].

    Evidently the authors are insufficiently familiar with the papers of the S3DWG work group and the characterization of ICD-11's Bodily distress disorder and its three severity specifiers: Mild bodily distress disorder, Moderate bodily distress disorder, and Severe bodily distress disorder.

    Ironically, the paper referenced at (30) is

    Rief W, Isaac M. The future of somatoform disorders: somatic symptom disorder, bodily distress disorder or functional syndromes? Curr Opin Psychiatry (2014) 27:315–9. doi: 10.1097/YCO.0000000000000089

    in which, Rief and Isaac have used the term "Bodily distress disorder" throughout their paper when what they are discussing is the Fink et al (2007, 2010) BDS construct.

    Which rather nicely proves my point.



    1 Syndromes of bodily distress or functional somatic syndromes - Where are we heading. Lecture on the occasion of receiving the Alison Creed award 2017. Fink, Per Journal of Psychosomatic Research, Volume 97, 127 - 130
     
    Melanie, alktipping, Inara and 5 others like this.
  4. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    Some months ago, I flagged up this paper on Twitter and on another forum:

    Syndromes of bodily distress or functional somatic syndromes - Where are we heading. Lecture on the occasion of receiving the Alison Creed award 2017. Fink, Per. Journal of Psychosomatic Research, Volume 97,127 - 130

    At the time, the paper wasn't behind a paywall, but now only the first page is viewable at:

    https://www.jpsychores.com/article/S0022-3999(17)30445-2/fulltext


    The slides that accompanied this lecture have now turned up and can be downloaded from:

    http://www.eapm2017.com/images/site/abstracts/PLENARY_Prof_FINK.pdf

    I have attempted to attach a copy to this post, but the file (3.9MB) is apparently too large an attachment for this forum.


    Here are a few of the slides:

    [​IMG]

    [​IMG]

    [​IMG]

    [​IMG]


    ICD-11 PC (aka ICD-11 PHC) proposed Bodily Stress Syndrome compared with ICD-11 core edition's Bodily distress disorder

    [​IMG]



    All slides here:

    http://www.eapm2017.com/images/site/abstracts/PLENARY_Prof_FINK.pdf


    Edited to add additional information:

    Since February 2012, the construct selected to replace most of the ICD-10 F45.x Somatoform disorders and F48.0 Neurasthenia for the ICD-11 core edition has been Bodily distress disorder (with Somatic symptom disorder under Synonyms to BDD).

    In July 2017, Concept: SCTID: 723916001 Bodily distress disorder (disorder) was added to SNOMED CT International Edition by the team working on the SNOMED CT and ICD-11 MMS Mapping Project, as an exact match for ICD-11 core edition term, Bodily distress disorder.

    Somatic symptom disorder
    is not currently included in any edition of SNOMED CT.
    Bodily distress syndrome (Fink et al 2007, 2010) is not currently included in any edition of SNOMED CT.


    Note: The ICD-11 Beta draft displays brief Description texts for: 6C20 Bodily distress disorder and its three Severity specifiers: 6C20.0 Mild bodily distress disorder; 6C20.1 Moderate bodily distress disorder; 6C20.2 Severe bodily distress disorder.

    The companion publication, ICD-11 Clinical descriptions and diagnostic guidelines for Mental and Behavioural Disorders (the equivalent of the ICD-10 "Blue Book") is in the process of being drafted. This publication expands on the disorder descriptions in the Foundation and MMS Linearization and includes: "Essential (Required) Features, Boundaries with Other Disorders and Normality, and Additional Features sections. Additional sections (e.g., Culture-Related Features)".

    The drafts for this companion publication have been made available to clinical professionals for review and comment via the The Global Clinical Practice Network: https://gcp.network/en/icd-11-guidelines

    The draft of this publication is not available to public stakeholders and I have not been able to review the expanded draft texts for the category Bodily distress disorder and its three coded for Severity specifiers.

    It is currently unclear whether the ICD-11 Clinical descriptions and diagnostic guidelines for Mental and Behavioural Disorders has been finalized and will be ready to publish at the point at which the ICD-11 MMS is released, in June, or whether publication will be delayed until later this year, or next year.
     
