United Kingdom: ME Association news

The ME Association awards Decode ME the Howes Goudsmit Award 2025

The ME Association are pleased to announce that we have awarded DecodeME the Howes-Goudsmit Award 2025 for their extensive work and commitment to their genome-wide association study.

The Decode ME team is led by Professor Chris Ponting (Chair of Medical Bioinformatics, University of Edinburgh & Decode ME Chief Investigator), Sonya Chowdhury (CEO of Action for ME) and Andy Devereux-Cooke (Patient Representative and Co-Investigator at DecodeME) and they represent a much wider team of individuals involved in the DecodeME project.

The DecodeME team have informed the MEA that they intend to use the £5,000 prize money on ME/CFS research that builds on DecodeME with the current first priority being a whole genome sequencing project, Sequence ME and Long Covid.
 
From Facebook:
Have Your Say on Disability And Employment/Volunteering - Survey open until 22nd September!

We’re running an updated survey on ME/CFS and Long Covid to respond to proposed welfare reforms. Whether you can work, can’t, or struggle to stay in work—your experience matters. Help shape our policy and response to government plans.

Take part: https://meassociation.org.uk/srrq

#MECFS #pwME #MyalgicE #WelfareReforms #TakingThePIP
 
I don't know the aim or likely value of it, but I did find it accessible
I’ve been so put off by the lengthy questionnaires coming from some parts of the MEA I’d got used to skipping these sorts of requests. Perhaps a knock on of that sort of work they haven’t considered?

But thanks to your words @Kitty I took a look and completed it. Very quick and simple.
 
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