    Last edited: Jun 7, 2018
    Melanie, Joh, alktipping and 5 others like this.
  5. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    2,447
    Likes Received:
    12,390
    @Russell
     
    Melanie likes this.
  6. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    2,447
    Likes Received:
    12,390
    @Russell Fleming , @Action for M.E.
    Again clarification re charities' stances, proposed actions and opinions on this would be appreciated.
    This looks more and more like a perfect storm
     
    Melanie, alktipping, Inara and 2 others like this.
  7. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    June 2018 paper:

    Ziebold C, Goldberg DP, Reed GM et al (2018). Dimensional analysis of depressive, anxious and somatic symptoms presented by primary care patients and their relationship with ICD-11 PHC proposed diagnoses. Psychological Medicine 1–8. https://doi.org/10.1017/S0033291718001381

    Open Access PDF

    Received: 13 January 2018
    Revised: 27 March 2018
    Accepted: 25 April 2018


    This June 2018 study used data from the ICD-11 PHC field trials for the proposed ICD-11 PHC constructs 1) Anxious Depression; and 2) Bodily stress syndrome (BSS).

    The 2013 Master Field Trial Protocol had used:

    "...at least three persistent somatic, medically unexplained symptoms in the adult patient, or views the patient as highly preoccupied with persistent but unfounded worry about potential health problems. Either condition must cause distress to the patient, and must negatively affect the patient’s functioning (e.g., social functioning, abilities of daily living, work performance)."

    "Patients with conditions such as fibromyalgia, irritable bowel syndrome and effort syndrome
    [sic] ARE eligible for this part of the study, as are patients without any such label for their symptoms."


    Ed: Note that in the papers published on behalf of the external PCCG work group that has been making recommendations for the revision of the ICD-10 PHC, there have been no specific exclusions for FM, IBS or CFS under the various iterations of proposed BSS diagnostic guidelines. Nor have these been listed under "Differential diagnoses". Note also, that in the early emerging proposals editorials, use of the term, BDS, was being proposed with criteria adapted from Fink et al (2010) BDS. Later the term, BSS, was proposed and the proposed criteria further modified for the 2013 field trials.

    --------------

    Open Access PDF

    "The purpose of this study was to investigate whether the depressive, anxiety and somatic symptoms proposed for BSS and AD in the ICD-11 PHC could be used in PHC as reliable indicators of these disorders. With this aim, we tested the fit and reliability of dimensional models of ICD-11 PHC depressive, anxious and somatic symptoms presented by participants of the ICD-11 PHC field studies."

    "Participants

    "PCPs were instructed by local investigators to refer adult patients (older than 18 years) seen in a routine PHC practice for participation in the study. The inclusion criterion for part 2 was the presence of at least three somatic symptoms not accounted for by a known physical pathology, as rated by the PCP on a checklist that included 29 somatic symptoms under study for the proposed ICD-11 PHC diagnosis of BSS. PCPs could write in additional symptoms not listed, which also counted toward the minimum of three. (See section on Measures, below.)

    "Additionally, current diagnostic constructs for somatoform disorder, somatization disorder and medically unexplained symptoms have generated controversy regarding their clinical utility and validity. Arguments against these constructs include the following: (a) a lack of construct and predictive validity; (b) poor discriminant validity due to high comorbidity with mood and anxiety disorders and their overlap with functional somatic syndromes (irritable bowel syndrome, chronic fatigue syndrome and fibromyalgia); (c) particularly in the case of medically unexplained symptoms, the fact that the construct is based on the exclusion of medical etiologies rather than on positive biopsychosocial features; and (d) these constructs do not facilitate a positive therapeutic dialogue between clinicians and patients because they are unhelpful in describing symptoms and their causes and imply that patients exaggerate or imagine their symptoms (Kroenke,
    2007; Kroenke et al., 2007; Tófoli et al., 2011).

    "BSS is a disorder proposed for the ICD-11 PHC to replace the ‘Medically Unexplained Symptoms’* diagnosis in the previous version of the classifications for PHC (ICD-10 PHC) (Lam et al., 2013). The change is based in part on studies carried out by Fink et al. (2007), who examined the latent structure of somatic symptoms not explained by known physical pathology. BSS provides a single overall category for different ‘functional’ and somatoform disorders that could be exacerbated by stress rather than being distinct diseases of non-cerebral pathology. For the ICD-11 PHC, the BSS defines the presentation of three or more somatic symptoms that are associated with distress and/or interference with daily functioning and are not explained by a known physical pathology (Goldberg et al., 2016)."



    *Ed: F45 Unexplained somatic complaints in the 1996 publication, Diagnostic and Management Guidelines for Mental Disorders in Primary Care: ICD-10 Chapter V Primary Care Version. 1996 (aka ICD-10-PHC, ICD-10 PHC, ICD-10-PC, ICD-10 PC).


    Ed: Notes:


    The ICD-10 PHC is not a WHO mandatory classification system. The publication was designed as a clinical tool written in simpler language to assist non-mental health specialists, especially primary care practitioners and non medically trained health workers, in diagnosis and management of 25 common mental disorders. It was also intended for use in education, training, low resource settings and in low- to middle-income countries. It provided a model for national adaptation and allowed for other changes as appropriate. It was intended to be consistent with the core ICD-10 classification (ie. each of the 25 diagnostic categories had a corresponding or roughly corresponding category in the ICD-10 Tabular List).

    The draft descriptive texts, characterizations and criteria for the proposed ICD-11 PHC are not available for public scrutiny. Therefore the draft proposals for the ICD-11 PHC, as they currently stand, are not available.

    In April, before the Countess of Mar terminated our collaboration, I advised that it was essential that any discussions or strategies around proposals for the ICD-11 PHC are conducted in the context of the WHO's projected timeline for the publication's completion and release; are based on the most recently proposed criteria and benefit from the context of the most recently drafted full disorder description texts, rather than rely on papers from early 2017, or earlier, and without the full draft description and management guidelines content.

    I also advised that it should be established whether any public stakeholder review of the ICD-11 PHC draft content is planned. If not (and there has never been any intention to the best of my knowledge to make the draft available for public scrutiny) whether a formal public review mechanism or alternative channel for submission of stakeholder input might realistically be negotiated for. A letter requesting specific clarifications from WHO/ICD Revision was drafted, in April, for the use of the Countess of Mar.
     
    Last edited: Jun 7, 2018
    Melanie, alktipping, Inara and 3 others like this.
  8. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,707
    Likes Received:
    10,940
    Yes. But obviously no one cares?

    These people are very close to having established that ME/CFS will be diagnosed as somatoform disorder (BDD) in the future. In fact, in the future every illness might be diagnosed as "somatoform" - because, you know, it's not so important to distinguish between psychogenic and biological.

    It also shows me - again - not to say too loud what diagnoses I have myself.
     
    Melanie, alktipping, Missense and 2 others like this.
  9. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    This is the fourth in a series of posts about SNOMED CT:

    Post #4 Change of Parent for Chronic fatigue syndrome and its Synonym terms

    Post #1 Introduction to SNOMED CT clinical terminology system
    Post #2 Concept terms of interest to us
    Post #3 Inclusion of ICD-11's Bodily distress disorder
    Post #5 Confirmation of change of Parent for CFS and its Synonym terms
    (to be posted after July 31, 2018)


    Change of Parent for SNOMED CT Concept: SCTID: 52702003 Chronic fatigue syndrome (disorder)

    As set out in Post #1 of this series, the SNOMED CT terminology system is structured differently to ICD-10 and ICD-11. SNOMED CT doesn't use a chapter system. Instead, disease and disorder Concept terms are arranged hierarchically under a series of Parent terms which provide "Relationships" for the Concept term.

    SNOMED CT is made available under license. But a public browser for the International Edition and a number of the country editions can be viewed here:

    http://browser.ihtsdotools.org/

    The SNOMED CT UK Edition is managed by NHS Digital, as the designated SNOMED CT UK National Release Centre. A public browser can be viewed here:

    https://termbrowser.nhs.uk/


    Since April 2018, SNOMED CT UK Edition has been the mandatory clinical terminology for use in NHS primary care, replacing the Read Code (CTV3) terminology, which is now retired.

    Secondary Care, Acute Care, Mental Health, Community systems, Dentistry and other systems used in the direct management of care of an individual are scheduled to adopt SNOMED CT as the mandatory clinical terminology before 1 April 2020.


    History of CFS, ME in SNOMED CT:

    In SNOMED CT, the Concept term is Chronic fatigue syndrome (Concept SCTID: 52702003).


    Prior to July 2015, Chronic fatigue syndrome and its Synonym terms had been assigned under two Parents:

    Multisystem disorder
    Mental disorder


    Following discussions in 2015 between the Countess of Mar, NHS Digital (then HSCIC) and SNOMED International, it was agreed that the Mental disorder Parent would be removed from CFS and that this would be actioned for the July 2015 release of the International Edition.

    At the same time, a change was made for the listing of Postviral fatigue syndrome (a change which had not been requested by the Countess of Mar).

    Postviral fatigue syndrome had been listed under Children to CFS. But PVFS was assigned a new SCTID code of its own and moved under new Parent: Post-viral disorder, under Parent: Post-infectious disorder.


    The Multisystem disorder Parent was retired for the January 2018 release:


    In 2017, SNOMED International terminology managers decided that the Concept: Multisystem disorder was not sufficiently specific for the purposes of their terminology and that the term should be retired from use across the entire system.

    Concept SCTID: 281867008 Multisystem disorder (disorder) had 90 Children Concepts located under it, including CFS.

    So its retirement for the January 2018 release had implications for all of these terms - not just for CFS.

    When the Multisystem disorder Parent was retired, many of these 90 terms were relocated under more specific Parents. A few of these terms, including CFS, were not re-assigned under a new Parent.

    (A small number of these 90 terms have been retired from the system altogether because they were historical terms, or duplicates, or were considered to be ambiguous terms that were unsuitable for inclusion.)

    The removal of the Multisystem disorder Parent left CFS without a body system or aetiology Parent. Now, its only Parents were:

    Parents

    Clinical finding (finding)
    • Disease (disorder)


    This was not ideal. But it presented a good opportunity to request that a more specific Parent should be assigned to CFS.

    A formal request and a rationale text for adding the Parent: Disorder of nervous system to CFS was drafted by me and submitted via Forward-ME to the UK National Release Centre.

    A couple of weeks later, we were advised that this request for a change had been entered into the International Edition's peer review process and had been approved. The change is scheduled to be actioned for the July 31, 2018 release.

    This change would then be incorporated into the next release of the UK Edition (October 01, 2018) and in all the country editions, as they publish their new releases (from September 01 onwards, on a staggered schedule).

    If this change goes forward without any unforeseen delays, then for the July 2018 release, CFS should display like this in SNOMED CT:

    Parents

    > Disorder of body system (disorder)

    > Disorder of nervous system (disorder)


    Chronic fatigue syndrome (disorder) SCTID: 52702003


    52702003 | Chronic fatigue syndrome (disorder) |

    Myalgic encephalitis
    Myalgic encephalopathy
    Iceland disease
    Benign myalgic encephalomyelitis
    Chronic fatigue syndrome
    Myalgic encephalomyelitis syndrome
    ME - Myalgic encephalomyelitis
    Myalgic encephalomyelitis
    CFS - Chronic fatigue syndrome
    Chronic fatigue syndrome (disorder)


    Children:


    There are no Children under CFS in the International Edition. But the UK Edition includes three severity specifier options: Mild CFS; Moderate CFS; Severe CFS. These are marked with the Union Flag symbol to indicate that inclusion of these three additional severity terms is specific to the UK Edition.

    (I intend to establish in what year the three severity specifiers were added to the UK Edition; who submitted the request for their addition; whether they are optional; and by what means clinicians are to determine which of the three severities to specify.)

    For SNOMED CT, SCTID: 52702003 Chronic fatigue syndrome (disorder) was already cross mapped to ICD-10 G93.3. This additional Parent would consolidate that relationship.


    Caveat:


    This request for addition of Parent: Disorder of nervous system (disorder) has been accepted but the draft content for the July 31, 2018 release has not yet been finalized. The July 31, 2018 Release has now reached the BETA Release stage.

    Member organizations are able to download the Beta release files to perform a technical evaluation of the core files before the next International Edition release package is distributed to Members on June 30, 2018 (ie a full month before the July release is implemented).

    I will update in Post #5 Confirmation of change of Parent for CFS and its Synonym terms when the content of the July 2018 Release has been finalized and when the July Release is available on the public browser.

    I'll also confirm that the three severity specifiers for BDD have been incorporated into the July Release (See Post #3) in this series.
     
    Last edited: Aug 1, 2018
    Melanie, mango, Lisa108 and 9 others like this.
  10. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    3,191
    Likes Received:
    26,369
    Thanks for all your work on that - sounds like you got a positive change there.
     
    Melanie, mango, Inara and 3 others like this.
  11. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    The World Health Organization (WHO) has released an initial version of ICD-11 overnight.

    A press conference was scheduled for June 14th:

    WHO Press Conference

    14 June 2018 15:00 - 15:45

    Release of ICD-11 – the 11th revision of the International Classification of Disease – Monday, 18 June 2018.
    ICD is a global health information standard that is translated into 43 languages and used in more than 120 countries in its 10th revision (ICD-10). The last revision of this standard has occurred 28 years ago.This new ICD 11th revision has developed into a modern electronic tool that fulfils all needs for accurately recording diseases and causes of death. Its content has been updated with the most current scientific knowledge and will provide much better information on how to prevent or treat injury and disease.

    • Dr Shekhar Saxena, Director, Department for Mental Health and Substance Abuse, WHO
    • Dr Robert Jakob, Team Lead, Classifications, Terminologies and Standards, WHO
    Press release:

    The embargo on a WHO press release is understood to lift on Monday, June 18th. I will update this post with the link for the press release when this becomes available.


    A dedicated website for ICD-11 has been launched overnight:

    https://icd.who.int


    As of June 15, the ICD-11 Beta Draft platform is renamed to ICD-11 Maintenance Platform

    https://icd.who.int/dev11/f/en#/

    The Maintenance Platform remains orange.

    (If you had a registration for the Beta Draft platform this will still work for the Maintenance Platform.)

    Welcome to the ICD-11 Maintenance Platform

    IMPORTANT! The content made availabe [sic] here is not a released version of the ICD-11. It is a work in progress in between released versions

    [​IMG]
    • The audience for this site is the maintainers, contributors and translators of the classification
    • The classification seen on this is not the released version of the classification. The content in this platform may change on an ongoing basis
    • For the latest release of the classification please see ICD-11 Browser (blue)


    (The Maintenance Platform continues to display both the Foundation and the ICD-11 (Mortality and Morbidity Statistics).
    It continues to display Descriptions for some but not all categories, Inclusion terms, Synonym terms, Index terms, Equivalent ICD-10 term etc.)



    The initial release of ICD-11 is on a new, dark blue platform:

    ICD-11 Browser:

    https://icd.who.int/browse11/l-m/en

    ICD-11 for Mortality and Morbidity Statistics (ICD-11 MMS) 2018 version

    Version for preparing implementation

    Release Notes

    • The code structure for the ICD-11 MMS is stable.
    • Updating mechanism is in place, based on the proposals submitted on the maintenance platform




    ICD-11 Coding Tool Mortality and Morbidity Statistics (MMS) 2018:

    https://icd.who.int/ct11_2018/icd11_mms/en/release#/


    ICD-11 Reference Guide:


    https://icd.who.int/browse11/content/refguide.ICD11_en/html/index.html

    Edited to add: It looks as though a PDF version of the ICD-11 Reference Guide will follow.


    ICD Video:


    https://www.youtube.com/embed/tZFcoYfnwiM


    (The Implementation package doesn't appear to be accessible yet.)

    Implementation package:

    Training materials, implementation guidance, transition tables, translation tools, information about governance and maintenance, and different formats of ICD-11 for incorporation into existing health-reporting systems (paper, offline and online).



    ICD Home Page:

    http://www.who.int/classifications/icd/en/



    What hasn't been released?

    1) The ICD-11 Clinical descriptions and diagnostic guidelines for Mental and Behavioural Disorders (the equivalent to the ICD-10 "Blue Book") does not appear to be released.

    This is the companion publication to ICD-11 Chapter 06: Mental, behavioural and neurodevelopmental disorders. It provides expanded clinical descriptions, differential diagnoses, diagnostic guidelines and codes for the categories in Chapter 06 of the Foundation and MMS Linearization, including: "Essential (Required) Features, Boundaries with Other Disorders and Normality, and Additional Features sections. Additional sections (e.g., Culture-Related Features)".

    2) Any other specialty guidelines that had originally been projected, eg Neurological disorders; Paediatrics.

    3) As anticipated, ICD-11 PC (aka ICD-11 PHC), the revision of the 1996 publication: Diagnostic and Management Guidelines for Mental Disorders in Primary Care: ICD-10 Chapter V Primary Care Version. 1996 (aka "ICD-10-PHC") does not appear to have been completed.

    -----------

    I will update this thread as more materials become available.
     
    Last edited: Jul 21, 2018
    Melanie, Inara, Esther12 and 6 others like this.
  12. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    As published June 2018:

    ICD-11 for Mortality and Morbidity Statistics
    (2018)

    https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/569175314

    [​IMG]



    Notes:

    Because additional chapters have been added for ICD-11 and the chapter order reorganized, ICD-10's Chapter VI is now Chapter 08.

    The new coding structure takes its initial character from the chapter number, so the code for Postviral fatigue syndrome and its two specified Inclusion terms starts with 8 and the new code for Postviral fatigue syndrome is 8E49.

    Note that this release of the MMS does not display Synonym terms, so only the two specified Inclusion terms display under PVFS.
     
    Last edited: Jun 16, 2018
    Melanie, Inara, Esther12 and 3 others like this.
  13. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    As published June 2018:

    ICD-11 for Mortality and Morbidity Statistics (2018)

    https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/767044268



    Foundation Id : http://id.who.int/icd/entity/767044268


    6C20 Bodily distress disorder

    All ancestors up to top

    [​IMG]



    BDD Severity specifier texts:


    Foundation Id : http://id.who.int/icd/entity/1472866636

    6C20.0 Mild bodily distress disorder

    All ancestors up to top

    Description
    All definitional requirements of bodily distress disorder are present. There is excessive attention to distressing symptoms and their consequences, which may result in frequent medical visits, but the person is not preoccupied with the symptoms (e.g., the individual spends less than an hour per day focusing on them). Although the individual expresses distress about the symptoms and they may have some impact on his or her life (e.g., strain in relationships, less effective academic or occupational functioning, abandonment of specific leisure activities), there is no substantial impairment in the person’s personal, family, social, educational, occupational, or other important areas of functioning.

    -------------------------------

    Foundation Id : http://id.who.int/icd/entity/1967782703

    6C20.1 Moderate bodily distress disorder

    All ancestors up to top


    Description
    All definitional requirements of bodily distress disorder are present. There is persistent preoccupation with the distressing symptoms and their consequences (e.g., the individual spends more than an hour a day thinking about them), typically associated with frequent medical visits. The person devotes much of his or her energy to focusing on the symptoms and their consequences. The symptoms and associated distress and preoccupation cause moderate impairment in personal, family, social, educational, occupational, or other important areas of functioning (e.g., relationship conflict, performance problems at work, abandonment of a range of social and leisure activities).

    -------------------------------

    Foundation Id : http://id.who.int/icd/entity/1121638993

    6C20.2 Severe bodily distress disorder

    All ancestors up to top


    Description
    All definitional requirements of Bodily distress disorder are present. There is pervasive and persistent preoccupation with the symptoms and their consequences to the extent that these may become the focal point of the person’s life, typically resulting in extensive interactions with the health care system. The symptoms and associated distress and preoccupation cause serious impairment in personal, family, social, educational, occupational, or other important areas of functioning (e.g., unable to work, alienation of friends and family, abandonment of nearly all social and leisure activities). The person’s interests may become so narrow so as to focus almost exclusively on his or her bodily symptoms and their negative consequences.

    -------------------------------


    Notes:

    This release of the MMS does not display Synonym terms.

    Two proposals requesting addition of Exclusions for PVFS; (B)ME; CFS under Bodily distress disorder remain unprocessed.
     
    Last edited: Jun 16, 2018
    Melanie, Inara, mango and 6 others like this.
  14. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    ICD-11 for Mortality and Morbidity Statistics (2018)


    User Guide:

    https://icd.who.int/browse11/Help/Get/Caveat/en

    From the User Guide page

    Release Notes

    Initial release of ICD-11 MMS...
    • The code structure for the ICD-11 MMS is stable.
    • The classification will be updated yearly.
      Initially we are expecting more changes in the Extension Codes chapter.
    • There will be improvements on the user guidance
     
    Last edited: Jun 16, 2018
    Melanie, Inara, mango and 3 others like this.
  15. Trish

    Trish Moderator Staff Member

    Messages:
    15,668
    Likes Received:
    83,964
    Location:
    UK
    Thank you @Dx Revision Watch .

    This sentence looks worrying. Does it simply mean they haven't processed them yet, but will do so soon, or does it mean they intend to leave them 'unprocessed'?

    Apologies if you have already answered this. I have not been able to keep up with all your work and the details of what you have posted here.
     
    Melanie, Inara, MSEsperanza and 4 others like this.
  16. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK

    There are currently over 1000 proposals which have not yet been processed sitting in what is now called the ICD-11 Maintenance Platform (the former Beta development platform, which will remain online).

    The ICD-11 Maintenance Platform remains orange coloured to distinguish it from the dark blue Mortality and Morbidity Statistics (2018) Release.

    (It will still be possible to comment on content and submit new proposals and comment on existing and new proposals via the Maintenance Platform.)

    Proposals that were submitted before the deadlines of end of March 2017 and end December 2017 were supposed to have been processed for consideration for the initial release, in June. But around 200 of these remain unprocessed, including some of mine.

    We have already been advised that proposals in relation to the G93.3 legacy terms are on hold pending an evidence review - which includes my joint proposal with Mary Dimmock (submitted March 27, 2017) and the Dr Tarun Dua proposal (submitted November 6, 2017).

    These 1000 plus outstanding proposals now become the responsibility of the ICD-11 Medical Scientific Advisory Committee (MSAC) and the Classification and Statistics Advisory Committee (CSAC), which replaces the former ICD-10 Update and Revision Committee (URC).

    These committees will now have to work through these outstanding proposals (as well as new proposals submitted after today's release), as part of the update and maintenance programme.

    They won't necessarily review these on a first come first processed basis. And it's currently unclear how many of these outstanding proposals will be processed during the first 12 months after release. But some changes are likely to be incorporated in late 2019, as part of the annual update and maintenance programme.


    WHO has stated that any decisions about the G93.3 legacy terms "are on hold" until the results of an evidence review become available.

    We have been advised by WHO's Dr John Grove that:

    A systematic review will determine if the [G93.3 legacy categories need] to be moved to any other specific chapter of ICD-11.

    That the scientific review was expected to be completed by mid-April. (Unconfirmed whether it was and if so, whether it is currently with the MSAC for their consideration.)

    That the outcomes of the review will be provided for review by the Medical Scientific Advisory Committee. (So any new proposals and rationales for those proposals would be posted on the orange Maintenance Platform.)

    That new proposals posted on the platform will become part of the workflows of the maintenance mechanism of ICD-11 and be processed in an annual cycle.


    So we could potentially see new proposals being posted for review on the Maintenance Platform at some point in the future.

    In the meantime, now that the draft has been frozen for the initial release, the release is planned to remain stable until January 2019, when it is scheduled to be prepared for submission to the May 2019 WHA assembly for endorsement (to come into effect in January 2022).
     
    Last edited: Jun 17, 2018
    Melanie, Inara, MSEsperanza and 7 others like this.
  17. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    Update cycles:

    https://icd.who.int/browse11/Help/Get/Caveat/en

    From the User Guide page

    Release Notes

    Initial release of ICD-11 MMS...
    • The code structure for the ICD-11 MMS is stable.
    • The classification will be updated yearly.
      Initially we are expecting more changes in the Extension Codes chapter.
    • There will be improvements on the user guidance


    From the Reference Guide:

    https://icd.who.int/browse11/content/refguide.ICD11_en/html/index.html#1.7.1Updateprocesses|icd11-update-process|c1-6-1

    1.6.1 ICD–11 Update Process

    Official releases of the ICD-11 MMS classification are produced annually for international use in mortality and morbidity (blue browser).

    The ICD-11 Foundation Component is continuously updated. A standardised process has been established to ensure that the proposed updates are collected, routed, reviewed, and duly considered before being implemented. The updating is carried out at different levels with different frequencies. Updates that impact on the 4 and 5 digit structures will be published every 5 years. Updates at a more detailed level can be published more frequently. Additions to the index can be done on an ongoing basis. Mortality and morbidity rules that have serious impact on statistics will be updated in long term cycles of 10 years.

    ---------------------

    Reference Guide

    3.7 Annex - ICD-11 Updating and Maintenance

    https://icd.who.int/browse11/conten...ce|annex-icd-11-updating-and-maintenance|c3-7

    This section of the Reference Guide describes the workflow for updating ICD-11.
     
    Last edited: Jun 17, 2018
    Melanie, Inara, JohnM and 3 others like this.
  18. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    If you had registered for increased interaction with the ICD-11 Beta development platform, you'll have continued access to the ICD-11 Maintenance Platform. If not registered, you can register here:

    https://icd.who.int/dev11/Account/Register


    The two platforms:


    (Blue) ICD-11 for Mortality and Morbidity Statistics (ICD-11 MMS) 2018 Version:
    https://icd.who.int/browse11/l-m/en

    (Orange) Maintenance Platform:
    https://icd.who.int/dev11/l-m/en#/

    You won't see existing unprocessed proposals or responses to those proposals, or be able to view new proposals submitted since the release of the ICD-11 MMS, unless you are registered with the orange platform.


    [​IMG]
     
    Inara, mango, Esther12 and 1 other person like this.
  19. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

    Messages:
    853
    Likes Received:
    5,473
    Location:
    UK
    (NB: WHO may not post the news release until around 12 noon Geneva time. Will post the news release, once available, in a separate post.)

    The World Health Organization officially released an initial version of ICD-11 MMS today, Monday 18 June.


    A press conference was held on Thursday, 14 June at UNOG (United Nations Office in Geneva)

    WHO Press Conference
    14 June 2018 15:00 - 15:45

    Release of ICD-11 – the 11th revision of the International Classification of Disease – Monday, 18 June 2018.
    ICD is a global health information standard that is translated into 43 languages and used in more than 120 countries in its 10th revision (ICD-10). The last revision of this standard has occurred 28 years ago.This new ICD 11th revision has developed into a modern electronic tool that fulfils all needs for accurately recording diseases and causes of death. Its content has been updated with the most current scientific knowledge and will provide much better information on how to prevent or treat injury and disease.
    • Dr Shekhar Saxena, Director, Department for Mental Health and Substance Abuse, WHO
    • Dr Robert Jakob, Team Lead, Classifications, Terminologies and Standards, WHO
    --------------------------------

    News release:

    http://www.who.int/news-room/detail...rnational-classification-of-diseases-(icd-11)

    17 June 2018 News Release

    18 June 2018 ¦ Geneva: The World Health Organization (WHO) is today releasing its new International Classification of Diseases (ICD-11).

    [Full text posted in Post #44]

    --------------------------------

    YouTube Videos released today:

    [June 18, 2018 Video]

    World Health Organization Release of International Classification of Diseases. ICD-11
    https://www.youtube.com/watch?v=-iNwUnGD7sY

    [June 18, 2018 Video]

    WHO: Revision of ICD-11 – questions and answers (Q&A) Dr Robert Jakob, team leader for Classifications Terminologies and Standards at the World Health Organization discusses the revision of the new ICD-11.
    https://www.youtube.com/watch?v=_pE_Mai4A9U



    WHO Updated ICD-11 page:

    http://www.who.int/classifications/icd/en/



    Dedicated website for ICD-11:

    https://icd.who.int


    The two platforms:


    (Blue) ICD-11 for Mortality and Morbidity Statistics (ICD-11 MMS) 2018 Version:

    https://icd.who.int/browse11/l-m/en


    (Orange) Maintenance Platform:

    https://icd.who.int/dev11/l-m/en#/


    Reference Guide:

    https://icd.who.int/dev11/content/refguide.ICD11_en/html/index.html
     
    Last edited: Jun 18, 2018
    Melanie, Nellie, Amw66 and 5 others like this.
  20. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,707
    Likes Received:
    10,940
    What crap!

    On the other hand, what a huge success for the psycho folk. And governments will party. Because now, if you go "too often" to a doctor (however that is defined) you'll get a BDD diagnosis right away. So if you don't want that you don't go to the doctor (which saves money) and always think twice. Also my guess is misdiagnoses will increase - which again saves money because all those useless sicks are gone, hopefully (this is cynically meant).

    One needs to become a good liar and secret keeper. But in UK you have no chance because as I understood it the patient file is accessible for every doctor you have contact to.

    One really could cry. This is such a bad direction we're heading.

    Suzy, thousand thanks to you for keeping us updated!! I value that very much.
     
    Melanie, mango, Zombie Lurker and 3 others like this.

Share This Page